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07/29/2009 07:26 AM

Tired of the pain

Tshelton
Posts: 1
New Member

I have been struggling with the pain of migraines for 12 years now. It's taken over my life. How do I make the doctors understand that I just want to be normal and function again? Any suggestions? It would be nice to talk to other people who have been where I am.
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07/29/2009 07:42 AM
Kat5150
Kat5150  
Posts: 699
Senior Member

Hi Tshelton. Welcome to our group. I'm sorry you are having such a difficult time and I can so relate to the battle with the doctors. It is really maddening to go to the doctor for help just to basically be ignored.

One thing you may need to consider is finding a neurologist. Usually they have a better understanding of migraines than a regular doctor. Also, you may be able to find a migraine specialist in your area.

As aggravating as it is, you will most likely have to shop around until you find the right doctor. A good doctor is hard to find, but well worth the effort once you locate one. If your doctor isn't helping you, it's time to find a new one.

I went to many doctors who would tell me that there were so many great new medications for migraines--and then refuse to give me any. They always wanted to put me on antidepressants instead. I was always willing to try if they thought it would help. But if they don't help, you have to try something else. The are so many medications and combinations of medications for migraines that it is impossible to try everything. A doctor who isn't willing to try other options when the current one isn't working is just lazy in my opinion.

Anyhow, you'll probably get other suggestions as well. If nothing else, you will get support. We all understand what you are going through. Hopefully you can find some comfort in that as you search for the right doctor and medications for you.

Take care and keep us posted on your progress. Smile


07/29/2009 10:23 AM
kardie
kardie  
Posts: 1601
VIP Member

Tshelton, welcome to our group. I'm sorry to hear of your migrains and the frustrations and pain that go with them, but I think we all here can relate in some way.

I don't know what you have tried to controle them but Nortriptyline worked for a preventative for a short time for me and I now am using Maxalt as soon as I feel the start of a migrain and it works awsome for me.

Good luck in your search for help with this. We have so many wonderfull people here that love to help and support.

Kardie


07/29/2009 01:33 PM
suziqueues
suziqueues  
Posts: 23
Member

Hi there! I cannot treat my migraines with "typical" migraine medications, so I've had a lot of creative doctors. More bad experiences than good ones. I thought I had a great pain management/migraine/neurologist that I'd been seeing for years and had my migraines under control until I got pregnant, my hormones caused my migraines to go haywire and he refused to treat a pregnant patient. Basically, suit up to go to battle for yourself. Never settle for someone telling you that you are something or "should be" doing something, eating something that you know is wrong - trust your gut. Ask questions - especially to people who have or are going through the same stuff you're going through. I'm on something called Suboxone that most doctors here in the US use for people with addiction issues, but my doctors (who took me YEARS of pain to find) found literature that those crazy Europeans take it for chronic pain. It does help me quite a bit as I have daily headache and a migraine at least once per week and they generally last 72 hours. You are normal. Normal people have pain. Abnormal people don't understand this and try to bring you to their level of idiocracy and insensitivity.

07/29/2009 05:47 PM
WendyLou
WendyLou  
Posts: 380
Member

Hi suziqueues - Do you have a daily headache each day on top of the migraines? I'm a daily headache suffer (more so than migraine) and would love to learn more about the med you mentioned. I've never heard of it before. Have you had any side effects with it? Did your daily headache just appear out of the blue one day or was it a progressive worsening until it was just appearing every day? Thanks!

07/30/2009 10:53 AM
suziqueues
suziqueues  
Posts: 23
Member

WendyLou, yes I have daily headache on top of the migraines. The medication I mentioned is a narcotic but they manufacture it as to not become dependenant on it. I know it is still a controlled substance, though. It made me a bit sleepy at first, but I have no side effects from it now (other than it tastes bad and it's one of those meds that you have to let dissolve in your mouth). Again, here in the US it is mainly prescribed for people who are addicted to narcotics - I guess to help them get off or something - I really don't know, but in Europe they are using it for controlling pain and it is starting to catch on here. My neurologist writes me the script since it is for pain management. If it is written for addiction, the doc has to have a special license to write it (strange). I do have to take Norco and Percocet for my bad migraines still, but the Suboxone does a good job of ridding me of the daily headaches and keeping down the total number of migraine incidents.

My doc in Austin is super cool and was willing to try ANYTHING for my pain since - as the hospital put it during my pregnancy - I was that "one" case per year that they just didn't know how to handle & it sucked - because of the intense pain; I had some killer nurses - the best were the ones who suffer from migraines themselves because they understood like no one else can. My daily headaches came with my pregnancy and never (well, not to this day anyway and my daughter's almost 3) went away. Anywho... if you need more info, go to ePocrates.com, which is the best source on meds - it's what the docs use.

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