MDJunction - People Helping People
 

Why wear a ribbon?

 
"Because I suffer from gastroparesis!" (Bubs2424)

MDJunction to me

jpcrps"When I found MD Junction, I was in the beginning stages of RSD/CRPS. I was scared, lacked knowledge about the condition, and felt very alone.

MD Junction changed all of that for me. I found friendship and terrific information from people who had first-hand knowledge of this syndrome. It was and still is a big part of my life.

MDJ was my first step on the journey of grief; from denial to acceptance. I am now inspired to help others by sharing this amazing site and sharing my own experiences. I am very impressed that one forum site can provide hope and inspiration to people suffering from so many different conditions. I am proud to be a part of this community.
~ Jenny
" (jpcrps)

more testimonials
Lyme Disease Support Group
A community of patients, family members and friends dedicated to dealing with lyme disease, together.
Join This Group
Group Home   Forums   Articles   Members (7839)   Diaries   Leaders   Guidelines
Lyme Group RSS Feed
Lyme Disease ForumsLyme Facts08 Dr. Burrascano's Lyme Guidelines & Supplements
01/13/2010 09:30 PM
Bettyg
 
Posts: 26641
VIP Member
I'm an Advocate

DANGER welding UNPROTECTED while taking doxy!

http://www.mdjunction.com/forums/lyme-disease-support- forums/medicine-treatments/3766691-change-of-meds

doglick

Posts: 208

Member

Not only did doxy burn, but I made the mistake of doing some welding unprotected. Every bit of skin blasted with massive UV swelled up with pink blisters that hurt and itched insanely.

It took two months to heal! Arms, legs and chest.

10 times worse than poison ivy.

**********************************************

Dr. Burrascano's Guidelines- latest edition 2008[/b]

http://www.ilads.org/lyme_disease/treatment_guidelines.html

It's 33 plus pages of excellent info from one of the best LLMDs. I've not printed yet; hot off press! Betty

Dr. B's Supplement List

http://www.lymepa.org/Nutritional_Supplements.pdf

Post edited by: Bettyg, at: 01/13/2010 09:31 PM

Post edited by: Bettyg, at: 08/22/2010 10:57 PM

Post edited by: Bettyg, at: 05/24/2012 04:28 PM

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.
--- The discussion has been locked ---


04/24/2010 10:59 PM  Top
Bettyg
 
Posts: 26641
VIP Member
I'm an Advocate

CD 57 RESULTS FROM DR. BURRASCANO 4-10

*************************************

nspiker

LymeNet Contributor

Member # 22824

posted 04-24-2010 01:11 PM

I attended a lyme conference this last week, where the famous Dr. B. spoke, and this is what he said about remission.

He spoke about testing CD57 in lyme patients, and a good range is 120-157.

Most lyme patients start out in the 20-40 range, and the sickest are lower than that.

His statement is that if a patient has CD57 of 120 or more, than they are in remission. This subset of the natural killer cell count is the best indicator of remission.

My take on what he said is that we "may not" ever get rid of all the bacteria or parasites, he doesn't know for sure, but our immune system is able to hold them in check, and we can live healthy lives again.

--------------------

CFS; CMV, EBV, HHV-6, coxsackie, mycoplasma hominis, toxoplasmosis, and positive 31 epitope for lyme

Posts: 131 | From san diego | Registered: Oct 2009

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.
--- The discussion has been locked ---


07/24/2011 02:53 AM  Top
Bettyg
 
Posts: 26641
VIP Member
I'm an Advocate

up to top for newcomers to read

betty....LOCKING this so it remains his info only; NO questions, etc.

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.
--- The discussion has been locked ---


01/29/2012 10:07 PM  Top
Bettyg
 
Posts: 26641
VIP Member
I'm an Advocate

PUTTING LYME BEHIND YOU

MARCH 20, 2011 dr. burrascano's lyme talk/dcd below

http://www.lymedisease.org/lyme_store/ lyme_store_burrascano.html

http://sonyafightslyme.blogspot.com/2011/03/burrascano- notes-from-march-21st-talk.html

bettyg, leader/iowa activist

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.
--- The discussion has been locked ---


Share this discussion with your friends:
Members who viewed this page also read:

LymeLyme Disease ForumsLyme Facts08 Dr. Burrascano's Lyme Guidelines & Supplements

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.
Contact Us | Bookmark Us | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | MDJ Advocates | Advertise
Copyright (c) 2006-2013 MDJunction.com All Rights Reserved