Jenna
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 Thanks you guys!!! ***BIG HUG*** I did not know that there was a possiblity of having seizures from not titrating down. I didn't cut the pills literally, I meant cut the dosage in half, but still, that sounds like it could be dangerous enough. How silly to be so concerned about my hair!!  I don't want the headaches back at the frequency I had them before (everyday). I just miss old things - like my thick, long, pretty hair, and the way pop used to taste, or anything with carbonation for that matter. I will see about getting in to see the dr on a cancellation basis. My regular dr is great. She didn't want to go past 175mg /day with the topamax, so she sent me to see a neuro. I did not like him. Personality was ok, but ethically, I think there was a problem. Maybe this is standard for all first neuro appts. The office was old looking in an affluent neighborhood though. Old furniture, new tv, smelled old. Old exam room tables and chairs, textured vinyl and chrome legs. Everything about the place screamed YUK! or Out of Date! or Leave Before they Get You!! They did a history, a "nurse" did all kinds of tests of everything imaginable like reflexes, balance, eyes, strength, etc. Then he came in, looked at me, I told him my hair was falling out from what I suspected was the topamax and he said he never heard of it and shuffled me to another room where they did a TOTALLY unnecessary emg.(and didn't even warn me or ask my permission - you know - just sign here) Why? I would ask a question and they would just tell me to follow the doctor or hold still. Anyone else experience this? Before I left they scheduled me for an eeg, a baep, and vep....??  I felt uninformed and underappreciated and like I was part of a herd of sheep he was running through his office like hundred dollar bills! Can anyone tell me if they have experienced this, if it's normal and what I can expect next? And, to make us all rest easier - I will call my regular dr today and only ask to go down my 25mg ok?? Love and Hugs, Jenna |
It IS the Topamax! I have been on it since (I can't even think right now - duh!! see what it does... ) I think 2 months. Up to 200mg a day, 100 twice a day. My hair is literally falling out in 20-40 strands at a time. I am afraid to wash my hair. 
Now I only hope to God that my hair comes back and my migraines do not!! I serioulsy thought I was imagining things and my husband thought it was just me being my normal over-reacting self, but I have never had hair this thin before in my life! Anyone find anything that works just as good for keeping weight off, headaches gone and maybe making me like pop again??? Or is that too much to ask?? 
Good luck and no, patients are usually not the crazy ones! You live with your body, not the MDs.
I cut the topamax in half - from 200mg per day to 100mg, and added the migrelief. We'll see how it goes. My hair looks like a badly put together Barbie doll's hair. Keep your fingers crossed for me!! I immediately noticed that my scalp does not hurt today - it used to hurt just to lay it on a pillow!!
Everyone have a super day! 
although I did notice a big difference in my scalp sensitivity and how much hair I lost today!! I was totally excited to see only a few strands after washing my hair and just a few more after brushing!
Let me know what you think - am I crazy to take this into my own hands?