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07/09/2013 09:29 AM

HELP ME!!!!

Linneaselin
Posts: 1
New Member

I Don't know what to do anymore.. I have had it for 8 years and im really tired of having pain al the time..
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07/09/2013 10:54 AM
Jrosie
Posts: 30
New Member

I'm so sorry you've been suffering for so long. I'm just over the year mark and know that I get down, depressed and overwhelmed. I can't imagine dealing with it for so long. The only thing I can say is that tomorrow will be better. That's all that gets me through sometimes. I know its pretty meaningless but its all I've got.

07/09/2013 08:40 PM
tortoisegirl
tortoisegirlPosts: 3239
Group Leader

Welcome! Sorry you are struggling. I've had the headache for seven years. What have you tried so far? So you have a good headache specialist who continues to try new treatments? Hang in there! Hope to see you around here again soon. Best wishes.

07/11/2013 04:41 PM
daisy1990
Posts: 53
Member

I've had mine for 4 years now with no lasting relief. It's very hard staying positive while being in constant high pain levels. I have to admit it's still a struggle everyday for me. I do want you to know this: never give up!!!! Keep on going and believing and simply just don't give up.

07/11/2013 11:34 PM
darkenfloxx
darkenfloxx  
Posts: 36
Member

I've had a headache daily for years - cant count - what meds do all of you take and with severe daily pain how do you avoid rebound headaches?? I know my pain level is so high it is very difficult to go even one day without medication to reduce the pain at least a little bit - I just went several weeks with no meds at all to confirm my daily headache is not rebound headaches - they are worse than ever - staying positive gets harder all the time when one feels they have tried everything for years and its only getting worse!! I respect all of you with such great attitudes!! I know being positive might help with stress and pin but...... Ugh!!!!!!

( FYI yes I've tried many preventatives and every pain killer from Triptans to oxy) I'm off any narcotics now but it's no better - worse because they often reduced the pain for a bit

Dizzy


07/12/2013 05:32 PM
WasntMee
WasntMee  
Posts: 653
Senior Member

You remember the movie "The Jerk" with Steve Martin? When he yells out "You mean, I am going to stay this way?"

That was me sitting in a doctor's office when I realized the ringing and pressure weren't going away. Bummer.

But at some point I realized the ringing and pressure weren't going away so I had to deal with it or die. And I didn't die so here we are!W00t


07/12/2013 07:58 PM
tortoisegirl
tortoisegirlPosts: 3239
Group Leader

I too have a hard time getting anything to work when the pain spikes bad. I try to catch it before it goes up too bad (I will take hydromorphone, relpax, sumatriptan, and/or Sprix - Torodal nasal spray). However, my worst pain is usually a migraine or migraine-like episode, with nausea, so then I avoid the narcotic and focus more on getting the nausea down (I'll take Zofran, although Phenergen works better but causes drowsiness).

I never really had that moment of realization that the pain was here to stay...it happened over time. Best wishes.


07/13/2013 08:58 AM
gwapito424
gwapito424Posts: 77
Member

I have had undiagnosed Lyme (until recently) having the basic symptoms of NDPH, it has been miserable. I get it, as do all of the posters here on the forum. I hope you are finding some ways to stay positive, even when it's difficult, this has helped me a great deal, even though it doesn't always work Wink It also helped me to continue to search for a way to get better, I only stopped looking for a brief time a few times, and it really helped my outlook when things were otherwise so bleak. Hang in there, we're standing with you

07/14/2013 09:36 AM
darkenfloxx
darkenfloxx  
Posts: 36
Member

I guess we are all in that spot - "deal with it or die" - what choice it there? But I swear I NEVER stop mulling over HOW to figure this out and WHAT to do about it - I keep changing the routine to see if something helps - sometimes it helps to feel that there might be some treatment out there I haven't tried or I will find the reason for my daily headaches so I can treat that but other times I wish I could just take whatever brain numbing meds I can to dull the pain just a little and forget it - except I know that would be throwing my life in the toilet - I would not only get addicted but I would end up with rebound headaches - I just cannot accept I have this pain and it will stay here forever - plus heaven knows I need to focus on other things than my headache - like kids, work, etc....I have to write and publish an article before summer's end or else I am in big work trouble!!

07/14/2013 09:52 AM
oddonset
Posts: 99
Member

I have had NDPH for many, many years. Like most of us I tried lots of remedies with little or no benefit. I am currently trying a gluten-free diet. It seems to have helped some people. I have been on it 2 weeks and have not noticed any benefit yet. Good luck on your journey of trial and error.

Louis

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