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02/18/2012 12:26 PM

So...u have a job??(page 2)

tortoisegirlPosts: 3243
Group Leader

Sorry I was misunderstood. I don't take days off every couple of weeks...just leave maybe a half hour or hour early to fit in an appointment, as I can't always get a 4/4:30pm appointment and fit it in after work. Especially now that I have an hour drive to work and most of my doctors are closer to my house than work. I take a normal amount of time off or leaving early days compared to my co-workers so it hasn't been a concern.

That experience with the disability office is ridiculous. I'm also surprised there isn't the equivalent to a U.S. community college in Canada? Is there any sort of training programs short of going to school full time and getting a 4 year degree or whatever? What do folks do who decide to change careers?

If you have some skills or are willing to learn some, I think its a great idea to start your own business. Look up the laws in your country/area to see what to do about reporting income and its interaction with your disability payments, but from what you described about the income offset with payments, it maybe a very good fit for you. Seems like at the moment your Parks & Recreation training isn't going to be a good career fit.

I have no idea what you are talking about with the marketing of certain treatments. Anything said here is just our opinions, and I've never heard of someone being booted. They would have to be a spammer or something. Like Mary I'm just a volunteer. We do have access to lock threads, delete/edit posts, etc, but I don't know if even we can boot someone out? I think it has to be an admin? I sure haven't done anything like that. This board seems to have a lot less fighting/spam/etc than a lot of other boards I'm on. Can you please private message me the link to that review of this board? Thanks! Best wishes.


02/18/2012 06:48 PM
Posts: 7
New Member

tortoisegirl - Having Wednesdays off is a HUGE help for me and I think it would help you too. That day off keeps me sane! I can do chores or errands at my own pace and still have time to relax. I hope you are able to have a day off in the middle of the week too. It's nice to only have 2 days straight of work. Good motivation for getting up on Tuesdays and Fridays! Unfortunately, my job is not a permanent one. it ends on August 31st, but what is wonderful about having this job (I've been working there since october) is that I have proven to myself that I CAN work - if it's the right environment. I used to work in the airport... Yes, concrete floors, people yelling, standing up all shift, fluorescent lighting... It was terrible! I still have to motivate myself when the headaches get worse throughout the day but it's a lot easier than it was. (And even easier since I got a bright desk lamp with incandescent lighting instead of those darn fluorescent crap lights - I harbor great anger against such lighting!)

Your words really struck me, tortoisegirl - and reminded me of myself. Thank you for responding! My headaches started during my second year of university and I didn't have a choice if I wanted to work or not. Besides, as you mentioned, distraction can be a huge help. My headaches aren't affected by low sound levels so I'd much rather have a friend talk to me than me sit around thinking about the pain! I also feel as though a large part of my day consists of planning meals and getting ready for bed.

Good luck with figuring out an amended schedule that works better for you. Perhaps a 4 day work week could help you regain some joy - especially if you reserved half of the day as "you" time without chores or errands. Just time to relax!

02/18/2012 07:12 PM
tortoisegirlPosts: 3243
Group Leader

Mine also started my second year of University! Wow. Yeah I'm trying to hold off on dropping my work schedule for as long as I can, as I know I'm unlikely to have it pick back up again (overall health declining). Also considering taking a day or two off a month and trying to pack doctor appointments in, as having a couple appointments a week plus grocery shopping and whatever has me get home late way too often. Best wishes.

02/18/2012 08:34 PM
EnbeePosts: 1556
Senior Member

I was working for the first year of my headache. I worked for the Federal Government and worked on the Federal budget doing financial modelling and reviewing health costings. It was very hard to keep doing it with the amount of computer time I needed to put in and lots of document checking etc. I ended up being retired on grounds of disability after being off work for awhile.

I hope to go back to work at some point but I doubt I will be able to do office based work as I am very sensitive to light and noise. i might be able to do some consulting from home where I can control my environment a bit.

