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MGCanada Posts: 612
Member
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Arita, It's very difficult for me because I wasn't at your appointment. There are communication problems with many patients, and lack of understanding of the condition, and I would safely say, with some physicians as well. I would feel so much better if you could take someone with you to your neurology appointment to help check your understanding. I often suggest this. In that way, you and whomever, can go have a coffee and discuss what transpired. Who knows, Arita, there could be a slight language barrier? That said, I advocate for the patient, so I'm going to say that I don't know a doctor, who can predict that a new MG patient won't get any worse, or any better. It's nonsense. One can get worse, and one can most assuredly get better, under the proper care. Perhaps your doctor is trying not to scare you. I firmly believe that patients should have all the information--both good and bad scenarios--so that there are no surprises. My dearest father always said, "We can't worry about things we can't control." |
