|
sleepygal Posts: 3
New Member
|
I am a 31 year old stay-at-home mother of two and lead a very busy life with friends, family, and the community. I have been fairly sleepy as long as I can remember and it got much worse in my early twenties. It never occured to me that I could have narcolepsy until a friend described another friend who had recently been diagnosed and her symptoms. Wow! Sounded just like my life... I am very active and healthy and don't fall asleep uncontrollably, but get VERY sleepy throughout the day, regardless of how I am sleeping at night. I also sleepwalk frequently, which sort of started my insistence on getting help (I broke my finger in my sleep - ouch!). If I do let myself sit down or rest in the middle of the day, I usually fall asleep. I did two sleep studies, the first of which was just a joke since I didn't fall asleep until 4 in the morning and then my body was just wired for my MSL test. The next one was just the MSL and the nuero. said he would treat me for narcolepsy, due to the results (I fell asleep within 5 min. for 3 out of 4) and when I asked if he was diagnosing me with Narcolepsy, he just said, "I dont think anyone would refute that diagnosis. Hmmm... So the Ritalin and Aderall (sp?) aren't helping and I'm waiting to make changes to my birth control so I can go on the Pro or Nuvigil. In the meantime, I switched primary care physicians to a friend of the family I really trust, who tested my B12. Evidently I'm quite deficient. As I do my research, it seems as if the injections he's prescribing might give me quite an energy boost. Perhaps that's my only problem? Or perhaps that will be enough of a treatment for my narcolepsy, if I indeed have it. I have a problem with the fact that there is no absolute way to diagnose the disorder - no blood test or scan or anything can tell me for sure that this is truly my condition. These are my thoughts 3 or so months into my "diagnosis".
|
"I've been a grateful member here for over 4 yrs this place has changed my life of course for the better, coming to the groups has enabled me to no longer feel so alone. As a group leader for the Bipolar Support group I can relate to others and am expressing my experience strength and hope and this is very rewarding, I've also made many supportive friends here whom I talk to some daily. I used to have a lot of 'lows' since becoming member here at MdJunction I no longer have these lows." (Dit)
