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03/18/2007 11:39
Bettyg
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Posts: 187
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I'm going to post some content I send folks who join www.lymenet.org. Let me know if you want me to send you my pages another way ok! I continue to add to this daily/weekly as needed!

NATIONWIDE SUICIDE HOTLINE 1.800.784.2433 now please! If you are feeling suicidal, please call the SUICIDE HOTLINE. We care about you.

Before you do anything else, please take 10 minutes and sign the 2 lyme petitions you’ll read about below!

IT’S CRITICAL TO US FOR LYME LONG-TERM ANTIBIOTICS/OTHER TREATMENTS, GETTING FEDERAL $$ FOR LYME, ETC!

http://www.petitiononline.com/mod_perl/signed.cgi?lyme&1

Also, please sign the 2nd petition in protest of the IDSA, infectious disease society of america, mds who re-wrote lyme treatment guidelines effective 10-06, WORSE for us CHRONIC LYMIES!

http://www.lymediseaseassociation.org/referral/Petitions/ Petition.php?id=1

Betty Gordon’s LYME/TICK BROCHURE with LDA info plus other stuff from Betty including: lyme books, support groups, lyme/co-infection illnesses, symptoms, diagnosis, treatments, hunting/gardening ... how to dress; how to remove ticks, etc.

http://flash.lymenet.org/scripts/ultimatebb.cgi? ubb=get_topic;f=1;t=045337

“CDC “ Case Definition of Lyme Disease, (Borrelia burgdorferi)

http://www.cdc.gov/epo/dphsi/casedef/ lyme_disease_current.htm

LYME & EVERY DAY LIFE: CHANGES, SUGGESTIONS FOR COPING, ETC. by MINOUCAT 12-2004..outstanding advise!! A MUST READ!

http://flash.lymenet.org/scripts/ultimatebb.cgi? ubb=get_topic&f=1&t=029688#000014

UNDERSTANDING HERXING REACTIONS

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic; f=1;t=041517

HYPERCOAGULATION

http://www.drcharlescrist.com/hypercoagulation.htm

Site of photos of ticks from Iowa State University Entomology Dept.

http://www.ent.iastate.edu/imagegal/ticks/defaulttn.html

PHOTOS OF DARK-SKIN RASHES:

http://www.lyme.org/gallery/em_patmas3.html

However, this skin does not look very dark. I guess that on really dark skin it would be hard to see at all.

http://www.lyme.org/gallery/emmasters.html

Lyme symptoms list compared with yeast symptoms

http://flash.lymenet.org/ubb/Forum1/HTML/021412.html

Dr. Bransfield's Reason's for Seronegativity ( the reasons why you can test negative and still have Lyme disease

http://www.mentalhealthandillness.com/ seronegativelymedisease.html

DIABETES & LYME DISEASE; LOTS OF VITAMIN “C & E” NEEDED!http://www.lammd.com/A3R_brief_in_doc_format/ Diabetes.cfm#Diabetes%20Protocol

TIMACA’S Appeal Letter to Insurance Company for IV COVERAGE

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic; f=3;t=014009#000000

There is tons of good info at the site mentioned below,. this is the home page, it was put together by a Michigan law firm and is one of the best I have ever seen

http://www.patientrights.com/index.html

SUCCESS STORIES; GETTING WELL AFTER LYME DISEASE!

http://flash.lymenet.org/ubb/Forum1/HTML/022173.html

http://flash.lymenet.org/scripts/ultimatebb.cgi

“SYMPATHY” POEM COLLECTION by Betty Gordon

http://flash.lymenet.org/scripts/ultimatebb.cgi? ubb=get_topic;f=3;t=014207

sweat packs a germ-killing punch http://www.sciencenews.org/articles/20011110/fob2.asp

But You LOOK Good: A Guide to Understanding and Encouraging People Living with Chronic, Debilitating Illness and Pain!

http://www.myida.org/lookgood.htm

http://flash.lymenet.org/scripts/ultimatebb.cgi? ubb=get_topic;f=3;t=008886

This "letter to normals" is circulated in fibromyalgia circles but the symptoms are often identical because chronic lyme can turn into fibromyalgia.

