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"Spina Bifida (for my BF)" (CAHSSurvivor)

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MissNikkiAnn"When you have an illness with the name "Non-Familial Dysautonomia" (a name that most people, and even doctors, have never heard of), you need a network
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MDJunction led me to that network of people during a very confusing and sickly time. For this I am thankful. And for this reason I try my best to give back to other members the same care and help that I received through MDJunction.
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Lyme & FMS ForumsGeneral & SupportDesperate for Help, Please.
05/23/2012 07:53 PM
dmj5911
Posts: 4
New Member

I desperately need to find a Dr in TX or very close for treatment, please.

Current Dr is trying but I need one that is Lyme literate, as well as being familiar with the other conditions I have. I am currently diagnosed with Fibro, Hypothyroidism, Chronic Epstein Barr (which after researching I'm wondering if it is actually HHV-6b), Chronic Lyme.

Fibro was diagnosed 25 years ago. I had shingles when I was in middle school, roseola & german measles when I was younger, have had numerous tick bites over the years, but only one 3 years ago that produced the tale-tale signs and symptoms of Lyme... ALL doctors until my current Dr that I went to (5) blew off any possibility of me even having Lyme, gave RX for Creams, etc.

The Hypothyroid treatment was started about a year ago, Lyme and Epstein Barr treated with oral antibiotic without success. My symptoms are getting markedly worse.

Fibro is not being treated with any meds at this time, Hypothyroid is being treated with Compounded T3, the only other meds taken at this time are Compounded Hormones.

Can someone please help me so I can try to get my life back?

Reply

06/06/2012 11:04 PM  Top
cmany
cmany
 
Posts: 6204
Group Leader
I'm an Advocate

Sorry for the delay...were you able to get a list of LLMD's...if not let me know and I will send what I have...

Christine

[b]Group Leader Disclaimer[/b]
First and foremost - I am NOT a doctor, anything I share is based on experience & research. I strongly encourage you to discuss any and all information that I share with a health care provider.
************************
"I'm not afraid to take a stand
Everybody come take my hand
We'll walk this road together, through the storm
Whatever weather, cold or warm
Just let you know that, you're not alone
Holla if you feel that you've been down the same road...
And I just can't keep living this way
So starting today, I'm breaking out of this cage
I'm standing up, Imma face my demons
I'm manning up, Imma hold my ground
I've had enough, now I'm so fed up
Time to put my life back together right now" Eminem Not Afraid

06/07/2012 05:19 AM  Top
dmj5911
Posts: 4
New Member

No I haven't been able to find a list for my area.

Previous discussions I participated in:
desperate for help, please

06/07/2012 08:22 AM  Top
cmany
cmany
 
Posts: 6204
Group Leader
I'm an Advocate

Sending you a pm
[b]Group Leader Disclaimer[/b]
First and foremost - I am NOT a doctor, anything I share is based on experience & research. I strongly encourage you to discuss any and all information that I share with a health care provider.
************************
"I'm not afraid to take a stand
Everybody come take my hand
We'll walk this road together, through the storm
Whatever weather, cold or warm
Just let you know that, you're not alone
Holla if you feel that you've been down the same road...
And I just can't keep living this way
So starting today, I'm breaking out of this cage
I'm standing up, Imma face my demons
I'm manning up, Imma hold my ground
I've had enough, now I'm so fed up
Time to put my life back together right now" Eminem Not Afraid
Reply

Health Topics: Epstein Barr, HHV 6b
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Lyme & FMSLyme & FMS ForumsGeneral & SupportDesperate for Help, Please.

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