Myasthenia Gravis Support Group

Lately, my husband has been just confined at home. We are waiting for the appointment for the IVIG since his swallowing is getting very difficult particular times of the day, increased fatigue, which are very inconsistent, and he has some energy, not too much, even riding in the car is taxing. Does anyone else go through this too?

Thanks,

Margaret

Hi Margaret,

Every day! Every stinkin day! It's either one thing or another with this MG. The symptons are different with each person and by coming to this forum you will find many people that have or have had all the same experiences your husband is going through. Please read all the tips, hints, suggestions and find out what meds each takes, dosages & time placement of the medications, results from them and most of all if you do not have one, please find yourself a good neuro or a doc that specializes in MG and not just a PCP. Most PCP haven't a clue about MG and alot of the medical world in general hasn't a clue. Every single person on this forum is either having some of the same effects as your husband or has had them. Please remember by coming here..Your never alone

Good Luck

Best Wishes

Stay Well

Hoz

Been there, done that. Get in to see that MG specialist as soon as possible. If the breathing gets shallow you should consider the ER at whatever hospital the MG doc has privileges.

One other thing I found when I had swallowing problems is that most liquid nutritional products are milk based. Since increasing milk intake can increase mucous and such you might want to try to not overdo it with these. I got into some real trouble one night after I drank a milkshake, it was like I had ingested glue.

"...Every day! Every stinkin day! It's either one thing or another with this MG..."

Now there's an honest answer! I think I uttered those words on a daily basis for a very long time!

I've had MG almost 16 yrs. and never joined a group until now. It's so good to read that others have problems too. Yes, Canada, humor sure helps. I have one motto -- "Do what I can and rest when I have too." and one reply when things aren't so good -- "I've been better and I'll get better again." I chose MDJ because my husband is a recent bil. AK amputee and I could join both groups at one site. Thank you all for making my day brighter. I don't know why I never joined a group before, but it is already helpouing me take the focus off me and my current condition which helps my mood a lot.

Hugs to all of you. I look forward to getting to know you better. You are all in my prayers. Penny