Myasthenia Gravis Support Group

My wife came back home last night worried about my condition. I am normally pretty unflappable (prayer and trust that God has a bigger plan help me with that, but my personality tends that way too). Yesterday I let something spiral my temper way out of control (I have six kids and even though they are adults they can still get me I guess). The result was to have instant voice loss. I went nasal and slurry all at the same time. It felt like I was trying to form words using a volleyball for a tongue..

I know it's impossible to avoid stress in our lives but with a disease like this we need to learn to control our stress. Usually the family helps me avoid those stresses. After yesterday my wife will probably give them a stern warning again (not that anybody will admit they did anything wrong) but I need their help to stay on even footing.

I recovered quickly last night but had that happened when my MG had already flared it's hard to imagine the consequences.

I guess I'm posting this to encourage you all to enlist the help of your family to control stress. It can have devastating effects on this disease.

And watch that heat. It can flare our symptoms too.

Thanks everybody for being such good friends

Sorry that had to happen babes. I have lost it (my temper) a few times as well and it is even more frustrating because you can't yell and get it out of your system. There is no way we can remove all stress from our lives. I hope your feeling better - I know the feeling - my kids are all grown but sometimes get to me. take care

Do kids ever grow up enough to be not stressful?

My son is dating an evil woman. Well maybe she's not evil, but I am afraid she may be.

And my beautiful 23 year old daughter came home from college sporting a mohawk.....

NO!!!! Just wait till your Irish Setter comes home from the field with a live ostrich and your cat is dating the neighborhood skunk! Talk about stress!!!!!

The kids in school have learned the MG walk from me and all the parents are calling the school board wanting to know what has happened at the school where I taught! lol

Talk about stress!!!

Ever gone to the grocery store, got out of your vehicle, gotten into one of those electric buggies , get 1/2 way thru shopping and the battery dies? You're stuck down one of the back isles where no one goes, You can't find a soul around to help, not even a customer! Talk about stress!!! Now your body decides IT needs to pee, right NOW!!! Great!!! TALK ABOUT STRESS!!!! WHERE ARE THE KIDS WHEN YOU NEED THEM? LOL OH NO! NOW YOU OXYGEN BOTTLE IS ALMOST ON EMPTY! YOU ARE GETTING NNNNNNERVOUS AND STRESSED OUT!YOU ARE HYPERVENTLIATING AND RATHER QUICKLY USING UP THE REMAING OXYGEN! You calm down just long enough (before you pass out) to use your cell phone to call 911 AND THE BLOOMIN' PHONE BATTERY IS DEAD TOO! TALK ABOUT TRESSSSSSSS!!!!!!!!! LOL

Whew! I will take the evil woman and the mohawk any day over that nightmare grocerystore vist!!!! lol

"KEEP LOOKING UP! God and I love YOu! Jeff

Post edited by: wornouteach, at: 07/15/2012 03:25 AM

Jeff, you cheered me up.

I too have had the child with the mowhawk, SHOCK.... the good news is its just hair, and you still have a beautiful daughter she just has a mowhawk. I was sent a picture ahead of time to ''prepare'' me for it which was thought full..LOL

The store story...Wow that is crazy stress . Did you know

stressed is desserts spelled back words so ....I think we all need more desserts to combat MG stress!

six children and MG..... in God we trust!