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trish51756 Posts: 4
New Member
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Hello, I am new to this support group. My name is trish and I was diag. with MS in mar. 2003, probable onset 1995 when I had optic neuritis. In 1997 i went on to have balance probs, chronic motion intolerence, positional vertigo, fatigue etc. It took many years to get a possitive diag. I had a possible late stage lyme disease possibility that I still question, but cant seem to get anywhere in that idea. I had several tests and were not poss. enough and they wont even try a treatment were i am without proof even though it is a clinical diag. But anyhoo I am in the MS world to stay as far as I know and I am getting a bit worse this year. I live in rural sw MN and am quite a ways away from any suport groups. My age is 51, married 30yrs, 3 grown sons 30, 29 & 25. 4 grandkids, Amy-8, Rian 5, Haley 5, & Hannah 16 months. I struggle with the fatigue which has since summer been worse due to anemia am on ferrous sulfate for it but the blood iron level still is 35 should be 50-150) I have never improved from the positional vertigo(I cant lay flat or on left side at all or I feel like I am falling in space gonna passout, I have to sleep on rt side propped up on several pillows to sleep, any tests like MRI I have to be sedated since 1998. My vision is not the best have had ON in both eyes, was in hosp 2x in July due to a colapse of sorts, had trouble breathing and went in hosp, found out I had a coupke infections, sinus & broncitis, anemia, low potassium and a few other things low in blood. I was put in for 3/days on IV anbx. ,breathing treatments, went home and was never getting better and had to go back in hosp towards the end of month again, couldnt even walk in was too weak. IV anbx againe 4/days this time breathing treatments, nebulizor at home as needed. Has been a long road back since July, still not to were I was. well anyhow I have motion intoernece since 1997 were it is hard to watch out a car window for the whole trip anywhere. At first it was scarey and I felt like i was on a fair ride. I quit driving for 6yrs, now the last few I have been able to drive 5mi to town and back home on a good day. I dont drive often. fatigue brings depressed feelings to me, after July it has ben worse I am afraid I will get that bad as I was again I guess and it scares me. I hope to get support from you all ad help you back also if I can. TC always care, trish
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"When I first came to MDJ, I was in need of peer support in dealing with issues of my childhood abuse. I was moving away from the painful issues and trying to find an uplifting group of people to help me transition to a thriver in my life. I found that here. I also found a group of peers with Fibromyalgia and found the same uplifting experience there. My computer crashed and it was a while before I found my way back, this time with issues related to Parkinson's Disease. I had tried a few other support sites before reminding myself of MDJ. On those, I never got a reply. I finally found my way back here and again found very supportive, caring and inspiring people who made me feel like I was 'back home'. Indeed I am." (ThereseML)
. But I getting used to it. I have to.