Why wear a ribbon?

"To show strength, support and guidance for those with this horribly disabling di..." (Robin46)

MDJunction to me

"All I can say is that this has been the best place ever. It has been six to seven months since I joined, and I have learned so much. I now believe in myself and accept myself on a completely different level. The people on MDJunction has been so supportive and accepting that I have been able to adopt it into my personal life. That has reduced a lot of stress in my life. Thanks to all." (bunnyfly)
We comply with the HONcode standard for trustworthy health information:
verify here.
Lyme Disease Support Group
A community of patients, family members and friends dedicated to dealing with lyme disease, together.
Join This Group
Group Home   Forums   Articles   Members (752)   Diaries   Leaders   Guidelines
Related discussions:


<< Start < Prev 1 2 Next > End >>
04/19/2007 23:55
Bland
Lime Green Ribbon
Posts: 14
New Member

Send a PM
Give a Hug
Hi yall, happy I found a dedicated lyme place.

When I was 2 years old, my mother has been diagnosed with lyme. She got very sick at times, and my father couldn't handle it all and..... left. My mother was pregnant at the time with my little brother. I haven't seen my father since, and he never saw his other son.

As a single mother, usually very ill, she did her best to bring us up as she could. She couldn't hold a steady job and only worked for months at a time. She tried to find a partner a few times, but nobody wanted such a sick woman, with 2 kids and so many problems.

So she's alone now. She's all we got. She struggled immensely. We didn't get any financial aid from nowhere, never. We didn't know where to turn to, she didn't have medical insurance so she didn't have a solid medical record.

Now she's 54, very ill, not on any medication, completely unable to work, with no income whatsoever. Me and my brother are barely able to support her.

She was never on SSI, we never got any assistance from welfare.

She can't retire, she barely worked, and mostly illegaly.

Is she entitled to anything, can she file a disability claim? She is disabled, she bears a very serious and debilitating illness.

Can anybody advise? We really don't know where to start.

Thanks to everybody in advance.

Reply  


07/12/2007 06:23
jaime1978
Lime Green Ribbon
Posts: 1094
Group Leader

Send a PM
Give a Hug
I don't have any advice for you, I'm sorry. I will be in a similar situation. I can't do the job I went to school for, don't think I'd be able to hold down much of any other job because of my 60 symptoms.... I'm lucky enough to have a husband who can afford me to be a stay at home mom for the time being, although it's very tight, one income for 4 people.... we were planning on me going back to work when the kids go to school....

i've looked into disablitliy, but I am too young, haven't got enough "credits" to get it...would have to work 4 more years to even be able to apply....then who knows.

I just want to tell you I will say a prayer for your family. I know this is so hard. your mother is a strong person, raising 2 kids on her own, feeling the way she does.

Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
Reply  


07/12/2007 06:59
StrictlyTopSecret
Lime Green Ribbon
Posts: 13
New Member

Send a PM
Give a Hug
SSI is a governmental assistance program for disabled folks who have not met the contribution requirements for SSDI (e.g., have not worked a certain number of quarters and paid federal SS taxes on that income). I really encourage you to visit the following site. Download the application. Help your mother apply. A good portion of it can be completed online.

Best of luck,

~STS~

http://www.socialsecurity.gov/ssi/index.htm

http://www.ssa.gov/pubs/11011.html

Post edited by: StrictlyTopSecret, at: 07/12/2007 09:01

Reply  


09/29/2007 10:04
deputy643
Green Ribbon
Posts: 53
Member

Send a PM
Give a Hug
Hello,

Apply as soon as you can. Disability will not kick in until you have been found to be disabled for 5 months from when you have applied.

If it takes longer than the 5 months, for approval, your Mother, will get retro pay for every month of waiting for approval, after the 5 months.

Mine took 14 months, so I got, a heck of a retro check!

While you are waiting approval, apply for county help. MA, EBT and Cash Assistance. Also check within your community resources, for all kinds of help.

Pull up your Dept of Health and Human Resources, through your state, and you will find even more help.

