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Marfan Syndrome Support Group
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04/21/2008 11:13
Tuffy
Posts: 233
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Hello...I just joined this group and look forward to making friends here. Marfan's has affected me most in the skeletal regions. I belong to the Nation Marfan Foundation (NMF) and just got an email which I thought I would share with all of you. If you are not a member with NMF and don't go to their yearly conferences, you are missing out on a good thing. I'll close here with a cc of the email details I received today.

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National Marfan Foundation

Check out the newly updated NMF Teen Web Page featuring:

* Teen Spotlight: Michelle Smith, Miss Teen Maine

* Updates on the HeARTworks Gala, the 2008 Annual Conference, and the Atenolol vs. Losartan Clinical Trial

* New support and medical questions and answers

* Hot new fashion tips

* An interview with NMF President and CEO, Carolyn Levering

To view the Teen Web Page go to www.marfan.org and click on the Teen Web Page icon on the homepage. [u]

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