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Migraine ForumsIntroductions & Personal StoriesI'm new at this, but an old timer with migraine
04/07/2012 04:26 PM
ColleenFay
Posts: 2
New Member

I'm a 67-year old woman who has had migraines since she was a young teenager. For several years they were (thankfully) few and far between, but for the last 19 years migraines are a near daily occurrence. Mine last anywhere from 30 hours to four days. Pain ranges from 5-8 1/2 on a scale of ten. Mine are accompanied by all the sensitivities: light, sound, smell, taste and touch + nausea and/or vomiting. I average about five or more migraines per month.

Treatments? If it's out there, I've tried it: at last count it was something like 13 different medications: anti-depressants, anti-epileptics, triptans (Imitrex and Maxalt), DHE, and now a balance (if I can call it that) with Fioricet w/codeine and Dilaudid 4mg. I do not use them together; the Fioricet is for the medium bad ones and the Dilaudid for truly terrible. The worst mean a trip to the ER and Dilaudid 2mg IV or Morphine. I'm on every-other-month Botox injections as well. Also I use acupuncture that has been somewhat helpful, also cranial-sacral therapy. Good ol' psychotherapy is helpful too and above all prayer and meditation.

I'm looking to talk to people who've been dealing with migraine or have it themselves. Comments, thoughts, ideas & suggestions are always welcome.

Reply

04/08/2012 06:27 PM  Top
SSLMD
Posts: 928
Member

Check out an item under the articles tab titled something like "A list of treatments for migraine." It is actually a list of preventive measures, probably including some you have not hit yet.

There are also some treatments found on internet forums that are not likely to be familiar to neurologists--sniffing cayenne pepper for example. (That sounds scary to me, but there is a spray with a dilute solution of capsaicin that is quite tolerable. I'm not sure of the brand name--it might be something like sinus buster.

Post edited by: SSLMD, at: 04/08/2012 06:28 PM


04/08/2012 07:53 PM  Top
ColleenFay
Posts: 2
New Member

Thanks so much for this. I will take your advice. I know that there are no "magic bullets," but I believe that I will get relief. Sooner would be better than later, but we have to hang in there.

Again, many thanks,

Colleen


04/09/2012 08:09 AM  Top
jenny1978
jenny1978
 
Posts: 2564
VIP Member

I have hemiplegic migraines, therefore I can't take any of the triptans because it will make mine worse. I'm still lokking for a specialist and I am going to see how long it will take me to get into UAB. I have migraines at least 5 days a week if not more.
Diagnosed Bipolar 2005(FOUND OUT IN 2012 THAT I WAS MISDIAGNOSED),Recovering Addict,ADHD,
Anxiety Disorder, EBV, fibromyalgia, sporadic hemiplegic migraines, chronic fatigue syndrome

I am not a doctor. I give advice about things, but you should never take my advice over that you would get from your doctor. My advice is just what I have learned from my life experiences and is just my opinion.

"Regardless of who you are or what you have been, you can be what you want to be." ~W. Clement Stone

"In our daily lives, we must see that it is not happiness that makes us grateful, but the gratefulness that makes us happy." ~Albert Clarke

"Believe in yourself and there will come a day when others have no choice but to believe with you." ~Cynthia Kersey

"Mary had a little lamb, she put it to the heater, but every time it turned around, it burned it's little peter."

04/09/2012 10:31 AM  Top
SSLMD
Posts: 928
Member

Calcium channel blockers are specific preventive measures for at least one type of hemiplegic migraine. They are quite different from the triptans. They are normally used for blood pressure control, but are useful for a few other things as well. Your family physician could prescribe verapamil as a trial; if it works, keep it up and forget about a specialist.
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