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BariCanary, keep us posted and good luck. I will be going to MHNI and Jefferson in Phili for a day each to talk to the docs and perhaps testing during May..don't know which days yet and neither seems very enhusiastic about the process. But need to find the facility or more accurately the doctor that fits me the best. In the meantime have finally agreed with my neurologist here on a plan to stay locally at the hospital starting in June in order to get off meds. Would rather do it close to home and he is pretty conversant with the drugs being used but I will verify when I go on these visits. Had today another pain block *supraorbital with propophol* and besides the first one they don't seem to be working. The pain guys have brought up the possibility of methadone or the experimental electrical pulse unit (whatever it is called). Both ideas leave me cold based upon what I have read. I have also had meetings with my internist and a hepatologist as well as a liver biopsy because my liver enzymes have been going crazy. They can see some damage but are lost as to what is causing it so they have sent it on to one of the leading liver pathologists in the country.... whew.... Anyway...I understand that there is some confusion about this issue with knowing exactly when the headache began relative to NDPH headaches...or so I was told. I have the same issue. I will look forward to hearing more. My doctor tells me that Dr. Rosen is pretty impressive as is Dr. Silberstein. Hope I did not bore...just catching up as I have just been too tired to stay in touch. |
"MDJunction to me is somewhere i feel safe i feel i can be myself and not be judged. I love the fact that i get to see that im not alone in what i am going through and i also get the chance to help others on their journey through guidance and communication.
