Meniere's Disease Support Group

Hi Leslie,

Thanks for the information. All my best for a prompt recovery and feeling back to yourself again soon! All my love. (Isaiah 25:8 and Revelations 21:3-4)

dizzy and all...

i did the Meniett device. it did not work for me, but hopefully it does for you!

good luck...

Minett didn't work for me either and bi-lateral shunts not working either. So far nothing has helped me. I hope things help others.

Hi Leslie, Sorry to hear you are having problems. I have had some days similar to that and it always seemed to be when my allergies were acting up. It is disconcerting. I hope that you get some answers soon and start feeling better.

Loree in Phoenix

All the best to you and hope that someday the medical field will discover better ways to deal with this condition..

Dizzy Licho

Many people with MD find relief after endolymphatic sac surgery. I had mine Nov. 1 of 2010. Unfortunately in my case, it did not control the attacks. I went on to have 2 gentamycin shots a week apart in April this year, as I had very little residual hearing in the MD ear anyway. So far, so good, for 5 weeks now and I am very hopeful this will be my answer. Everyone is different and I wish you all well as we search for a spin-free life!

hey laura,

i am new to this group. i was diagnosed in march of this yr with bilateral md. when u were first diagnosed 5 years ago, what were ur symptoms that lead u to the dr to get things checked out? i know this is not feedback from ur original post but wanted to say hello and learn as much as i can about md and what i will experience as this is a scary thing to have.

teresa

Teresa, this group has a lot of good information and you can also find a lot of very good information on Facebook with a couple of pages - one is Living with Meniere's Disease and another is Meniere's Disease. VEDA also has a facebook page. There is also an excellent book that you can get at the library or the VEDA website "Meniere's Disease—What You Need to Know". It is well worth the $20.00 investment not only for you but to share with your family and friends.

Loree in Phoenix

Hi Teresa,

Find yourself a very good neuro otologist in your area because this is a vital step in the process. Laura's suggestion is excellent. Also, taking essential vitamins are very helpful for MM.

My best to you and good luck.

Licho (Dizzy)

Just a quick note. Had shunt surgery four days ago. Surgery went well, and was up and about in a few hours. I am still a bit tired from the surgery and anesthesia, but getting s little stronger every day. I stopped the pain meds after two days, and just use a bit of Tylenol. I started driving again yesterday. While expecting to have post surgery episodes, I have not had any nausea, and very little dizziness - mostly when I get tired. I will not know if it worked for a few weeks - I could be in a normal remission.

I will keep the group up to date.