I am probably one of the worst cases of Marfan Syndrome out here. But I don't ever dare down play the seriousness of anyone elses battles. I have had a total of 11 anureysm repairs. I lost my ability to walk for 2 months due to muscle deterioration in the bases of my feet, because of all of the surgeries I now have lumps of scar tissue in my abdomen and rib areas, and...

put it like this, I am a hot mess.

Marfans runs through my family strongly. I have two sons with Marfans. I struggle everyday when they come home and want to participate in activities and can't. My son who was 10 at the time told me that he wished I killed him before he came out of my stomach. He has alot of skeletal issues, wears braces, and has terrible eye sight and horrible coordination. My youngest son is very intellectual so right now at the age of 9, he likes finding things he can relate to when it comes to Marfans.

I found this site while connecting with others over in the Bipolar Families Group. Like I said earlier, my family suffers from Marfans. Sister, Father, Grandfather, numerous cousins-but nobody understands the pain I feel. It has truly made my day to find you all. I am so looking forward to making some connections. I look forward to pouring out my guts to people who understand, as well as being able to help other families. Before I recently started going through my family issues here at home, What I wanted to do was use my experiences to help other families.

Thanks again for having a place for me to go!