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Marfan Syndrome Support Group
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11/21/2007 02:49
roy
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Posts: 2809
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The Marfan Syndrome Support Group is full of ways to interact and share your knowledge and experience. It's your chance to be around people who are dealing with the same issues as you do and understand you best.

The Marfan Syndrome Support Group has 3 main discussion topics. You can explore them by clicking the link on the left. As this group just started we'll need people to jump start it and make it as productive as other groups on this site are. To get an idea you can visit the Lyme group or the Fibromyalgia one.

It's important to keep an open mind to different opinions and points of view, different things work for different people. Remember! This group is all about people helping people and it’s not in any way a replacement for medical diagnosis and treatment.

You should wear a ribbon and tell people why, write a diary and most important – hug people. A hug is probably the best cure for anything

And much much more…

For more information see our Group Guidelines.

Please contact me regarding anything you want

We really want this group to blossom.

roy

first they ignore you
then they laugh at you
then they fight you
then you win.
- Ghandi
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11/23/2008 20:46
Brenden
Posts: 5
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Dear Roy, My son has been desperately waiting for someone,anyone to reply to him..how else can we get someone to respond?? "PLEASE" let us know......does he need his own e-mail address??Are we sending it to the wrong site? Any suggestions greatly appreciated...
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