Hi! I have just been diagnosed with orofacial granulomatosis OFG - aka MRS- v uncommon auto immune disease which they think is dietary related & have been placed on a cinnamon & benzoate free diet which I'm really struggling with. I am having further allergy tests soon & a colonoscopy to see whether I have underlying crohns disease. I was wondering if anybody has this condition that does have or not have crohns? Anyone else on this diet & know what foods make it worse or better? My whole face is swollen, lips & cheeks especially but the diet is definately helping. It feels my face doesn't belong to me & I have pins & needles sensation all the time. thinking steroid injections in my face might be next step  Be great to talk to someone who knows how I'm feeling! Thanks  |
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