Why wear a ribbon?

"Chronic headache going on 15 months now." (Yacopsae22)

MDJunction to me

"I have been struggling with Fibromyalgia, Bipolar, Anxiety, Post traumatic Syndrome for quite some time and pretty much going it alone. I stumbled across MDJunction by accident. I stayed in the shadows and just watched for four days and then I joined, feeling relieved and excited to have found a safe place with alot of folks that I could relate to . It's proove to be medically and emotionally
helpful to me and now I can't go a day without coming in at least 4 or five times a day! I Love my family here.
Frenchie GL Addiction Recovery
" (Frenchie)
We comply with the HONcode standard for trustworthy health information:
verify here.
Help us to keep MDJunction free and open for all!
The New Daily Persistent Headache, as the rest of MDJunction is free to use - Register Here
New Daily Persistent Headache (NDPH) Online Support Group
A community of patients and friends dedicated to dealing with NDPH and other chronic headache conditions together.
Join This Group
Group Home   Forums   Articles   Members (522)   Diaries   Leaders   Guidelines
 
06/25/2008 01:13 PM
kchavarria
Pink Ribbon
Posts: 79
Member

Send a PM
Give a Hug
I've been having headaches every day and migraines 3-4 times a week. I'm on topomax and other drugs ... seems everything has stopped working. I'm not sleeping well either even with Ambien. Although I hadn't complained of that to the doctor. Out of the blue today, the nurse called and my neurologist has ordered a sleep study for me. Anyone done that before for testing in regards to your headaches? Curious to what their looking for. (the sleep issues didn't start until I got on Topomax)

Post edited by: kchavarria, at: 06/25/2008 13:15

Reply  Join MDJunction for Free


06/25/2008 03:41 PM
MaryR
Burgundy Ribbon
Posts: 2020
Group Leader

Send a PM
Give a Hug
I haven't but my sister has. She has a sleep disorder though, so it is logical for her case. She found research that linked some sleep disorders to migraines (nothing about NDPH which is what I wanted to know about). She probably knows more of the details of what they might be looking for specifically in your sleep patterns but I can't ask her right now cause, well, she is asleep.

It maybe that they are thinking that you have an underlying sleep disorder that is making your migraines worse and some of the meds you are taking for the migraines may actually be further interrupting your sleep cycle and in the long run giving you more problems instead of less. Or somethign like that. I wish I had actually read the articles instead of her just telling me about them.

I will post more details if she can remember them after she wakes up, and links if she knows where the articles were.

Mary
NDPH support group leader
Dementia support group leader
Not a medical professional...just another patient with my own set of experiences to share.
Reply  Join MDJunction for Free


06/25/2008 04:29 PM
MaryR
Burgundy Ribbon
Posts: 2020
Group Leader

Send a PM
Give a Hug
Hey, this is Mary's sister posting under her name (with permission...she didn't want to type for me, and I am faster anyway).

I couldn't remember where the old articles I had read were, but I have found a few with a search now...

I remember that the oxygen deprivation that happens in obstructive sleep apnea is supposed to trigger or prolong migraines. I also remember that in screening stuff at sleep centers, they often ask questions about headache patterns...if people wake up with a headache often, then they are very likely to suspect there is something happening during sleep that is causing it.

Articles I can find right now:

http://www.sleepreviewmag.com/issues/articles/2005- 09_11.asp

http://www.redorbit.com/news/health/1425643/ sleep_disorders_in_children_linked_to_migraines/index.html

http://archinte.ama-assn.org/cgi/content/full/159/15/1765

The good news is that if they find that you are having problems with sleep apnea and it is triggering the migraines, it is really treatable and you can see improvement very quickly. While they are annoying (I tried one for a while when my doc couldn't figure out what else to try) CPAP machines can make a huge difference for a lot of people, and they aren't that hard to adjust to.

If you need more info on sleep studies or what to expect, let my sis know and she can have me come back and post more. I have had a nighttime polysomnograph and a multiple sleep latency test, and I am about to do both of those again and use an actigraph for a while (watch type thing that keeps track of all sorts of things to see when I am awake and asleep), so I am familiar with sleep tests.

Mary
NDPH support group leader
Dementia support group leader
Not a medical professional...just another patient with my own set of experiences to share.
Reply  Join MDJunction for Free


06/26/2008 08:21 AM
kchavarria
Pink Ribbon
Posts: 79
Member

Send a PM
Give a Hug
Thank you so much. My husband as sleep apnea and uses a CPAP machine. We'll look like a very strange couple in bed if this is the case. ha. Thank you for the article postings!!!

Kristi

Reply  Join MDJunction for Free


06/26/2008 03:26 PM
MaryR
Burgundy Ribbon
Posts: 2020
Group Leader

Send a PM
Give a Hug
I am glad she was able to help. I will pass the thanks along. We wonder if there is some link between her sleep disorder and my NDPH, but neither has a known cause or is well understood so we may never know the answer to that.
Mary
NDPH support group leader
Dementia support group leader
Not a medical professional...just another patient with my own set of experiences to share.
Reply  Join MDJunction for Free


Related Discussions:

Start a New Discussion

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice. Read more.
Contact Us | Bookmark Us | Add a Doctor | For Doctors | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | MDJ Advocates | Advertise
Copyright (c) 2006-2009 MDJunction.com All Rights Reserved