Just substitute "lyme" in place of "fibromyalgia"

http://www.fmscommunity.org/lettertonormals.htm

List of symptoms. It says it all:

http://www.lymediseaseaction.org.uk/symptoms.php

SYMPTOMS CHART

http://www.lymepa.org/html/monthly_symptoms_charts.html

ALJ's don't like working with LYME, FIBRO, CHRONIC FATIGUE. MENTAL is on approved list of adult approved impairment list! So don't fight it, go with it!

INTERSTITIAL CYSTITIS , IC, getting SSDI for this illness/letter needed!

http://disabilitydoc.squarespace.com/interstitial-cystitis/

There are links to helpful websites found:

http://groups.yahoo.com/group/Disinissues/links

There are many more links, as well as advice and "useful" messages

in the Files area of the website. Go to

http://groups.yahoo.com/group/Disinissues

and click on Files.

60 questions you'll be asked at your INCAPACITY MEDICAL. I understand this is good; have NOT READ IT!

http://www.benefitsandwork.co.uk/benefits/unspun/ 71_incap_questions.htm

Tick Borne Disease - Symptom A to Z

Lyme Disease is systemic, it can effect the whole body.

Below is a list with the possible symptoms:

Abdominal Pain

Achiness (Generalised)

Acrodermatitis Chronica Atrophicans/ ACA

Alcohol - Extreme Effects Of

Anorexia

Anxiety Attacks

Arthritis

Back Pain

Balance Problems

Bell's Palsy

Bladder Problems

Blindness

Blood Pressure - Raised

Bone Erosion

Bone Pain

Bowel Problems

Bradycardia - Slow Heart Beat

Brain Fog

Breast Discharge

Breast Pain

Breathlessness - Air Hunger

Carpal Tunnel Syndrome

Chest Pain

Chills

Cholesterol - Raised

Choroiditis

Clicking Joints

Cold Feet

Confusion

Conjunctivitis

Constipation

Costochondritis / Ribcage Pain

Cough (Non-Productive)

Cramps

Deafness / Hearing Loss

Dental Pain

Depression

Diarrhea

Difficulty Concentrating

Disorientation

Diverticulosis / Spastic Colon

Dizziness

Dyslexia

Ear Pains

Encephalitis/ Encephalopathy

Erythema Migrans Rash

Facial Pain

Facial Palsy

Fasciculations / Muscle Twitches

Fatigue

Fever

Fibromyalgia

Floaters

Flu-Like Symptoms

Fluctuations of Symptoms

Foot Pain

Forgetfulness

Hair Loss

Hallucinations

Headache

Hearing Loss

Heart Block

Heart Problems - ECG Abnormalities

Heartburn

Hepatitis

Herxheimer

Hoarseness

Hyper Sensitive Hearing

Hyperacusis - Sound sensitivity

Inability to Concentrate

Inability to Remember Words

Insomnia

Involuntary Jerking, Limbs and Trunk

Iritis

Irritable Bowel

Jaw pain/ Temporomandibular joint disorder

Joint Problems

Joint Swelling

Knee Joint Pain

Libido - Loss Of

Light Sensitivity

Liver Problems - Raised Enzymes

Malar (Facial) Rash

Marked Personality Changes

Memory Loss

Meniere's Disease

Meningitis

Menstrual Irregularities

Miosis - Decreased Pupil Size

Mood Swings

Motion Sickness

Muscle Aches

Muscle Spasm

Myoclonic (Involuntary) Jerking

Nausea

Neck Pain

Nerve Conduction Defects

Nightmares

Numbness

Optic Neuropathy

Palpitations

Panic Attacks

Paraesthesia / Abnormal Skin Sensations

Paranoia

Photophobia

PMS - Pre-Menstrual Syndrome

Psychiatric Problems

Ptosis - Drooping Eyelid

Rash

Retinal vasculitis

Reynauld's Syndrome - Cold Hands & Feet

Seizure

Shivering

Shooting Pains

Shortness of Breath

Shoulder Pain

Skin Sensitivity

Sleep - Excessive

Sleep Apnea

Sleep Disturbances

Sleep Inability

Slurring of Speech

Smell Sensitivity

Sore Throats

Speech - Slurred, Slow

Speech Errors

Spinal Disc Problems

Stiff Joints

Stiff Neck

Swallowing Difficulty / Dysphagia

Sweating (Profuse)

Swollen Glands

Symptom Flares - Approx 4 Weekly

Tachycardia - Fast Heart Beat

Tendonitis

Testicular Pain

Tingling of Extremities

Tinnitus / Ringing in Ears

TMJ - Jaw Pain / Stiffness

Tongue Numbness

Tongue Pain

Tooth Pains

Tremors / Shaking

Uveitis

Vasculitis - Circulation Problems

Vertigo

Vibration Sensitivity

Visual Disturbances

Vomiting

Weakness or Paralysis

Weight Gain

Weight Loss

Word Block

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03/20/2007 03:13
Nadina
White Ribbon
Posts: 111
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Welcome to our community, Betty, and thank you for your rich contribution.

