I am still trying to get over the shock, and in general going through a heavy depression period. I already started looking on line for support and possible cures. Of course, I came across the liver transplant option. Although, there would be incredible risks, a part of me feels it is worth it.

Does anyone have any more infromation on the liver transplant option. Why haven't more people tried it? I understand the availability of the organs, as well as possible cost is a huge obstacle?

Thank you for the reply. I am just trying to gather as much information as possible at this time. I realize the tremendous risks involved with liver transplants (we live in the USA by the way). It is great to hear that your daughter is 10, and doing really well. That is very encouraging. To be honest with you, I think I am still in shock, and so anything which promises a cure, sounds appealing right now - no matter what the cost.

Howeverm, it's probably my emotions talking. Our son finally came home from the hospital. After a month long stay. Instead of being just depressed, I am depressed and sleep-deprived... :o) It's good to have him home though, and we are trying to get into a routine with him. I know time heals all things, I am trying to stay optimistic.

It's been such a long time since I replied. Itr has been a difficult 4 months, but I am starting to get back into the "moving-on" mode. Our son Dylan is 4 months and has been relatively healthy. He is drinking his formula, and the doctors are maintaining his levels. Weekly blood draws break my heart as they often have to poke him many times to find the vein.

My wife and I attended the 2008 MSUD symposium in Columbus Ohio. It was very education, and depressing at the same time. However, it really helped to talk to other parents. There were sevaral families there with kids who had transplants. I realize it is a highly controversial decision, but I think it is worth investigating. We talked one-on-one with several families who had this done. They do not regret it a bit, even though some of them had many complications. It has to be the hardest decision a parent has to make. Right now, I don't see how I would make it - one way or another.

AMANDA