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njspingirl  Posts: 2
New Member
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Hi jritchie, I have noticed a difference already. I had 3 good days last week. When I say "good days"..I mean 3 days of SPIN FREE and was able to do whatever I wanted to do. I felt like a new person. I did just have another injection on monday. Its a very cloudy day and storms brewing..so I do feel alittle off balance. But overall,, im praying this works for me. I do understand that its possible that in a year or two..injections will have to be repeated. And, maybe not! The injections are not painful..despite what the all the websites say (and trust me, i read alot ) lol However,,I had a VNS done 11 years ago. Recovery from that is tough and its only performed if the menieres is UNILATERAL. The vertigo you feel after the VNS is very severe. It takes time to walk again without spinning until the other side learns to compensate. With that said.. the injections are not affecting me like it would for someone who has never had anything done like the VNS. A normal person getting these type of injection would not react like I have. Because my balance system has already compensated for the loss on my left side. If you decide on the injections..beware that spins will be pretty bad until you compensate. I would recommend it..it a heartbeat!!! I take no medications for the dizzines. I do have anxiety from all of this , so I take xanex on a daily basis. Meclizine, valium and water pills were bad for me. So no meds!! As far as how many injections I will need..depends on how many good days I get after each one. The doctor is giving me low doses of gentamicin. Lower doses given on a weekly basis is suppose to be the best..that way they can control how much it affects the hearing nerve. So far it has not affected mine. (knocking wood) I also had NO hearing loss after the VNS. Feel free to email me anytime.  Will keep u updated and u can keep me updated . njspingirl@aol.com |