I took the liberty, however, to edit your initial post, since I understand that your material is gathered over a longer period of time, and such a long block of text posted all at once can be overwhelming and difficult to follow. I hope that the users that are interested in the full-length resource pages will contact you, and visit your site for more.

We appreciate the time and effort you've put in all of this. Thank you.

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03/20/2007 14:27
Bettyg
Green Ribbon
Posts: 187
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nadina,

if you came across any old links, please notify me of them so i can delete them from my 46 pages of info i sent newbies! thanks.

i do have extensive SSDI, social security disablity insurance, benefit info on how to do this 1st time, 1st step and win. this was sent to this list group as is.

if you want to divide my materials in your designated areas, please do!

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03/20/2007 14:46
Nadina
White Ribbon
Posts: 111
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I will go through each and every link and let you know if there are any outdated ones.

Dividing everything into several chunks is a great idea, I'm going to work on that.

This is great info, especially for people that are dealing with this for the first time and don't really know where to turn or what to do, and are also so sick and weak that it's even harder for them to start everything from 0.

Also, since you (unfortunately) have such extensive experience with all this, it would be very useful for the community to get to know you personally better, to find out how you managed to cope with all this, physically and psychologically. If you have the time and mood to share some of your stories, I believe it would really help and make a difference. Feeling you're not alone, and understanding how others managed, how they cope, is the essence of a support group, and, along with the practical info, it does help. A lot.

I really admire your strength and involvement, and that, even fighting with your personal illness, you find the resources in you to help and give so much to others.

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03/20/2007 20:10
Bettyg
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Posts: 187
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nadina, thank you for your very kind remarks! yes, i've been through a lot in the last 37 years. I WILL SURVIVE is my motto, and the internet has been a real asset to me these last 7 years since i bought my 1st pc and learned the internet!

i'm going in this monday, march 26, to have left hip replacement surgery so i really don't have time to tell you a lot about myself. i'll be off internet at least 7-8 days while in 2 different hospitals recuperating! have no idea how long before i can get back to my pc, but i'll send you something.

in fact, i typed up a 500 word essay for another lyme site in Wisc., so will just copy that lhere, and you all can read it vs. duplicating my efforts!! i'm a big believer in doing something ONLY ONCE!

July 12, 2004, I was correctly dx with late stage, CHRONIC lyme disease after being misdx for 34 yrs. after a case of mono, and the list goes on with 30 diagnosis/symptoms!

I tested with a blood test, WESTERN BLOT IGM & IGG, which needs to be tested for ALL 16 protein bands...all strains of lyme disease! In USA, only 3 diagnostic labs do this testing: IGeneX, MD, and Bowen Labs. 2004.

I was diagnosed with: diabetes 2 in 1-04; chronic lyme disease 7-12-04; and sleep apnea (I stop breathing when sleeping) and restless leg syndrome 12-04.....3 life-threatening illnesses.

"You look perfectly healthy...not sick” said one of my family members. Oh what they don’t know and can NOT feel of the pain and fatigue inside me! If I were in a wheelchair, used crutches, a walker, or a cane. I would have a visible disability. “It’s all in her head”.

Only those of you going through this know how much pain and anger you’ve caused us with your thoughtless comment on our “invisible” illnesses! We don’t want sympathy; we only want your support, compassion, and someone to talk to when our “flare-ups” are bad.

I have been blessed with my supporter/ husband, Jack, and close friends. I have had chronic fatigue syndrome, CFS, since age 21, Feb. 1970, after getting mononucleosis; and still have 34 years later.

