MDJunction - People Helping People
 

Why wear a ribbon?

 
"Self injury. I have earned every scar I have." (wolfangel)

MDJunction to me

MisaBlue01"MD Junction has been a safe haven for me. I have met so many caring and understanding people and i don't feel so alone anymore with my bipolar. I now know that others suffer as well and that we need each other for support. I hope that one day we can all learn to love and respect each other more and that no one will have to suffer anymore." (MisaBlue01)

more testimonials
Lyme & Fibromyalgia Support Group
A community of patients, family members and friends dedicated to dealing with Lyme & Fibromyalgia, together.
Join This Group
Group Home   Forums   Articles   Members (469)   Diaries   Videos   Leaders   Guidelines
Lyme & FMS Group RSS Feed
Lyme & FMS ForumsGeneral & SupportFeel like crying....confused on what to do
01/21/2012 09:30 PM
Happynurse
Happynurse
 
Posts: 330
Member

Well i just don't get it. What in the world is wrong with me. Why can't someone just give me a clear diagnosis. I felt the closest thing to what could've been wrong with me was lyme and/or co-infections. It seemed to me that this could be the only thing.

Seriously, i use to cry every single night when i was bed bound for 8 months. Tonight i feel like just crying for a little. MY BIGGEST PROBLEM is muscle loss. I just don't get how i can't put on muscle mass. It's so freakin frustrating.

I am up to 27 drops of una de gato. I haven't herxed, all i felt was some head pressure in the beggining but that's it. I also was taking 10 tabs of Bromelain. I don't know if these supps are helping or not but i haven't seen any significant muscle changes.

I even went out to buy me some 15 lb dumbells to do some kind of exercise as a desperate attempt to save myself. If i did have lyme shouldn't i have herxed a little when taking una de gato. Also, shouldn't the bromelain have helped with putting on some weight.

It sucks so bad. I eat so so much and yet all i gain is fat and no muscle. I walk strange because of it. I wonder if there is some absorption problem. I have even cut down on my steroid usage. I only take 3 mg of medrol now and 5 mg of Cortef (Cortef has a shorter half-life and also is bio-identical cortisol).

I know that steroids like medrol can inhibit protein synthesis because cortisol does that. But if i'm low on cortisol, which tests proved me to be so, then i am replacing what's missing. AAAAAAHHHHHH

If too much steroid usage was really a problem then my blood glucose would show too high, my blood pressure would rise higher, and i would be bloated and have a round face and other swollen parts of my body.

I have some cumanda on the way and i've got a bottle of Carnivora that i will take once i'm done with the Bromelain.

If you read this far thanks for letting me vent. Sorry. I hate being this way.

Carlos

Igenex IgM Result NEGATIVE
CDC/NYS NEGATIVE

18 kDa. -
**23-25 kDa. -
28 kDa. -
30 kDa. -
**31 kDa. -
**34 kDa. -
**39 kDa. IND
**41 kDa. ++
45 kDa. -
58 kDa. -
66 kDa. -
**83-93 kDa. IND

IGENEX IgG-Result NEGATIVE
CDC/NYS-REsult NEGATIVE

18 kDa +
**23-25 kDa -
28 kDa -
30 kDa -
**31 kDa IND
**34 kDa IND
**39 kDa IND
**41 kDa +++
45 kDa -
58 kDa +
66 kDa -
**83-93 kDa -

"If i'm gonna go out, I'm gonna go out swinging." I refuse to live this life without passion and sick. I must live it to the fullest if I'm gonna live it, which means i will take risks when needed intelligently."
Reply

01/22/2012 07:54 AM  Top
cmany
cmany
 
Posts: 6205
Group Leader
I'm an Advocate

Carlos...

Absorption can certainly be an issue...and can really hinder quite a bit...

Whole food fruit and veggie supplements can help to fix this issue...

But you also have to remember...this is going to take time...I have had this for 30 years - and it took nearly 15 years for me to finally get the right combo of supplements and treatment to get this thing in remission...

Una de Cato also doesn't work for everyone...at least not to the same degree...for me it works in short bursts....and not everyone herxes...there have only been a few conventional meds and naturals that cause me to herx...

I got this natural called Spiro - and WHOA...what a difference that made...had to go really slow in the beginning...and it was certainly what helped me get into remission...

So you may need to go through a process of trying different products to find the one that works best with your body...

[b]Group Leader Disclaimer[/b]
First and foremost - I am NOT a doctor, anything I share is based on experience & research. I strongly encourage you to discuss any and all information that I share with a health care provider.
************************
"I'm not afraid to take a stand
Everybody come take my hand
We'll walk this road together, through the storm
Whatever weather, cold or warm
Just let you know that, you're not alone
Holla if you feel that you've been down the same road...
And I just can't keep living this way
So starting today, I'm breaking out of this cage
I'm standing up, Imma face my demons
I'm manning up, Imma hold my ground
I've had enough, now I'm so fed up
Time to put my life back together right now" Eminem Not Afraid

01/22/2012 09:09 PM  Top
Happynurse
Happynurse
 
Posts: 330
Member

Thank you Christine for clarifying this for me. i though una de gato was like the one and only for lyme and co-infections. Well not the ONE and only, but like the main supplement for lyme. I got some cumanda on the way.

And i know there's alot of other stuff out there. It just frustrates me that i don't have a clear diagnosis. But now that i'll have some money i'm going to use it to get this thing figured out.

Thank you so very much, you're an angel to this group.

Carlos

Igenex IgM Result NEGATIVE
CDC/NYS NEGATIVE

18 kDa. -
**23-25 kDa. -
28 kDa. -
30 kDa. -
**31 kDa. -
**34 kDa. -
**39 kDa. IND
**41 kDa. ++
45 kDa. -
58 kDa. -
66 kDa. -
**83-93 kDa. IND

IGENEX IgG-Result NEGATIVE
CDC/NYS-REsult NEGATIVE

18 kDa +
**23-25 kDa -
28 kDa -
30 kDa -
**31 kDa IND
**34 kDa IND
**39 kDa IND
**41 kDa +++
45 kDa -
58 kDa +
66 kDa -
**83-93 kDa -

"If i'm gonna go out, I'm gonna go out swinging." I refuse to live this life without passion and sick. I must live it to the fullest if I'm gonna live it, which means i will take risks when needed intelligently."

Previous discussions I participated in:
Good news
Blood glucose and steroids
Double vision why?
Reply

Share this discussion with your friends:
Members who viewed this page also read:

Lyme & FMSLyme & FMS ForumsGeneral & SupportFeel like crying....confused on what to do

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.
Contact Us | Bookmark Us | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | MDJ Advocates | Advertise
Copyright (c) 2006-2013 MDJunction.com All Rights Reserved