Take care,

Leslie

Reply  


09/29/2007 10:22
deputy643
Green Ribbon
Posts: 53
Member

Send a PM
Give a Hug
Me again,

Also try United Way- First Call for Help

Reply  


10/06/2007 21:00
Bettyg
Green Ribbon
Posts: 187
Member

Send a PM
Give a Hug
[size=4][/size]

pleasee look at the post i began on SSDI, ss disability insurance benefits; believe it's like 25 pages!

you'll find mainly ssdi info there, but guidance to ssi web site advising about that.

by using this info of experience from 3 people and DISINISSUES, disability insurance issuess website, you can BE APPROVED 1ST TIME ON 1ST STEP with the proper medical documentation!

took me 5 years of hell and 3 out of 4 drawer file cabinet full of medical files and duplicated paperwork over and over for SS!

Reply  


07/06/2008 13:34
cjmunn
Lime Green Ribbon
Posts: 2
New Member

Send a PM
Give a Hug
VERY IMPORTANT!

This site really is why I got approved the first time I applied. The cognitive functioning test was the key. You have to PROVE you are disabled according to social security guidelines. The two doctors letters and positive Lyme test were not enough.

http://www.cfids-me.org/socsec.html

Reply  


07/06/2008 14:37
Mizuiro
Lime Green Ribbon
Posts: 148
Member

Send a PM
Give a Hug
The key is definitely applying as soon as possible. Apply for SSI, I did this over the phone and had a much easier time than online but you can apply in person too. Also apply through SRS for Assistance. For Medical assistance you have to have proof you've applied for SSI (all I needed was a letter with the date and time of my phone appointment) just anything that shows you're in contact with them. My Medicaid and cash assistance went through in two and a half months and has covered all my medical bills from the time I applied (hospitals will also work with you on financial basis and usually find a way to cover it if you have Medicaid). SSI takes longer but if you can establish enough reasons for being disabled it should be no problem. Look at listed diseases that qualify as a disability (like Lupus) and see how many symptoms you can find that match.

Jessica

Smee: I've just had an apostrophe.
Captain Hook: I think you mean an epiphany.
Smee: No... lightning has just struck my brain.
Captain Hook: Well, that must hurt.


"Hello in there Cliff. What color does the sky happen to be in your little world?"
Reply  


07/06/2008 19:18
chickiechick
Posts: 44
Member

Send a PM
Give a Hug
Jessica,

Can you elaborate a little more about your disability process. I am waiting on my hearing. Not just for the Lyme, but also CMT. Any suggestions would be greatly appreciated.

Thanks, Teri, PA

Reply  


07/06/2008 20:25
Mizuiro
Lime Green Ribbon
Posts: 148
Member

Send a PM
Give a Hug
I'm actually still in the process myself but I have an uncle on disability who's been very helpful. His reasons are a combination of ADHD, Bipolar Schizophrenia, and Hep C. Basically what he's told me and what I've read is the more you can establish the better. Mine for example I have medical records from a long list of specialists as well as hospitals and clinics, test results, MRIs (one of my brain showing black spots) as well as psych evaluation and therapy notes and doctors notes and surgeries. I'm not saying you have to have all of those but little things help. I said in the paper work that I am unable to drive, sometimes unable to remember my own name, unable to perform simple math problems (backed up by psych eval.), digestive problems needing a special diet. If you're not able to walk far tell distance you can or period of time and what happens past that like for me I would pass out. Basically have every reason you are disabled and back it up. Being as specific as possible. Like not just saying you have sleep problems but saying you usually get a maximum 5 hours of sleep each week and have tried sleep aids but had no relief and how the sleeplessness affects you such as making the other symptoms much worse. It helps too to have someone listed (not in your household) to back up your claims even if it's a friend or relative.

The symptoms with Lupus would be if you could show that you have organ damage. If you need help with simple tasks like are you able to do any house work or prepare meals. If you prepare meals what kind of meals do you make. These are all helpful things to include.

Smee: I've just had an apostrophe.
Captain Hook: I think you mean an epiphany.
Smee: No... lightning has just struck my brain.
Captain Hook: Well, that must hurt.


"Hello in there Cliff. What color does the sky happen to be in your little world?"
Reply  


<< Start < Prev 1 2 Next > End >>

Start a New Discussion

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice. Read more.
Contact Us | Bookmark Us | Add a Doctor | For Doctors | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | Advertise
Copyright (c) 2008 MDJunction.com All Rights Reserved