I was diagnosed with fibromyalgia syndrome, FMS , 11 years ago but have had at least 30 years. I then begin having many other symptoms: A person has fibromyalgia if they have at least 11 of 18 specific tender point painful sites. I have all 18 of 18 tender points. My pain never goes away! I use a heating pad and/or frozen cold packs on my neck, shoulders, lower back, thigh, and knee helping to numb pain.

Do you have any idea what it is like to go to bed night after night, year after year, and get up just as TIRED as when you went to bed? Plus I wake up frequently urinating 4-8 times. I can’t reach level 4 sleep healing our injuries and rejuvenating our systems. I have sound-proofed our bedroom to eliminate noise from the neighbor’s driveways, slamming of the car doors, racing engines, dogs barking, piano playing, and bouncing of all balls.

I was clinically diagnosed with major depression and anxiety, and put on antidepressant that helped my chemical imbalance causing temper flare-ups, and causing me to gain 25 lbs, which caused my type 2 diabetes sooner.

Difficulty concentrating or performing simple mental tasks. I now point at things since I can’t think of words, abdominal pain, bloating, and alternating constipation/diarrhea (irritable bowel syndrome) as well as irritable bladder syndrome causing urinary urgency/frequency; super sensitivity to light (reflections/glare) and to sound (loud mufflers).

Finally after 34 years, I have discovered it was my LYME disease causing extreme PAIN sensitivity to lights/glare/reflection and to sounds/noise! I have seen 40-50 drs. to get a correct diagnosis!

SS Disability doesn’t acknowledge LYME/FMS/CFS as work disabilities and fight to DENY each claim although our treating specialists all state, “patient is unable to do substantial work now and in the foreseeable future”. July 1, 2005, I was finally approved on my 2nd SSDI claim after 5 years of hell.

STRANGE MISDIAGNOSIS:

 Paralyzed vocal cords;

 You have lupus, and walk-in MD walked out the door without explaining what it was NOR did he give me a brochure discussing what lupus was. I was diagnosed 3 different times for this, but never treated.

 This story isn’t done, but copying to MDJUNCTION as a intro to them about me! Betty Gordon 3-20-07

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03/21/2007 08:45
Bettyg
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Posts: 187
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FOR THOSE SEEKING LYME LITERATE MDS:

**********************************

please post on www.lymenet.org in seeking dr. forum area. Show in the subject line the largest city, state nearest you. Then please tell us about yourself:

+ is this for yourself or a child and WHAT AGE OF CHILD?

+ what are your symptoms?

+ what tests have you had done?

+ DID YOU HAVE A WESTERN BLOT IGM AND IGG BLOOD TEST DRAWN AND SENT TO:

1 - IGENEX, CALIF.

2 - MD LABS, NJ;

3 - STONEYBROOKE, NYC

We have found IGENEX to be the best in testing for all 16 protein bands! If you've have this done, please post your POSITIVE AND IND, inderminate numbers .... NOT NEGATIVE nos.

Please list them like this:

IGG

18 +

41 +++

45 IND

IGM

18 +

41 +++

45 IND

nadina, in the 46 pages of info i sent, look for the link about DR. C'S EXPLANATION OF WESTBERN BLOT IGM AND IGG. please post that here or in my initial post above! this answers many questions and shows some co-infections as well!!

we have lists of LLMDs, lyme literate mds, and we will check them for you and send you a PRIVATE MESSAGE, PM, on lymenet! NO DRS. NAMES ARE POSTED ON THAT SITE!!

Exceptions are 2: Dr. Charles Ray Jones, Conn. KIDS LLMD, who is still going thru Conn. Health Dept. hearings where they are trying to take away his license. 2nd exception is Dr. Joe Jemsek, NC LLMD, they had a hearing on him and he is very restricted now on LONG-TERM antibiotics and other things NC health dept. determined! You can read all about it in the ACTIVISM part of that site!

For any of you in Conn. or very close to it, please read about Dr. Jones APRIL 19 hearing in Conn. again! it's a WITCH HUNT beginning its 2nd year. thank you....we need many to go and SUPPORT HIM!

Thanks everyone! Nadina, i don't know how to get to the private message you sent me. HELP please!

also i notice on this site that folks don't leave double spacing between EACH paragraph. We neuro lymies really need that to comprehend/read when we've had chronic lyme for decades!! also, we can't read LONG SOLID BLOCKS of text, so please have lots of paragraphs like what i showed above ok! otherwise, i will NOT be visiting this site .... too much eye strain!

