|
|
|
jenny1978 Posts: 2564
VIP Member
|
I'm new to this group. I want to advocate for bipolar disorder, adhd, anxiety and recovering addicts. Glad to be here! Diagnosed Bipolar 2005(FOUND OUT IN 2012 THAT I WAS MISDIAGNOSED),Recovering Addict,ADHD,
Anxiety Disorder, EBV, fibromyalgia, sporadic hemiplegic migraines, chronic fatigue syndrome
I am not a doctor. I give advice about things, but you should never take my advice over that you would get from your doctor. My advice is just what I have learned from my life experiences and is just my opinion.
"Regardless of who you are or what you have been, you can be what you want to be." ~W. Clement Stone
"In our daily lives, we must see that it is not happiness that makes us grateful, but the gratefulness that makes us happy." ~Albert Clarke
"Believe in yourself and there will come a day when others have no choice but to believe with you." ~Cynthia Kersey
"Mary had a little lamb, she put it to the heater, but every time it turned around, it burned it's little peter."
|
|
Reply |
|
|
|
Pixie1960 Posts: 1743
Group Leader
|
Hi Jenny, I just joined this group about a month ago and saw your post dated from way back when. MDJ is a wonderful place and I hope that you have become the advocate you wanted to be. If not...well it's not too late! How's everything going? Hugs, Kathleen I am not a DOCTOR! You should consult a physician in all matters relating to your health, particularly in respect to any symptoms that may require medical attention. If you have a medical emergency please contact your doctor, go to your local emergency room or call 911.
I am not a LAWYER. The information that I share is from personal experiences and is to be considered as friendly advice only.
Hypothyroidism, hypertension, bi-polar II, Diabetes II, fibromyalgia and Parkinson's disease as well as IBS.
Group Leader for Diabetes II and Irritable Bowel Syndrome group.
Life doesn't have to be perfect to be wonderful! |
|
|
|
|
|
Rosiemckvr Posts: 228
Member
|
Hi guys, I'm so new to this it's not even funny but would appreciate any pointers in running a group or putting one together that you can give.  Right now I have 9 & have trouble getting them to participate??? It can be frustrating! I'm slowly making progress by making friends with them through e-mail as suggested in Roy's advocacy e-mail/tips & have been posting/advocating for MDJ everywhere I can think of. Did I miss something or do something wrong??? (with MDJ less than 2 mos.) Thanx for all the help. Rosie (Newbie in Epilepsy/VNS group) |
|
|
|
|
|
Pixie1960 Posts: 1743
Group Leader
|
Dear Rosie, I'm not familiar with your area but, no dear, I don't believe you're doing anything wrong. People in general are 'hesitate' when it comes to new things. Take a break and think about what have you already done. Make a list of what you've already done and what you can do. Make a list of all the places you have put up signs already then make a list of places you haven't such as hospital bulletin boards, library, post office,doctor's offices, lawyer's offices, local fast food places. Schools and the list could go on. PLEASE PLEASE P:EASE be certain to get permission before posting any signs. Those of us in the Parkinson forum all got together and designed a tee shirt with the MDJ logo on it. You can have a tee shirt made up and wear it. Don't give up, Rosie. You're doing a terrific job. Keep us posted okay? Hugs, Kathleen PS WELCOME TO THE GROUP!!! Post edited by: Pixie1960, at: 09/18/2011 04:02 AM I am not a DOCTOR! You should consult a physician in all matters relating to your health, particularly in respect to any symptoms that may require medical attention. If you have a medical emergency please contact your doctor, go to your local emergency room or call 911.
I am not a LAWYER. The information that I share is from personal experiences and is to be considered as friendly advice only.
Hypothyroidism, hypertension, bi-polar II, Diabetes II, fibromyalgia and Parkinson's disease as well as IBS.
Group Leader for Diabetes II and Irritable Bowel Syndrome group.
Life doesn't have to be perfect to be wonderful! |
|
|
|
|
|
Rosiemckvr Posts: 228
Member
|
Kathleen, Sorry it's been so long, I got knocked over by a sinus infection. ugh! Thanx for the ideas & big welcom. I never thought about a t-shirt/sweatshirt. LOL I'll hit my Laundrymat, Doctor's, etc. soon. Thanx. The VNS (Vagal Nerve Stimulator) is a pacemaker put in that sends electric (small amounts) up to the brain 3 secs out of every min. to control seizures in Epilepsy. Then you can wear/carry a magnet on you & if you feel a seizure coming, hold the magnet over the pacemaker for 3-4 secs. & it sends up an extra charge to stop the seizure. It's fairly new in the USA. So, I won't give up I just feel like it at times. lol I will get the sweatshirt this week-end though. Thanx so much. Hugs, Rosie |
|
|
|
|
|
Pixie1960 Posts: 1743
Group Leader
|
Dear Rosie, Sorry that you've been sick. I know what you're talking about now...my youngest brother's girlfriend has one. How's the group thing coming along? Since you are doing so much to help spread the word about MDJ, have you joined the advocacy group? I',m the group leader for that group and the members on that forum have a lot of info to share. Best of luck with your group. Keep us posted. Hugs, Kathleen I am not a DOCTOR! You should consult a physician in all matters relating to your health, particularly in respect to any symptoms that may require medical attention. If you have a medical emergency please contact your doctor, go to your local emergency room or call 911.
I am not a LAWYER. The information that I share is from personal experiences and is to be considered as friendly advice only.
Hypothyroidism, hypertension, bi-polar II, Diabetes II, fibromyalgia and Parkinson's disease as well as IBS.
Group Leader for Diabetes II and Irritable Bowel Syndrome group.
Life doesn't have to be perfect to be wonderful! |
|
Reply |
|
