New Daily Persistent Headache Support Group

Thanks for the link! Its great when there is actually research/articles on this condition. I still haven't seen any top specialists report about Lyme though--seems they either aren't seeing those patients or only have a couple of them and don't believe it. We've seen quite a few folks here who have responded to that treatment.

I think I'm in that auto immune category as my cytokines were high and my doctors say my symptoms point in that direction. I haven't actually tried anti viral meds though, only the Minocycline & Singulair combo and Plaquenil, which some folks with conditions such as Lupus respond to (I think it has some anti viral type properties). I've also gone the pt & massage & relaxation & psych therapy routes too. But, I think my neck symptoms are stemming from me tensing because of the headache.

I read the whole article and found in interesting Dr. Rozen's patients weren't responding to standard preventatives but Dr. Goadsby's were. I have read of too many folks here whose neuro's don't try them on preventatives long enough, but that isn't typical nor would I expect that from a top specialist, so there has got to be some difference in sample size or definition of responding to or something. Best wishes.