Also, Roy/Nadina, i can't remember if i mentioned this on suggestions to your site but using a larger DARKER font to show up for LOW vision folks like myself would be great. Size is good, but print barely shows up for my chronic lyme eyes! Thansk for your consideration of my request for me/others!

Bettyg, IOWA

Post edited by: Bettyg, at: 10/06/2007 23:18

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03/26/2007 02:20
Alon
Posts: 1311
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Hi Betty!

Wanted to thank you for all the information you've been posting in the Lyme Disease Support Group

Also wanted to suggest that you post the information in different topics - this way, along with well describing topic subjects, it'll be easier for our members to find the information you make available.

Thanks!

Alon

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03/26/2007 07:05
Nadina
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Hello again, Betty.

The link you mentioned is:

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic; f=1;t=042077#000000

(Lymetoo’s link on Dr. C’s explanation of western blot IGM IGG ,16 band numbers and is DOUBLE spaced for easier reading!)

Good luck on your hip surgery today. Have a quick and smooth recovery, and I hope to see you back among us in no time! Tell us how it went, the moment you can be in front of the computer again.

As for the private message, you just have to click on the link that says "You have 1 new private message", or go to http://www.mdjunction.com/component/option,com_uddeim/ Itemid,120/task,inbox/

Again, GOOD LUCK, be strong, and God bless you!

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04/27/2007 16:36
TWValen
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I have to wonder if it's possible if I have lyme disease, myself. It sounds like the *ONE* thing I was never tested for.

The problem is I already had lupus and chronic migraines....and then bam, one day I had the worst pain and weirdest and fatigue in my life----in the whole history of my lupus.

They kept running the lupus tests telling me it wasn't "active"....that they didn't believe anything was going on....though clearly it was. I have pain medication I'm on now...but still I have insomnia even though the pain medication is supposed to make me *drowsy* as are other meds I take!

I have a lot of the symptoms described though not before the fall of 2006 when these symptoms began (my lupus was never that bad aside from the migraines, my worst lupus symptom).

What are the most prevalent symptoms of lyme disease since I have/have had a host of symptoms....and of course take a number of drugs...and take tons of vitamins every day to try to have energy and drink lots of coffee.... since fall of 2006 my energy still hasn't been what it was....

Even with lupus, people always used to say before fall of '06 I was a very healthy lupus person----always at the gym, graduated law school (as far as my body...not many aches----although I had migraines).

But in the fall of 06 my body just seemed to fall apart such that I could barely walk two blocks...

I can do more now....but there are still days where I just need to lay around...

I guess it's harder when people have or may have dual illnesses... But, I keep being told the lupus is fine...(I've had lupus for 18 years...)...

So, when all this came on in the fall of 06 I was told it was just muscle aches or fibromyalgia?? But, looking at this forum I wonder if it's possibly lyme disease...or would regular blood work have told them that or only specific testing?

And, if it is Lyme Disease....will I get treatment that will make me feel completely normal again...i.e. at the gym 5 hrs a week etc...etc...?

I got relief for migraines....treatment for my neurologist....but....I want my energy back...no more joint pain/aches....to jog if I want etc...etc...

Of course to know I'll have stamina to hold down a job when I begin...

Thanks!

Tracey

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04/28/2007 15:24
Bettyg
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Posts: 187
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[size=5][/size]

Edited: renamed my subject line since this ALL IS ABOUT IGENEX TESTING!

..... did add 1 more testing lab!

FRY LABS, ARIZONA...GREAT FOR BARTONELLA & BABS TESTS FOR $250 vs. almost $1,000 at Igenex!!

**************************************

Tracey,

From what i just read as i skimmed your reply was this, you need to get the WESTERN BLOT IGM AND IGG BLOOD TEST bood test drawn and sent to IGENEX, PALO ALTO, CALIF. for testing for lyme disease.

there are other tests for CO-INFECTIONS and additional $$ for that too.

since i original post was edited, i don't know what is in there or not, as i gave very DETAILED info earlier!

so i've gone back to MY 50 pages of info, and am copying area i feel you/OTHERS should know about, and take action on to get the western blot igm/igg blood tests done. IT'S A CLINICAL DIAGNOSISI but they will show the 16 protein bands and if they are POSITIVE, IND, or negative!

