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"CHF" (Soonergal81)

MDJunction to me

cinderella"MDJunction to me is a life saver... when i first was diagnosed with Scheuermann's Disease i wrote a message to a page i found on google, hoping that they could help me.... you'd never know it but that weird feeling (you know that one where it feels like someone actually cares) came over me when i opened my email next day to find that someone on the other side of the world (at the American Medical Library)had read my message while i was sleeping, and there low and behold was the address to MDJunction.... well it is everything to me, i live it breathe it and love it!!!!! I have found many people who are struggling with similar issues banding together to help each other. It is the best place in the world, and i couldn't think of another place to go to meet so many lovely people....

thanks MDJunction
" (cinderella)

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Marfan ForumsIntroductions & Personal Storiesconnective tissue disease?
06/24/2009 01:17 PM
Katiestar
Katiestar
 
Posts: 5
Member

Hi I'm Katie, I have just been diagnosed today with a connective tissue disease, the genetics doctor said i have a connective tissue disease but i have to wait till i have heart and eye tests before they can say if its marfan syndrome,I can find loads of info on line about marfan but not so much on connective tissue disease and I'm really worried because i don't know anything about it, Does anyone know of a good sight on connective tissue disease, Thank you, Katie.
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07/22/2009 06:06 AM  Top
P0lly
P0llyPosts: 26
Member

Hi Katie

This site Click Here deals with Marfan Syndrome and a variety of other CTD's There are a lot of people on there with various health problems and CTD that I am sure will be able to answer any questions

Polly Smile

www.marfan-forum.org.uk
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Health Topics: Connective Tissue, Genetics, Marfan
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