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Lyme Disease ForumsLyme Factsfeedback replies to LYME ON THE BRAIN BY TOM GRIER
08/26/2010 10:26 AM
Bettyg
 
Posts: 26579
VIP Member
I'm an Advocate

fyi, i LOCKED my posts on parts 1-4 plus references!

with what i am about to post in upcoming days, it will probably MAX OUT limits i can post to ONE link!

so in fairness, many of you may want to post your feedback comments, so i started this link just for that purpose: feedback on tom's lyme on the brain lecture notes! Smile

bettyg, iowa leader/activist

http://www.mdjunction.com/forums/lyme-disease-support- forums/studies-research/1840726-part-2-lyme-on-the-brain-by- tom-grier-82210

Post edited by: Bettyg, at: 11/14/2010 03:28 AM

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.
Reply

09/03/2010 03:43 PM  Top
Bettyg
 
Posts: 26579
VIP Member
I'm an Advocate

have any of you started reading the different parts of tom's educational lecture?

if yes, please share your thoughts/feelings about what you learned here.

tom didn't have to share his notes, but he did graciously. come on you bashful people, speak up please. hugs Kissing

bettyg, iowa lyme activist/mdj leader Smile

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.

10/07/2010 11:52 AM  Top
lymelion
Posts: 27
Member

Hi Everyone,

I can't believe Tom's article didn't shake the ground. It's AWFUL revealing and gives a much more serious look at the possibilities.Everyone is different but now I'm on guard for more brain issues.

Comrade,

LymeLion


10/07/2010 01:08 PM  Top
Bettyg
 
Posts: 26579
VIP Member
I'm an Advocate

lion, that makes 2 of us; shocked that folks have NOT taken the time to read this in parts;

a little at a time since it is overwhelming, but he speaks to us in user-friendly NEURO language for that i'm so greatful. Smile

glad you got alot out of it; let others know ok. hugs

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.

10/07/2010 10:54 PM  Top
VicMac
VicMac
 
Posts: 1649
Senior Member

I appreciate all the work you both put into this. Very informative! I finally finished reading the 4 parts.

I have to admit, it is a bit frightening!

Based on this report, how could anybody every be completely sure they are free of Lyme in the brain? I did not realize how safe the spirochete is there, and how difficult it is to treat.

Thank you so much for providing this information!

I wish I had solutions for everybody here who is suffering, but I am still hunting for them myself and seem to be more of a student on this board than a teacher. All I have to offer is my experience, support, and prayers based on what I have learned in my recovery. I am not a physician.

08/25/2011 02:08 PM  Top
irenwill
irenwill
 
Posts: 1849
VIP Member

Hi everyone - I STRONGLY encourage everyone with Lyme to read Tom's lecture. If you want to read the lectures with the photos, they are posted here:

http://www.wisconsinlyme.net/WhatWeKnow.html

Best wishes!

Post edited by: irenwill, at: 08/25/2011 02:08 PM

I am not a doctor, just a patient striving for recovery and hoping to offer support to others, too! Many blessings to you!

Any information offered is just sharing my experience and friendly advice, NOT a prescription. You should use your own judgment and discretion when making health care decisions.

08/25/2011 04:13 PM  Top
Bettyg
 
Posts: 26579
VIP Member
I'm an Advocate

irenwill,

the link above is NOT the same identical info that is posted in LYME ON THE BRAIN by tom; they are separate entities.

your link though is fantastic showing the graphics which there were alot of when i broken this up for tom i think 2 yrs. ago already or was it last year; can't remember without going to the site.

i will be getting to your other request by pm as TIME permits; thanks for understanding. Wink

hugs, bettyg, iowa activist, group leader, llmd coordinator

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.
Reply

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