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Hi I'm tina



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01/19/2008 16:50
tinabudde
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Posts: 7
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Hi I'm Tina, a 13 year cancer survivor who has lymphedema in the left leg, truncal, right arm, face, neck, chest, back. I am most likely a primary lympher who's surgery triggered the lymphedema. I am the new content editor at ELymphNotes, run Lymphland.com and Lymphland International Lymphedema Online support group and many other things.

I got very involved in the last 2 years. I decided to spread the word in a big way. I have seen too many of us blown off, misdiagnosed, and mistreated to be silent anymore. I used to work 2 jobs and now I am disabled and just spend my good days working with my sites and advocating.

I'm glad to be here!

Tina

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02/25/2008 13:26
JoyfulOne
Posts: 18
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Hi Tina, I belong to lymphland, and get elymphnotes too. I'm not too active there as far as speaking up, but I think you're doing a great job with it! I've had le for 5 years now, also secondary as a result of the cancer surgery (taking out lymph nodes.) It's good to see you here! Joy
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