http://www.mdjunction.com/forums/ndph-support-forums/feed http://www.mdjunction.com/forums/ndph-support-forums/feed en-us Copyright (C) MDJunction.com. All rights reserved. Sat, 18 May 2013 03:13:10 -0700 http://www.mdjunction.com/forums/ndph-support-forums/introductions-personal-stories/10686866-new-4-months-of-pain-discouraged#10689932 Nope I wouldn't describe my pain as burning...interesting. Mine is a pressure type pain, with intermittent throbbing. My opinion on Botox is its probably worth a try unless the out of pocket cost is too high. Insurance will cover it in the U.S. if your doctor will write chronic migraine (the only headache condition its FDA approved for). It probably isn't any more likely to help than oral meds, but has a low side effect profile, and can give almost immediate relief (within a week), althoug... Fri, 17 May 2013 21:58:18 -0700 http://www.mdjunction.com/forums/ndph-support-forums/general-support/10689254-experiences-with-dhe#10689916 Sometimes they just do the DHE, sometimes they add other meds (especially if the DHE doesn't seem to help). Lidocaine, Ketamine, Depakane, pain meds, phenergan (a nausea med that can help pain sometimes, or at least the nausea the pain meds often cause), etc, may be tried. If you go through with this, ask them what they are giving you, what it is for, and any side effects you should watch out for. It freaks me out when someone tries to give me a med in the ER or whatever without actually ... Fri, 17 May 2013 21:50:39 -0700 http://www.mdjunction.com/forums/ndph-support-forums/general-support/10682494-ndph-and-a-new-second-headache/limitstart/10#10688515 I hope the MRI gives some really helpful results and that they don't wait a long time to get back with you on what they find.... Fri, 17 May 2013 09:17:02 -0700 http://www.mdjunction.com/forums/ndph-support-forums/general-support/10687402-its-back-or-is-it#10687692 Welcome to the group. Sorry your son is suffering so much. So currently how often are the headaches and how long do they last? Is the vomiting only with the worst pain? Were any of these four doctors a pediatric headache specialist? If not, I'd try to find a neuro whose only practice is headaches. You may have to drive a ways depending on where you live. From what you describe, my guess is that this is something different than the previous headache period, possibly migraine. Have any o... Thu, 16 May 2013 21:10:14 -0700 http://www.mdjunction.com/forums/ndph-support-forums/general-support/10677165-anyone-have-any-success-with-tramadol-for-ndph#10685497 I was on tramadol at one point but it was or post-surgical pain, and unrelated to treating my headache. I found it made no difference to my head pain, but most traditional pain killers had no effect on my head pain.... Thu, 16 May 2013 02:13:04 -0700 http://www.mdjunction.com/forums/ndph-support-forums/general-support/10677666-zolmitriptan#10685495 I haven't but I had no success with other triptans I tried.... Thu, 16 May 2013 02:10:46 -0700 http://www.mdjunction.com/forums/ndph-support-forums/introductions-personal-stories/3561450-greetings-one-year-headache-anniversary/limitstart/30#10685493 Ruling out lyme disease is a good step! Hopefully the change in sleep position helps too :)... Thu, 16 May 2013 02:07:20 -0700 http://www.mdjunction.com/forums/ndph-support-forums/medicine-treatments/3709080-drc-david-gordon-mhni#10685170 mcmac56: Welcome! Thank you for sharing. Feel free to post an intro thread (click start a discussion at the top of the page) and share as little or as much about your journey as you feel comfortable. Best wishes.... Wed, 15 May 2013 19:29:02 -0700 http://www.mdjunction.com/forums/ndph-support-forums/general-support/10683436-has-anyone-had-this-experience-taking-meds-for-headache#10685168 I don't seem to get that effect from opiates, even the strong stuff. Certain ones at high doses do help my pain though. I'm sure you'll take whatever you can get! The goal with opiate pain meds is usually about 50% relief; anything more than that and the side effects and tolerance increases. Distraction is good. Best wishes.... Wed, 15 May 2013 19:26:58 -0700 http://www.mdjunction.com/forums/ndph-support-forums/general-support/10678524-muscle-tension/limitstart/10#10685166 So no significant headaches before Oct, and it was daily since Oct? They would call that sudden onset. The worsening is interesting though. There can definitely be more than one component. I have heard of others worsening then stabilizing, either at a higher or lower level. MOH sounds unlikely, but if you wanted to completely rule it out, you'd probably want to have her avoid any analgesics for 2-3 weeks. Narcotics make some people more sensitive to pain, so its not unheard of to have wo... Wed, 15 May 2013 19:25:47 -0700 http://www.mdjunction.com/forums/ndph-support-forums/general-support/2091043-tramadol#10684618 