MDJunction - People Helping People
 

Why wear a ribbon?

  "Its a soft and pretty color that holds a peaceful look. We all need some peace i..." (grammlyn)

MDJunction to me

Colleenj"As someone with Bipolar II, it is not easy finding people who understand. Here at MD Junction, EVERYONE understands. What an incredible feeling it is knowing that I don't have to deal with this disorder alone. MD Junction is the best resource I have found on the internet as support for just about any mental or physical condition." (Colleenj)

more testimonials
Narcolepsy Support Group
A community of patients, family members and friends dedicated to dealing with Narcolepsy, together.
Join This Group
Group Home   Forums   Articles   Members (546)   Diaries   Videos   Leaders   Guidelines
Narcolepsy Group RSS Feed
Narcolepsy ForumsGeneral & SupportHerbal cures anyone??
09/17/2009 07:02 PM
harley121
Posts: 2
New Member

Has anyone ever tried any of the herbal cures out there? I just ordered one called carnofax. That web page is; http://www.carnofax.com/

Any comments??

Post edited by: harley121, at: 09/17/2009 07:05 PM

Reply

09/17/2009 10:01 PM  Top
sleepySheri
sleepySheri  
Posts: 90
Member

my name is sheri and i am on of the group leaders here. i am not a doctor just another narcoleptic. i can answer questions based on my experiences. as far as herbal remedies go, i have not tried any. one of my doctors has mentioned inhibitor [replacement]. replacement is not the correct word, i am having trouble thinking of the correct word. she did a test on me to find out what inhibitors my brain was lacking and figured out a treatment plan. i have not done this yet as it is somewhat expensive. i will try to remember more and let u know. if u have any other questions feel free to ask. we are here to try to help based on our experiences.
Sheri aka sleepySheri...just another narcoleptic and cataplectic; NOT A DOCTOR

09/18/2009 08:23 AM  Top
MissStacey
MissStacey  
Posts: 14843
VIP Member
I'm an Advocate

I also have never tried anything with the herbs so I cant say much, Sheri was the test called an Evoked Potential? I have to have one for my diagnosis of MS but it sounds like something to do with what you are talking about. They hook it up to your brain and see how it is functioning. I havent had it yet but wondered if it was the same test.
I suffer from Rapid Progressive MS, Lupus, Fibromyalgia, Epilepsy, Migraines, Neuropathy, IBS, Narcolepsy, Arrythmia, Arthritis and too much more complete list on profile.

"Just because we have the right to disagree with a person, does NOT give us the right to disrespect that person."

I'm not currently active due to many personal and medical issues. I will not be participating in MDJ for awhile, my thoughts and prayers are with everyone. I hope everyone is well and I appreciate all of the thoughts, kind words and messages. I have tried to respond as much as possible and apologize if I have not gotten back to everyone. Love & Hugs, Stacey

Previous discussions I participated in:
Anyone there
Boy Interrupted
Skin issues and BP

09/18/2009 10:17 PM  Top
sleepySheri
sleepySheri  
Posts: 90
Member

stacy, i did have an eeg and went through biofeedback. for the inhibitor thing, they did a ua which can tell all the levels of things like dopamine and seratonin, etc. sheri
Sheri aka sleepySheri...just another narcoleptic and cataplectic; NOT A DOCTOR

09/19/2009 05:48 AM  Top
harley121
Posts: 2
New Member

Hello everyone, and thank you for all of the info and opinions. Since posting I have had time to do some research. I read that a hi-protein lunch helps (in some cases) some people not to have an episode. With that in mind, I have been keeping a list of what I eat every day,, I noticed that on the days that I had a tuna sub on a wheat roll I did NOT nod off a single time on those days.

As soon as I’ve taken the herbal supplement (CARNOFAX) for a week or two I’ll get back and post my results.

Take care ,,

Bob R

Reply

Share this discussion with your friends:
Members who viewed this page also read:

NarcolepsyNarcolepsy ForumsGeneral & SupportHerbal cures anyone??

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.
Contact Us | Bookmark Us | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | MDJ Advocates | Advertise
Copyright (c) 2006-2013 MDJunction.com All Rights Reserved