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"Cluster Headaches" (mcmac56)

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New Daily Persistent Headache (NDPH) Online Support Group
A community of patients and friends dedicated to dealing with NDPH and other chronic headache conditions together.
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NDPH ForumsGeneral & SupportNDPH for 3 years this year
06/24/2012 12:36 PM
MaryR
MaryR
 
Posts: 3868
Group Leader

WantNDPHCure, I am sorry that you feel that she is lying to herself. I am not living the life I planned for myself before the headache hit, but I am still living and I am enjoying the life I have now (though I would like it better without the headache). I can't do everything I want, I can't work the job I had before, but I do still have friends and meaningful things to do and I have an overall good life now.

I hope eventually you will either be headache free and get back to a "good" life that way, or find a life that you can consider worthwhile even if it takes a while to get rid of the headache.

Mary
NDPH support group leader
Dementia support group leader
Not a medical professional...just another patient with my own set of experiences to share.
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06/25/2012 09:30 AM  Top
design1
design1Posts: 112
Member

I have been dealing with the headache for 7 years, now, (since June 2005). I spent the first 4 or 5 years feeling sorry for myself, why did this happen to me? Why do I have to go to work every day with this headache and why do I have to do all the other things I've always done in the past, now having to do them with the headache??? Then I came to the conclusion that until this headache goes away, I am going to have to deal with it and continue on with my life, as it is right now. I look, every day, for something that will make this headache better, or go away, but, I don't let it stop me from living the life that I have, right now, to the best of my ability.

I never thought I was lying to myself, I always thought I was doing the best I could, given the hand I've been dealt. I have NOT given up, I just decided that since I have the headache, I might as well live life the best I can and not let the headache totally run my life. It isn't easy, it isn't always fun and it isn't what I hope it will be tomorrow, but, it is what I have and what I have to live with, right now.

Darrell

06/25/2012 10:00 PM  Top
Enbee
EnbeePosts: 1517
Senior Member

@wantNDPHcure.. I'm sorry you think I"m lying to myself but really how can you judge how other people feel? My life isn't how I imagined it but lots of positive things have come out of me having this headache. Hopefully you will feel that way one day too but in the meantime don't rubbish other peoples perspectives if they don't happen to agree with yours.
NDPH Group leader

06/27/2012 02:16 AM  Top
Louise91
Posts: 17
New Member

@wantNDPHcure you are so rude! You've made a couple of comments complaining about other people's negativity yet what are you doing? If you are unhappy with some of the things people say then there is a way to express that, but it's not by insulting everyone. It makes you look very childish.
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