Muscular Dystrophies Support Group

Hi. My name is Amanda and I'm 19. The guy that I would love to be with has DMD and he's 21. He wants to be with me so badly and I would love to be with him but I'm so afraid to. I'm very new to this and I just don't know what I should do.

I guess what I'm afraid of is something really bad happening to him. Like it getting worse. He does really good now. He can movie his hands and lift his arms a tiny bit.

Does anyone know what you think I should do. Or what Ishould expect for the future?

Hi there, Im responding to you because my husband has DMD. Its a hard disease to deal with but to be honest it takes out alooot of the bs that other relationships seem to have. in order for me to care for Ken well I have to be completly honest in how im feeling or whats on my mine. My husband is 40 (yaaayyy) and is in a power chair, has a trach and a feeding tube in his stomach. these are things that may happen to your guy. dont be afraid of it, you just have to decide oif you are in it for the long haul. how is his health right now? just because the doctors say that the life expectancy is early twenty DOSENT make it true! listen to what your heart is telling you. wether you do decide to be with him or you dont, make sure it is for the right reasone and not out of pity or anything. my husband dosent feel sorry for himself and dosent want anyone else to feel sorry for him either. im so proud of him. hope that helps.

live a day at a time and follow your heart. your decisions are the right ones if they are right for you. muscular dystrophies are progressive. sometimes if a decision is difficult- it can be better to not make one for a while. there is basic information out there. it might be helpful to just learn about it.