I had 3 years off work where I managed to improve my pain levels a lot my resting more and not being in noisy bright areas. Last year I had a baby so now I'm basically a full time mum. This has it's own challenges as I don't get time off when I am having a bad day and if she is being really noisy (i.e. at the moment screaming at the top of lungs for fun is constant) it makes it hard. Plus the sleep deprivation! But I'm managing which makes me think I might be able to do some work in the future.

Re your other question, as Kate and Mary have said we are volunteers. I only edit or delete threads if they are clearly spam or are double threads etc. Whenever we edit anything in a thread (usually on offensive language etc) we note it has been edited and why. There may be some issues in other groups but I don't often venture out of this group. Certainly any med or doctor recommendations on here seem to be genuine from people who are NDPH sufferers and anything suspicious should be reported to a group leader and we will review it.

02/19/2012 08:43 PM
Posts: 115

I worked as a Human Resources Specialist for close to 12 years. I loved my job but unfortunately I missed too much work (spent time at MHNI's headache inpatient clinic) and my Family Medical Leave expired. I attempted to volunteer at a hospital but it was just way to stressful, noisy and unpredictable. (It was more stressful then my human resources job!). My psychologist recommended trying to volunteer at a library where it is quieter and I could re-stock shelves or something like that. I'm going to Florida for 3 1/2 weeks in March so when I get back I was going to contact them. Would that be of interest to you to work in a quiet setting where they would be accomodating to your head pain? Also, I took a free chronic pain class through the National Arthritis foundation (I don't have arthritis but it was open to anyone suffering from chronic pain). The volunteers running the class mentioned that they needed help at their local office. I plan to call them to. I think they will be more understanding if I mention the limits of what I can do. Good luck with your decision about continuing working.

02/20/2012 09:20 AM
Posts: 30
New Member

I work as a full time Nursery Nurse with the Under 2's, luckily my headaches aren't affected by the sound of children, it is deeper sounds that can affect it, oh & also some of the musical instruments that we have but I have ways around that. I work Mon-Fri in a pattern of 3 full days & 2 half days & my half days are spread out. I also find work to be a good distraction, but I can have days where all I want to do is give up, but I have refused to let the headache win so far, I am sure if it carries on it will beat me one day, but I am willing to keep going until it does.

02/20/2012 11:53 AM
Posts: 8
New Member

I work part-time (20 hrs/week) as a chemistry and math tutor and volunteer as an undergraduate researcher (15-20 hrs/week), as well as being a full time student on basically a full ride scholarship (just dropped from 16 to 13 credit hours because I've been feeling a bit overwhelmed lately). I feel really fortunate that doxepin has enabled me to be this functional and also that I have very understanding bosses both in my tutoring and lab work. But sometimes I feel like as long as I stay extremely busy the pain doesn't bother me as much, and it's only when things slow down that I'm most affected.

02/20/2012 08:25 PM
KierkegrrlPosts: 42
New Member

Chimica, I hear you on the pain being more obvious when I slow down. I'm a resident in emergency medicine, so I work 12-hour shifts, usually 16 per month. In theory it's 12 hours -- I'm often stuck anywhere from 30 min to 2 hours past my shift wrapping stuff up neatly. I'm fortunate to not have any real migraine-like components to my headache, because the emergency department would be a terrible place to be sensitive to noise or light.

It's a fine balance, though -- a steadily busy shift keeps me distracted from thinking too much about my headache, but when the stress is too much, especially on top of the inevitable sleep deprivation of my night shifts, it definitely exacerbates it. I think at those times that I am not as patient with my colleagues or my patients as I should be, and I am trying to overcome that. Stuff outside of work has also suffered since this started -- I used to bike to work pretty often, but I have been too exhausted from the constant headache to contemplate getting up early and doing that, or any other real physical exertion.

If I wasn't working, I might have the time and energy to get back into exercise, but I also might lose my motivation to keep living. Maybe my self-image is overly bound up with my job, but it's hard for it not to be when you've gone through so much education and training.


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