It just occurred to me while I was messaging someone about heat and how it effects MG, that I should share a couple of things. These are things that I myself have to steer clear of or make sure are addressed....so take whatever applies to you.
1. Stay out of the heat. If you have to go out, take something ice cold to drink, or make sure the car is air conditioned....or the place you are going is air conditioned.
2.If you are in your 50's...check with your doctor to see if you are menopausal....hot flashes, mood swings and the inability to sleep. These things make the MG worse. HRT works for me.
3.Learn how to say no without the guilt. You know your body better than anyone else and what it can handle at any given moment.
4.Try to let go of unrealistic expectations that others place on you....the ones that don't understand how MG affects you on a daily basis. Surround yourself with those who do understand and you can freely ask for help.
5.If you think that your MG is getting the best of you emotionally, get some help. If you don't like counseling(and there are people who will do this for free or based on your income)......find a relaxation CD or tape to listen to on a daily basis. This along with taking deep breathes throughout the day will help you let go of stress.
6.Surround yourself with people and things that bring you joy each day.
7.Spend as much time as you can being still and quiet....and alone if possible.
8.Watch a funny movie at least once a week if not more often. The laughter eases up that lack of control over the disease.
9.Cry......schedule a good wailing if you need to. It will release the pain, sadness, frustration and loss. Do it as often as you need.
10.Continue to share your pain with others on here or through a support group. It helps to know that others "get it."
Hope some of these make a difference for you...they have for me.
Cindylee
Post edited by: cindylee, at: 12/17/2008 19:34
