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Meniere's ForumsLounge - Off topic discussionsNewbie needs help, just diagnosed
10/02/2011 07:57 PM
diagnosed
 
Posts: 5
New Member

Hi,

Just diagnosed by an E.R. room doctor. Had all the classic signs, he said: sudden onset of deafness in one ear, feeling of fullness in hear, and roaring, ringing, tintinitis. I thought it was due to tmj or something, but the complete loss of hearing was so sudden that I went to the E.R. The tmj and a moderate amount of tintinitus has been going on for some time, and I wonder if I had previously been blown off by doctors who didn't look further. I have had severe ear pain for years and they said it was just tmj. ER doctor said tmj can make symptoms worse, but the sudden onset of deafness and the roaring tintintius, etc, and some dizziness were classic signs.

Will go to primary care physician tomorrow, but have been wondering what will happen next. I still have complete deafness in one ear (sudden onset yesterday evening) and see that Meniere's Disease can have many different causes. Is that right? What tests will the doctor order and will I be deaf in one ear forever? How do they find out if it is a fluid problem in the ear canal or could there be a bone disease involved? Also, the Antivert just makes me sleepy. With the fullness in the affected ear, I would think I need an decongestant. Thank you for any feedback.

Just diagnosed.

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10/03/2011 02:24 PM  Top
Greytabby
Greytabby  
Posts: 2740
VIP Member
I'm an Advocate

hey..diagnosed...welcome...it is hard to say about the deafness...mine came back...although at a 30 or so % hearing loss...the tintinitis is non stop but i have gotten use to it...the dizziness varies... right now it isnt bad... also my vision blures and doubles at times... i know menieres can cause those 3 little bones to vibrate...i dont know about a bone disease... below is an article that may help...

kat

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How Meniere's Disease is Diagnosed

Because the exact cause of Meniere's Disease is still unknown, it is really important to get a correct diagnosis. To arrive at a firm and supportive diagnosis and in order to rule out other problems, a very detailed history and physical examination will be required. Several tests using technology will also be ordered. Most than likely you will be sent to one or more specialists: an otolaryngologist (ear nose and throat) or a neurologist (brain). The eyes, ears, and brain are in close proximity.

The fluid-filled semicircular canals of the inner ear, plus the 8th cranial nerve, control balance and our sense of position. Meniere's Disease involves a swelling of the part of that canal that controls the filtration and excretion of the fluid in the inner ear.

Each individual's case must be checked against the possible cause of middle ear infections, otitis media, syphilis, or head injury. Other risk factors include recent a viral illness, respiratory infection, stress, fatigue, use of prescription or nonprescription drugs including aspirin, and a history of allergies, smoking, and alcohol use.

Please remember that the body wants to be in harmony: with all systems working together to create balance.

The diagnostic tests will include MRI, EEG, AudiometryTests (Hearing) including Electronystagmography, Transtympanic electrocochleography (ECOG)

For more description and an excellent overview, please go to

American Academy of Otolaryngology - Head and Neck Surgery

Detailed History

In your details, you will need to describe what happens when you have an attack. It really helps to have this written down. Better still, give the doctor a copy of your description.

He will need a history of the frequency, duration, severity, and character of your attacks, the duration of hearing loss and whether it has been changing.

You will be asked if you have any history of:

•diabetes, high blood pressure, high blood cholesterol, thyroid, neurologic or emotional disorders.

•tinnitus or fullness in either or both ears

•syphilis, mumps, or other serious infections in the past, inflammations of the eye,

•auto-immune disorders or allergy, or

•ear surgery in the past.

A physical examination of the ears and other structures of the head and neck will be done, but these findings are usually normal, except during an attack.

Several other tests will be done. They include:

Magnetic Resonance Imaging "MRI"

This will be one of the first as it simply rules out any abnormal physical conditions in your head.

It provides detailed pictures of brain and nerve tissues from multiple planes without obstruction by overlying bone.

What will this test tell you?

MRI is the procedure of choice for most brain disorders because it can clearly show various types of nerve tissue. It provides clear pictures. It is noninvasive and can evaluate blood flow and the flow of cerebrospinal fluid (CSF). An MRI can distinguish tumors or other lesions from normal tissues. MRI is sometimes used to avoid the dangers of repeated exposure to radiation

How the test is performed

The MRI scanner is in an area that has been shielded from outside magnetic fields. You lie on a narrow table that can slide inside a large tunnel-like tube within the scanner. The scanner creates a magnetic field around you, then directs radio waves at the tissues in question. Several sets of images are usually required, each taking from 2 to 15 minutes. The complete scan takes about 1 hour; some scans take more than 90 minutes. This test will not cause any discomfort.

Electroencephalogram "EEG"

What will this test tell you?