NEW TEST – BORRELIA LONESTARI by Bea Seibert 8-26-06

http://flash.lymenet.org/scripts/ultimatebb.cgi? ubb=get_topic&f=1&t=045853#000006

IGENEX , CALIF. BLOOD TESTINGS

 Please note: What you are about to read below is NOT meant to scare any of you from any lyme testings done; it’s meant to be informed PRIOR to going into having various tests done and then be told what the costs will be!

 Mine was sticker $$ shock on various testings done by my 2nd LLMD/new to me in 4=06. Those tests/results are found elsewhere in my links/advise.

 Igenex's charges for these below things cost $905, which I figured up the last 2 days for 2 other folks includes

 The below tests were done for ME; you MAY NOT NEED them all ok! :

 western blot IGM & IGG, this is MANDATORY for you which costs $190 total for 2 tests done;

 *******************************************************

 OPTIONAL ONES ARE:

 co-infection panel for YOUR AREA OF COUNTRY;

 PCR WHOLE BLOOD...this is what my LLMD ordered!

It's PREPAY! unless you are on medicare; IGX will file the

paperwork & it's FREE to you.

go to www.igenex.com and read over their info.

 Also, call 1-800.832.3200 for CURRENT PRICES!

 They will also send you a “test kit” with their required form, all the test vials, & box to ship it in! OUT OF USA will take longer to receive!

What I gave you was 2-06 prices; went up 11-06!

 You need to DOWNLOAD IGENEX’s required form.

 MD must sign, date, and show DIAGNOSIS CODE on there why he’s ordering the test. Make sure you show to FAX results and SNAIL MAIL PAPER COPY! My results were lost for 4-5 weeks! Bettyg 

 When you get your results, please post them in MEDICAL;

 ONLY the POSITIVE & IND ones ....not the negative ones!

 Also, look for post by LYMETOO/TUTU on DR. C’s (Missouri) explanation of the western blot IGM & IGG numbers. They are listed on another page in my links ok! 

Top 5 lyme/tick diagnostic labs in USA:

1. Igenex, Calif.;

2. MD LABS, NJ; www.mdlab.com

3. Stoneybrook, NYC, SUNY Stonybrook:

www.path.sunysb.edu/labs/ticklab/TICKLAB.htm and

4. Bowen labs, Florida

5. FRY LABS, ARIZONA ...excellent for babs/bartonella testing for $250 !!

Stoneybrook is the campus where State University of New York has it's Lyme lab. I don't know exactly where it is located-I think on Long Island. Kris

COMPLETING BCBS HEALTH INSURANCE “CLAIMS” TO SUBMIT TO COMPANY:

*************

1. cross out in heavy marker any info you do NOT bcbs to know; credit card numbers, etc. OR put a post it note on that area.

2. you do NOT have to send certified, etc.

fyi --- des moines, iowa's bcbs LOST my info many times internally and perhaps it is still lost!

nov. 06 i filed with iowa insurance co. a complaint form against bcbs for not paying $4300 out of pocket for my lyme expenses since they would not process any of my lyme claims! they have sat on these, lost them, and denied verbally but not sent me WRITTEN DENIAL FORMS! in 8 months!

3. yes, on each form you complete, show the DATE MAILED WRITTEN IN! you will need that each bcbs asks you this.

what i did is this:

*******************

prepare a MASTER COPY of completed info it requests:

our name, address, phone no., PERSON'S BCBS ID NO. .... make sure you have the ENTIRE NO. WRITTEN DOWN!

I SIGNED THIS ORIGINAL SAVING ME TIME FOR FUTURE ONES.

do NOT date !

i messed up; left last digit off and no one noticed!!

Then i made 12 copies on my scanner/copier!

*******************************************

then i'd complete one PER DR./LOCATION

showing the date done, what was gotten, and then WRITE IN THE TOTAL AMOUNT PER INVOICE!!

EXAMPLES: if you have 2 or more bills from SAME DR., shown them on this ONE claim form,

but after each invoice shown, type of service gotten, write in the $$ amount of invoice.

do this for each one until you have this specific dr/location done

then show a grand total also for this dr!!