I've been on it for about a week now, first few days it watered it down, and I was feeling ok because of the feeling the drug gave me , which basically was that I was in a good mood but still have the headache, that euphoric feeling has faded and now the headache is still there.... Wed, 15 May 2013 16:02:16 -0700 http://www.mdjunction.com/forums/ndph-support-forums/general-support/10676266-cefaly-anti-migraine-machine#10679236 thanks Daisy for your quick reply... Mon, 13 May 2013 10:13:11 -0700 http://www.mdjunction.com/forums/ndph-support-forums/introductions-personal-stories/10645369-help-constant-headache/limitstart/10#10677651 My last round was 200 units, so about 40 injections, but I think I will drop back to 31 injections of 155 units (Allergan recommend between 155-195) as it is so expensive, and I don't think there is a significant difference between the two. My neurologist who does the 155 units has been doing it for over 10 years for all sorts of conditions, so is a bit of an expert. My new pain management doctor did it last time and he has only had 6 months experience, and I must admit it really hurt. He doe... Sun, 12 May 2013 13:10:28 -0700 http://www.mdjunction.com/forums/ndph-support-forums/general-support/10666067-what-are-the-major-triggers-you-have-found-for-your-headaches#10676090 Like many have mentioned: - light sensitive (sunglasses outside even on cloudy days) - weather changes (hours before a storm... and extreme temp. changes) - poor sleep and poor sleeping position (sometimes I fall awkwardly asleep on the couch) - stress and anxiety - sinuses (allergies, infections, inflammation) - being outside in the cold with no hat - strong smells of any kind (perfume, deodorant, cleaning products... etc.) - going too long without eating - I don't do strenuous exerci... Sat, 11 May 2013 16:47:23 -0700 http://www.mdjunction.com/forums/ndph-support-forums/general-support/10672623-hemicrania-continua-botox#10674344 Welcome! I'm so glad you have found some helpful treatments after all these years. I think its individual as to if Botox works for folks, despite the condition, plus they don't have too much data for it for anything but chronic migraine (what it is FDA approved for in the states). I hope you have continued relief from the Botox. Sometimes it can wear off before the three months is up, plus sometimes there is some inconsistencies in the relief as there is some doctor skill involved in the i... Fri, 10 May 2013 18:10:17 -0700 http://www.mdjunction.com/forums/ndph-support-forums/general-support/10668564-sounds-weird-problems-w-teeth#10669406 Good to know I am not alone. Thanks! I am also all too familiar with cheek/face pain - unfortunately. I'm always pressing just under my eyes - and pressing the entire heel of my hand into my eye sockets. In July it will be 1 year for me. I wish we could all be free of this pain!... Wed, 08 May 2013 15:58:55 -0700 http://www.mdjunction.com/forums/ndph-support-forums/general-support/10663650-self-help-methods#10666827 9) Another thing I'm doing is removing or avoiding anyone who doesn't make me feel good or adding to my problems with theirs including family members. 10) I was in Australia recently visiting a friend who I've known a long time and most the time I can barely socialize with him so what I do if it's bad I let him know about it and the reason y I'm sooo quiet which does help to relieve the social pressure temporarily. This kind off helps but if it's happening practically all the time u can't keep... Tue, 07 May 2013 14:20:30 -0700 http://www.mdjunction.com/forums/ndph-support-forums/general-support/10664048-types-of-headache#10665354 Triptans are easy enough to try, especially if you can get samples. They used to not help me, and sometimes now for certain types of pain (when it gets more sharp), specific ones help. Botox appears to help more migrainous headaches. I don't think its more likely to help NDPH than any of the oral meds, so if its a big hassle / cost, I wouldn't prioritize it. Its important to have a doctor with a lot of experience with it for headache (ie. does the injections on a weekly basis). Same with ... Mon, 06 May 2013 20:16:04 -0700 http://www.mdjunction.com/forums/ndph-support-forums/general-support/10662665-insurance-approved-nerve-stim-trial#10663694 Wishing you the best of luck with this procedure! I hope you get the relief you deserve!... Mon, 06 May 2013 04:43:50 -0700 http://www.mdjunction.com/forums/ndph-support-forums/general-support/10652470-my-first-post-to-the-group/limitstart/10#10663387 Yes I agree with Mary. Diamox may be worth a try even in the absence of intercranial hypertension, but I haven't heard of it being used for the feeling of pressure. However, I've had a couple doctors think it wasn't even worth me trying it. Best wishes.... Sun, 05 May 2013 20:42:42 -0700