It helps to diagnose the presence and type of seizure disorders, confusion, head injuries, brain tumors, infections, degenerative diseases, and metabolic disturbances that all could affect the brain. Incidentally the procedure cannot be used to "read the mind," measure intelligence, or diagnose mental illness.

How the test is performed.

It will be done by an specially-trained technician in a room designed for this purpose only. It may be in an office or in a hospital setting. You will be asked to lie on your back on the table or to sit in a reclining chair. Many flat metal discs (electrodes) will be placed in different positions on your scalp. (They are held in place with a sticky paste.) These electrodes are connected by wires to an amplifier and a recording machine. The recording machine converts the electrical signals into a series of wavy lines. (Like an ECG.) These are then shown on a monitor and can be printed out. Because any movement can alter the results, you will need to lie very still with your eyes closed. You may be asked to do certain things during the recording, such as breathe deeply and rapidly for several minutes or look at a very bright flickering light. (It will be OK to move during these requests.) This test is without discomfort.

Hearing Tests: Audiometry/Audiology

What will this test tell you?

These measure hearing ability. There are several different ones. Each is done for a specific purpose.

An audiometric examination typically indicates a sensory type of hearing loss in the affected ear. With Meniere's Disease the ability to distinguish "sit" and "fit" is often diminished in the affected ear. (Speech discrimination)

Audiometry is particularly helpful in making the diagnosis of Ménières syndrome. This can determine and measure low frequency or mixed low and high frequency, "Pike's Peak" pattern. When trying to make a diagnosis of Ménières, iIt is very helpful to have precise documentation of fluctuating hearing loss.

How the test is performed

Audiography

provides a more precise measurement of hearing. Air conduction is tested by having you wear earphones attached to the audiometer. Pure tones of controlled intensity are delivered, usually to one ear at a time. You are asked to indicate (by raising a hand, pressing a button, or other means) when they hear a sound, and the minimum intensity (volume) required to hear each tone is graphed. An attachment is placed against the bone behind each ear to test bone conduction.

Transtympanic electrocochleography (ECOG)

http://www.bme.jhu.edu/labs/chb/disorders/menieres.html

This can show evidence for cochlear involvement. It may indicate increased inner ear fluid pressure in some cases of Meniere's disease.

Electronystagmography "ENG"

This test may be performed to evaluate balance function.

Caloric Stimulation

Why is the test done

Caloric stimulation is performed to evaluate the acoustic nerve, which provides hearing and helps with balance. This test may be recommended when the person is experiencing dizziness or vertigo, when there is impaired hearing, with suspected toxicity from certain antibiotics, with some anemia, when psychological causes of vertigo are suspected.

How the test is performed

Each ear is tested separately. One teaspoon of cold water is gently instilled in the ear canal with a bulb syringe. This should cause nystagmus (quick movement of both eyes away from the direction of ice water and then slowly back). If it does not cause nystagmus, 2 teaspoons of cold water are instilled in the ear canal. If nystagmus still fails to occur, 4 and then 8 teaspoons of cold water are used.

At times, hot water may be used in addition to cold water. The nystagmus should occur in the opposite direction (toward the hot water then slowly away). Use of both cold water and hot water makes the test more accurate.

For more in-depth information on these critical tests please visit:

Diagnostic Tests For Meniere's Disease Symptoms

This is an in depth article on the types of testing done to look for and diagnose Meniere's Disease. This should help you understand interpret Meniere's Disease testing, your body and its functions. If you have a medical problem, please seek appropriate advice.

American Academy of Otolaryngology - Head and Neck Surgery

My friends call me Kat... As a group leader my goal is to lend a shoulder and a hand of friendship... as well as get the same support from some of you... It is not however to give medical advice... I am not a medical professional... and so I cannot play the roll of one... Thanks...

KAT

10/03/2011 03:50 PM  Top
dizzylicho
 
Posts: 542
Group Leader

Welcome and I hope you're feeling much better. My advice to you is to follow a low-salt, low-sugar , no processed foods, no caffeine and alcohol diet. You should see an ENT or neurotologist whichever one knows how to treat Meniere's and has experience treating this condition. There's also a theory that MD is caused by a virus and some doctors prescribe Acyclovir or Valtrex. Taking vitamins is also very helpful please click on the following links for more information about vitamins/supplements: http://www.menieres-disease.ca/karin_david.htm, www.menieresfoundation.org/johnsregimen.htm

Please see Dr's information below:

And Dr. Richard Gacek in Worcester, MA

UMass Memorial Medical Center

University Campus

55 Lake Avenue North, HA-221

Worcester, MA 01655

508-856-4162

Dr. Richard Gacek in Mobile, AL

2880 Dauphin Street

Mobile, AL 36606

Phone: (251) 473-1900

Please note that I am not 100% convinced that MD is caused by a virus and this is only suggestion. Also, I definitely believe in taking vitamins so may want to do some research about it before you make your decision.

All my best,

Licho

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