Multiple Sclerosis Support Group

Ouch....400. A lot of my friends with MS take anti-nausea meds for vertigo. Don't know if you can buy that as an over the counter med or not, though.

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Early in my dx I did have the vertigo (bad) and a ton of headaches. But it was when my MS was real active. Honestly for the headaches to go away, I had to get my MS to calm down. But I don't even get a headache once a year now. But early on, I would say I had one big long headache everyday for nearly two years straight.

I know a lot of my friends say you need to drink a lot of water. I know that won't fix you, but guess it couldn't hurt. The facial pain, is it like lightening strike spasms. If so that is called TN. I have found, nothing to help it....except neurotin...and that barely does it. Do you take neurotin? It does help with pain a lot. I now take lyrica instead of it...because neurotin causes too much weight gain and makes me too drowsy. Lyrica doesn't do that to me so it is a better med for me. But they basically are the same drug with just slight differences. You can get neurotin as a generic, so it is really cheap.

I have taen meclazine (sp) for the vertiogo......no go. My body feels like a big mess right now, my hands up my arms, legs feel like they are so tight, and killing me

I may call the neurologist tomorrow, and see if I can get in sooner. I seem to be in so much pain now. I am so afraid of having the attacks now. I am now to the point where I know to lay down when I feel like this, I lay down and spin :/

I get headaches, but I also get sinus ones too. Hmmmm what dont I have??????

Hopefully soon you will get relief. (((HUGS)))

Thanks Cindy.......I wish some others would have replied on this thread too....

Heidi I too just recently came to Md. Junc. because I wanted to get some more insight about the new meds I am on. and meet new people, I literally came not thinking anyone would send back. I think because some people are afraid to post, or maybe because it's not as popular...?

My husband got his LDN from skips in Florida also, we had a local pharmacy mix it once buy they wanted over $100 bucks where skips was like $36. He has been on all of the MS meds. Vertigo was worse in the early days then it is now, frankly marijuana is the only thing that touches the pain he feels 24/7 he can still stand and transfer but really can't walk more than a couple feet holding on, but he also has almst no feeling in his feet. He is now on Tysabari and loves it but it can mask an exaserbation his latest hospital visits have been for UTI's.

Thanks ladies Noni, did the vertigo just come on suddenly? Is there anything that he can take that makes it go away???? I am spasming so bad lately. It hurts so much. I am calling the neuro on monday because they were closed on friday to see if I can get in sooner. I know if I am diagnosed with this then that is something I will have to live with. I just need to know that I am not crazy... I drove to the store in town here yesterday, and I had to hurry up, and get home. I started to get the spasms in my leg and hands so I get scared it will happen when I am driving or out in public. This is just awful. I have heard that marijuana is wonderful for pain, it just makes me tired, and dizzy... I am there already! LOL......I am sorry to hear that your husband is not doing well.

This is a pretty small group on MDJ. So it will take a while to build. But I am really glad so many have come to post.

Noni, I have lots of friends on MJ. They love it for pain. It is illegal here. But marinol is legal. Have never tried it. But it is an option for those who are in states where MJ is illegal.