****************************************

take one of your other forms for pharmacies; EACH PHARMACY IS SEPARATE!

you can combine the SAME PHARMACIES TOGETHER; again, show the total amount per invoice!!

when done, make copies of:

***************************

. EACH CLAIM FORM

. each billing invoice

note: IF THEY ARE SMALL PIECES OF PAPER, PUT SEVERAL TO "SAME DR. OR PHARAMACY" ON A 8.5 SHEET OF PAPER TAPING THEM TO IT SO THEY ARE NOT LOST.

in my case, i got the name of the lead worker at this bcbs billing station, and sent ALL CLAIMS TO HER; even had typed address label with her name HIGHLITED!

hope this helps you! when done, go thru everything again so nothing is overlooked; have your family help you

double check that bcbs ID NO. and that all 9 digits appears!

now print off everyone's suggestions; place in a file folder for future use ok.

Tick Specialty Labs: Too Many Positive Findings?

They Save Lives

By James S., MD, MAR, PA, DABPN, DABFM

I asked Dr. Harris, from the internationally respected, IGeneX labs, to reply to the dubious comment that IGeneX "only has positive findings."

This is not valid for many reasons. First, many physicians using IGeneX get negative results. Further, IGenex has done quality assurance studies with appropriate negative findings in uninfected controls. And the company, as you can see below, has done a great deal to be certified and licensed.

The "all results are positive comment" is lazy, sloppy and uninformed. Lyme is the leading vector illness in the USA. A positive result should not be rare.

*********

IGeneX, Inc. is a reference laboratory located in Palo Alto, California specializing in Lyme disease and other tick-borne diseases. We take pride in the quality and diversity of the testing that we perform on samples from around the world.

IGeneX is licensed by CMS (Centers for Medicare and Medicaid Services) and is strictly regulated by CLIA. We are licensed in all states, including California, New York, Pennsylvania, Maryland, and Florida where special licensing is required.

The laboratory is inspected by these state and federal agencies on a regular basis. A Ph.D. consultant is also used to ensure that our laboratory is current with all the compliance regulations.

IGeneX participates in all proficiency programs required, such as New York State. Independent specialty laboratories, such as IGeneX, who have a narrow focus in testing, typically are not certified by CAP, but we do participate in the CAP Proficiency programs.

IGeneX has been testing clinical samples for over 11 years. The staff consists of a Laboratory Director, an MD Clinical Consultant, and several other MDs who also are licensed Clinical Laboratory Scientists who manufacture and perform tests. The personnel responsible for the test quality and performance are all licensed Clinical Laboratory Scientists, most of whom have been with IGeneX for many years. Our Research team is comprised of qualified PhDs and MDs and experienced Research Associates.

Customer Service is our main goal and the office staff is always willing to assist our patients and physicians. We take pride in our trained personnel that have worked together for years.

IGeneX is continually working on the advancement of existing tests. In addition, IGeneX is committed to designing and researching new technologies and opportunities. Our goal is to give Lyme patients and their physicians state-of-the-art tools for diagnosis of Lyme and other tick-related diseases.

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[Steve Andison Comment] The Federal Center for Disease Control periodically ships identified samples of what they know to be positive and negative samples to IGeneX to determine the accuracy of their testing procedures. Their accuracy rate for both positives and negatives is unsurpassed by any facility in the United States and with their state-of-the-art techniques and equipment, they may be the most accurate lab for diseases carried by ticks.

WESTERN BLOT IGM AND IGG RESULTS EXPLANATIONS FROM

DR. C IN MISSOURI, PLUS BABESOSA TEST NO. & MORE!!

A MUST READ FOR ALL from LYMETOO/TUTU !!

http://flash.lymenet.org/scripts/ultimatebb.cgi? ubb=print_topic;f=1;t=042077

good luck tracey! also, 3 times i've been dx with LUPUS, but never treated for it!''

"What are the most prevalent symptoms of lyme disease since I have/have had a host of symptoms" you asked:

pain in joints, ligaments, tendons,

chronic fatigue,

SUPER SENSITIVITY TO:

LIGHTS, GLARE, AND REFLECITON;

sounds/noises;

chemicals: perfume, after shave, food, cleaning/office supplies, cigarette smoke, etc.

irritable bowel and bladder syndrome,

migraines,

FOOD ALLERGIES

underactive thyroid

these are the main symptoms i think of right at this moment.

i have the moderator left my list here of the 135+ symptoms of lyme disease! please study that carefully. bettyg

Post edited by: Bettyg, at: 07/11/2007 23:17

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