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  "for all suffers, I myself became disabled from a car accident." (kittybugg)

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neshama48"Having Crohn's Disease for over 26 years, in the first few years, it lonely and isolating.
Though now my disease is in a near perfect remission, my friends and family are sympathetic to me, but I can not talk to them about this disease. When I stumbled across MD Junction, and met others who had the same disease I was not alone in battling the disease. MD Junction is like a second family, without the judgement or guilt of having Crohn's Disease, but they do give you love and support." (neshama48)

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New Daily Persistent Headache (NDPH) Online Support Group

New Daily Persistent Headache Support Group

A community of patients and friends dedicated to dealing with NDPH and other chronic headache conditions together.
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Group Home   Forums   Articles   Members (1257)   Diaries   Videos   Leaders   Guidelines
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NDPH Forums › General & Support › Links to helpful sites
05/02/2012 09:03 AM
Links to helpful sites (page 3)
FloatingFrog
Posts: 24
New Member
what is MHNI?
K.

Vampiristic headache, my longest and most stable relationship in a while
Reply

05/02/2012 02:25 PM  Top
MaryR
MaryR  
Posts: 3895
Group Leader
The Michigan Headache & Neurological Institute

Their website is here http://www.mhni.com/

They used to have a really good reputation for treating NDPH, but the doctor who specialized in it has moved on (Dr. Rozen, he is now in Pennsylvania I think). It still has a good program for headaches in general, but it isn't as great as it was for NDPH.

Mary
NDPH support group leader
Dementia support group leader
Not a medical professional...just another patient with my own set of experiences to share.

05/02/2012 04:48 PM  Top
FloatingFrog
Posts: 24
New Member
Thanks

Supposedly my dr is also one of the best with ndph. Dr Grosberg at Monteriore Headache Center. You know him or heard of him?

K.

Vampiristic headache, my longest and most stable relationship in a while

Previous discussions I participated in:
gabapentin
5 month anniversary - request
body tuning

05/02/2012 07:04 PM  Top
leitheij
leitheij  
Posts: 110
Member
I am/was a patient at MHNI. If you would like to private message me with any questions, I'd be happy to answer them.

05/03/2012 10:55 AM  Top
MaryR
MaryR  
Posts: 3895
Group Leader
I think I have heard of him because several other people here also go to him, like him, and have found him helpful when other doctors weren't.

You can find their reccomendations on this thread http://www.mdjunction.com/forums/ndph-support-forums/ medicine-treatments/786313-doctor-recommendations-in-ny- area/limitstart/10

As far as I know he hasn't published any studies or anything about NDPH (most doctors haven't, I know mine hasn't), but that doesn't mean they aren't great practitioners, it just makes it harder for people all over the country (or the world) to hear about them.

Mary
NDPH support group leader
Dementia support group leader
Not a medical professional...just another patient with my own set of experiences to share.

10/27/2012 12:12 PM  Top
tortoisegirl
tortoisegirlPosts: 2851
Group Leader
trill-Welcome! Thank you for sharing. Best wishes.
Kate
a NDPH Group Leader
"When life gets you down do you wanna know what you've gotta do? ...
Just keep swimming. Just keep swimming."

Previous discussions I participated in:
Anyone taking Methadone?
Zanaflex
How about Oxytocin?
Reply

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