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Marcus Gunn Jaw Winking Syndrome Support Group
A community of patients, family members and friends dedicated to dealing with Marcus Gunn Jaw Winking Syndrome, together.
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Trigemino-oculomotor Synkineses ForumsGeneral & SupportHi i'm new and want you to view
11/25/2009 07:01 PM
Gazi
GaziPosts: 3
New Member

Hi ,, how r u every one? .

My name is Gazi, u would not believe me if i told u that i just know there is people like me yesterday Smile. i searched about what is the problem with my eye and i found MGJW then i saw some videos in youtube i was like ooooomg there is people like me . then i found this group and believe me i can not express my feeling ,, i'm really happy finding someone to discuss and share stories.

my english is not good i know that Tongue ,

i have a question , Can you control your eyes while eating ??

because i can Tongue <==== this guy is superman Smile

i have MGJW in my right eye , i can avoid eating on the right side because that side make my eye wink . i have a lot of friends they didn't notice yet .

i'm not sad that i have MGJW do u know why ?

beacuse i'm happy that i'm not blind . it's not a big deal .

=================================================

Do WhAt EvEr U WaNT BuT DoN'T PlaY wiTH mY HeART

Post edited by: Gazi, at: 11/25/2009 07:04 PM

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11/29/2009 01:43 PM  Top
MarcusGunnWinkgirl
MarcusGunnWinkgirl
 
Posts: 33
Member

Well, im happy you found us! I have a question, since I also have MGJW , is it fool proof when u eat on the opposite your mouth then your eye with MGJWS??

11/29/2009 02:48 PM  Top
Gazi
GaziPosts: 3
New Member

it wont wink ,

i'm saying that i can avoid it Smile , , i mean when i chew on the left side i can avoid winking ,

and i can also open my mouth with out winking .


Previous discussions I participated in:
Just saying hi

12/02/2009 12:32 PM  Top
lauracarmel
lauracarmel
 
Posts: 491
Member

hi gazi! i don't think I can stop mine from winking but I've heard stories of other people who stop it by chewing on one side.

don't worry about your english, i think i can understand you pretty well Laughing

welcome Smile


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HI guys
Youtube "Marcus Gunn"
HELP is very much needed
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