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05/22/2008 17:48
Juelz1981
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Well, after walking away from treatment last December... I finally went back to my great doctor yesterday. I forgot how great he is... anyhoo...

After 1.5 years of oral antibiotics (I've been on them all, mostly 2 or 3 at a time), and 3 to 4 months of bicillin IM injections 3x a week I could not tell if I felt like crap from systemic candida or the lyme anymore and my body needed a break. I have still had mainly neurological symptoms since I stopped treatment, but I muddle my way thru it. I'm tired, achy, can't remember anything, and when I talk I feel absolutely NO connection to anything coming out of my mouth. I know I'm speaking okay, I'm just not sure all the time.

I've been thinking that I've had lyme for years now and my immune system has kept it at a low level. I think the tick bite that I saw that gave me Babesia is what made me go downhill fast. And my doctor agrees since of my unsuccess with oral and IM antibiotics.

We did another lyme test (igenex) to prove to my insurance company I still have lyme before the next round of treatment which will be IV for 6 months. He still thinks I have candida since I have a white coating at the back of my throat and my mouth tastes AWFUL in the morning (I literally sprint to the bathroom to brush my teeth in the morning). Does anyone else have this? Back on track - So he started me on 2 anti-fungal meds (Nystatin & nizoral) while we wait for test results. Also, the anti-yeast help prep the lyme for the antibiotics.

I also was given a magnesium IM injection cuz I've had a little insomnia as of late and I have to take 2 magnesium pills nightly to help me sleep. I have to say I slept like I haven't slept in weeks last night. I also will be taking daily:

B Complex

Folic Acid - 400mg

Acidopholis in the AM

Multi strain Probiotic in the PM

CoQ10 daily - 100mg

Fish Oil Daily - 1000mg

I'm worried about the IV, but I feel mentally and physically prepared to do it. My doc doesn't think the break was bad for me since it allowed my body to detox and rest from the years of antibiotics. Now I feel like we have a clean slate to erradicate the Spirochetes!

Is Rocephin (Sp?) the only IV antibiotic? What have you all experienced? Any suggestions? Do PICC lines hurt? Any words of wisdom? I HATE needles and IVs... I swear I can feel them in my arm. But, I'm prepared to do what it takes to feel like my old self.

Any input would be appreciated!

Thanks in advance.

Cheers,

Julie

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05/23/2008 10:45
Nugget
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I did Rocephin, didnt do much good for me. The PICC line didnt hurt, installation was painless, and the day to day stuff with it was o.k. as well.

Hope you do well with it.


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05/26/2008 16:07
Mizuiro
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I currently have a picc line. It's numbed but I wouldn't say insertion was painless. Once through the numbing shots though it feels strange but not painful. Mine was very tender for a while after and I need help with washing my hair but the only complications for me were just adhesive allergies. I go to the hospital once a day and get Rocephin and have noticed a huge difference. I have noticed some herx reactions but haven't had the nausea that I did with doxy. Hope this helps and you can start feeling better.

Jessica

Smee: I've just had an apostrophe.
Captain Hook: I think you mean an epiphany.
Smee: No... lightning has just struck my brain.
Captain Hook: Well, that must hurt.


"Hello in there Cliff. What color does the sky happen to be in your little world?"


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07/17/2008 09:19
Juelz1981
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Thanks Jessica. I think my home care will start in the next week or so. Seems as though the insurance red tape is holding everything up! I'm happy to hear that you are improving on Rocephin, that's awesome! How long have you had lyme before you started IV?? I hope I have similar results when I go to 2x a day, 4 days a week. I've only been doing the IV 1x a week because my doctor is in NYC and I'm in CT... but I feel great after I have it! I'm so pumped to start!

Regards,

Julie

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