I'm new here, I joined the forum to ask about Samento. I've been ill for almost 4 years, 'diagnosed' with CFS for about that time and then in July this year I found out I have Lyme disease.

I'm taking Samento which I do feel is helping, I am getting better - managing to do a bit more, taking less time to recover from activity etc. - but I have horrid reactions to it. Dreadful headaches, other aches elsewhere in my body, this almost drugged feeling of sleepiness, nausea that prevents me from eating much.

I was wondering, has anyone else experienced these kind of things, stuck with it and either recovered or greatly improved? And - I guess this is probably different for everyone - how long has it taken?

Thanks!

Hi Ron, you bet right! lol

I have been taking Samento for two months now, and I know what you mean. My doctor also added doxycycline last month, so basically I have been feeling pretty beat up and sick for the last two months. I assumed it was a herx reaction, but I do wonder because it has lasted so long. I will be discussing it with my doctor when I see him next week, to get his opinion.

Take Care,

Barb

I also take allicin which helped me pretty quickly - over about 4 months last year I made huge improvements, going from bed 50%+ of the time to managing out several times a week, walking, reading again etc. I'm still taking the allicin but had added the Samento because it's supposed to target the cystic bacteria.

Have actually been told I don't have Lyme for definite, but a borrelia-like bacteria, does anyone know the difference?!

Thanks!

I have been taking Samento for about 7.5 weeks or so now. When I first started taking it, I had a severe reaction. It was rough. I started Herx'ing almost immediately, and I was taking it with Lauricidin. I'm not sure which caused the reaction, but I can tell you it was tough. I took 1/4 scoop Lauricidin and 1 drop Samento twice a day for 3 weeks, when I finally started it again before I was able to increase it, cuz I had a small Herx the second time. I was able to live with it.

I took 1/2 scoop Lauricidin and 2 drops Samento for 2 weeks before increasing the next time, the Herx only lasted less than a week, and it was very mild.

This last time I increased, I went to 1 scoop Lauricind and 3 drops Samento and have been on that for a little over 2.5 weeks. The Herx has been rough, lasted about 2 weeks, but I've managed to deal with it. There have been times I wanted to be done, but I kept on with it. It was manageable. But just barely. I'm finally feeling better. I've also been really stressed during this last Herx, tho, which I think had a major bearing on it!

I do think I'm feeling better in general, tho, from the Samento, tho I know I have a very long way to go. I've had Lyme for about 14 years, as far back as I can trace. I can remember that first flu-like 3 weeks I struggled, and it was so bad. And that was 14 years ago. So, some of how long you will take to get better really has a lot to do with how long you've suffered. IDK what borrelia-like bacteria means, but to me, it sounds like you have LD...IDK. Maybe someone else here can help you on that one!

Hope you get to feeling better really soon. If you need someone to talk to, I'm around!

*hugs*

jen

Take it slow, so you don't feel too bad.

Barb