Multiple Sclerosis Support Group

I have been sick for a year and a half. I have had several doctors say it could be ms but no diagnosis. I have also considered lyme and tried treatment with no progress.

I would like to list my symptoms and hopefully those of you with ms could tell me if you think it sounds like ms to you.

It started with a sudden onset of a weird vibration all over my body, dizziness, swollen lymph nodes, and sore painful fingers, hands, and feet, tingling in hands and feet along with a flu like feeling, just feeling plain bad. bladder leakage also became an issue along with all my other symptoms.

As time went on I began having joint and muscle pain, weak and heaviness in arms and legs, pressure in head, twitching in legs, arms, face, and head, my body feels like it's being pulled tight sometimes. My vision is a bit blurry, I can't see as clearly as I used to. It's like images get stuck in my field of vision and take a long time to go away.

I may even be missing a few symptoms but what do you guys think? I can't get a diagnosis. Does this sound like MS?

A lot of the symptoms you describe sound like MS But some do not. How long does each symptoms last, typically.

Then, what I would do, is keep a journal of each and every symptom and change. Write doesn date and time is and when it stops.

I did this, because I couldn't keep track my symptoms were varied and changing. My MS was very bad in the beginning and came on quickly. Two weeks into horrible symptoms, my neuro took one look at my journal and said he was 95 percent sure I had MS not matter what the tests say. Tests can be in-conclusive, but not usually.

Hope you find answers soon. Clearly something is going on. Time will tell what it truly is. In the meantime, take care of yourself. Eat well, cut out junk, sugar, etc. Rest and live as healhty as you can right now. All of that will lessen what you are experiencing and making it all more bearable.

Basically if something makes you feel worse, don't do it. If it makes you feel better, do that. That has been my approach for the last eleven years and seems to be working. I am mild and MRI's look clear. But of course, everyone is different, even with MS. But all you can do is work to make yourself feel as well as you can.

Take care, and look forward to hearing how you are doing.

Post edited by: harpgirl, at: 03/22/2012 09:26 AM

Thanks for your reply Harpgirl. Most of my symptoms are everyday occurrences. I don't notice alot of change except some days my limbs ache more and some days I feel more fluish than others. The twitching, cold spots, aching, are all the time. It does seem like I feel a lot worse once a month (that time of month). Other than that symptoms don't seem to change much. Although the cold spots are relatively new, they began over the past few months.

Would you mind telling me what symptoms do sound like ms? Do all people with ms go through cycles of feeling well and unwell?

Well they all could be MS symptoms, except join pain....unless spaticity is causing that. But that I think would be doubtful.

My MS does get worse that time of the month. So inlight of that, it definitely sounds auto-immune.

Well for auto-immune anything, I would ask your dr for LDN. LDN is Low Dose Naltrexone. If you google it, you will find great info on it. If you decide to ask your dr about it, then let me know....because you have to have he/she prescribe it just right. A lot of drs know about Naltrexone, but now Low Dose Naltrexone.

MS can cycle, but also doesn't have to depending on the type. I have RRMS (relapsing-remitting.) But there is PPMS and SPMS (primary and secondary progressive MS.) The later, doesn't tend to cycle but rather is a constant progressing of getting worse (althought there can be plateau's of not progressing.) My symptoms wax and waine. Some stay constant, like pain and fatiuge. But sensory and/or muscle tend to go away.

You should have your vitamin D levels checked. People with auto-immune tend to be deficient in D.

I should mention that after dx my disease didn't stop attacking for a year and a half. So even though it looks like things won't go away, they very much could in time.

Hope that helps.

It is very difficult to get a good Lyme test done. I have known some people that had a dx of MS and pursued a Lyme dx by going through igenex. Some are getting better under a Lyme treatment vs MS. They still have their MS dx, too.

I do have friends that have been treated for CCSVI, and have received a ton of benefits as well.

Sometimes we have to be our biggest advocate. Getting better is a long road filled with a lot of trial and error.

I am new here but have both Lymes & MS & also have may lesions on my brain. My neuro says that why it took so long to get a diagnosis. I know I was bitten by a tck that left a huge whelp & bullseye rash approximately 6 years ago but now they think I have had MS for over 10 years due to ongoing symptoms.

So sorry Tammy. That is rough, Lyme and MS. Hope you are doing and feeling well.

I've got similar symptoms.

Some people have MS and Neuroborreliosis, so you might want to consider this route.

MS (multiple sclerosis) in a lot of cases is NOT a condition but just a symptom.

MS and Lyme both can generate brain lesion, I guess seeing an LLMD is the way to go about it and clarify things. They say that the brain lesions in MS are slightly different from the ones that occur in Neuro-Borreliosis.

MS is never just a symptom. It is a real dx, separate from Lyme.