Migraine Headaches Support Group

I have suffered Migraines for the last 20 years. I am unusal by being male.

I have been thru all the test and neurogulst sp? they said I inherated it from my grandmother and mother and some day may outgrow it.

I have a migraine each and every day. I can probably count on one hand in the last 20 years of headache free days.

They seem to be worse the last few months.

got a new doc and she is just out of school. So she is new and is afraid to prescribe the meds I was on at the rate I was getting them.

So now atleast 5-7 days in the bed with head covered up and hurting.

thats me

daleg

While you're here, please feel free to browse the other threads as well. You may find some ideas that will help. And of course, feel free to post where ever you'd like so we can get to know you better.

Welcome!

Did your migraines get progressively more frequent over the years or did they just begin one day and become almost daily immediately? I'm asking b/c I was diagnosed with intractable migraine originally but more recently received a NDPH diagnosis. Seems the two often are diagnosed interchangably. The difference, as I understand it, is that intractable or chronic daily migraine gets more frequent over a long period of time versus NDPH the headaches appear one day and recur (or just never end) after that.

Wendy

My migraines are similar to yours. I have started to relaspe. I'm going to the doctor on Thursday. Hang in there. Be blessed.

The migraines have been pretty well each and every day for the last 20 years. No they havent gotten worse as time has gone on.

If they did... I dont know what I would do.

I can function with them for the most part. Some days they make me sick, And have to spend most or alteast a few hours in bed with my head covered.

Yep Kat5150 i found it ok.. Got a name close to the one on HSToday.

I found the Amputee forum which i am one. or have one

But thought if anyone had a question on it maybe I could help. Ive had my leg off since 1969 so ive had many legs and alot of experience with it.

One amazing thing is you never lose the feeling of the limb that is gone.

daleg

I'm happy you were able to find another group here at MD Junction as well. There are so many great groups here. And all the people are just terrific. It helps to have people who understand what you're dealing with and it's nice to be able to offer support to others as well.

pain. yes it is called fantom pains. Your toe will hurt or some part will.

What is worse for me is when a part of that foot will itch. Pain is one thing but when you cant scratch an itch it is awful.

I found that tapping on my artificial leg help by sending vibrations to the stump.

Going to see my doc Friday to get a prescription for a new leg

dale

Very interesting that you can feel pain. It would be interesting to see the brain during a phantom pain in comparison to a pain in a limb you still have. I wonder if it is perceived the same way. (Sorry. I'm a geek. I wonder about strange things. Science fascinates me. )

So when the nerve is cut it still the nerve for the toe.

I told you about Fantom pains. What it is is your brain sends down a message "are you still there" then the fantom pain comes.."NO"

Like I mentioned I was 12 and when the operation was over I thought they had just took a hammer to my foot. It hurt. I wouldnt look down for a few days.

Then there are other things that us new amputees do. One is we either dont cover it with a blanket at night or we wont uncover it.

I slept for 2 years without it ever having covers on it.

But i should make it clear we lived in San Diego Ca back then..

Now in Missouri it would be tooo cold in the winter.

dale