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Tina, pm me, curious on which doc in PA you spoke to... I see one in PA, and know of 2 others that are great. Also, you have to know that mostly lyme is a clinical dx. meaning, based on symptoms. same with co infections. most LLMD's can tell if you have it just by your symptoms. I will copy and post the list of symptoms here, then you print that out, and mark each one you have or have had in the past since you think you were infected k. if you don't know what some of them mean, look them up. There's one I didn't think I had, but really do, regarding my brain... yes, I have it in my brain and nervous system as well...I will never be 100% I hate this disease! Borrelia (Borreliosis, neuroborreliosis; also known as Lyme Disease) Spread primarily though the bite of infected ticks that live on a wide range of mammalian species; secondary human-to-human transmission through semen, breast milk, and possibly in utero Bladder dysfunction Burning or stabbing sensations Cardiac impairment Change in bowel function Chest pain Confusion Depression Difficulty thinking Difficulty with concentration and reading Difficulty with speech, writing Difficulty finding words; name blocking Disorientation: getting lost, going to wrong places Disturbed sleep: too much, too little, fractionated, early awakening Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity Exaggerated symptoms or worse hangover from alcohol Eyes/Vision: double, blurry, increased floaters, light sensitivity Facial paralysis (Bell's palsy) Fatigue, tiredness, poor stamina Forgetfulness Headache Heart block Heart murmur Heart palpitations Heart valve prolapse Increased motion sickness Irritability Irritable bladder Joint pain or swelling Lightheadedness Mood swings Muscle pain or cramps Neck creaks & cracks Neck stiffness, pain Numbness Pelvic pain Poor attention Poor balance Poor short-term memory Problem absorbing new information Pulse skips Rib soreness Sexual dysfunction or loss of libido Shooting pains Shortness of breath; cough Skin hypersensitivity Sore throat Stiffness of the joints or back Swollen glands Testicular pain Tingling Tremor Twitching of the face or other muscles Unavoidable need to sit or lay down Unexplained breast pain Unexplained fevers, sweats, chills or flushing Unexplained hair loss Unexplained menstrual irregularity' Unexplained milk production Unexplained weight loss or gain Upset Stomach or abdominal pain Vertigo Wooziness Babesia (Babesiosis) Babesia is a protozoan spread by ticks, blood transfusion, and in utero. Despite there being 13 known forms to date, current testing only looks for two of them. Air hunger Cough Fatigue Fevers Headache Hemolysis Imbalance without true vertigo Mild encephalopathy Shaking chills Sweats Bartonella (Bartonellosis, also known as cat scratch fever) Spread by bites from infected ticks and in utero abnormal liver enzymes encephalopathy endocarditis flu-like malaise headache hemolysis with anemia hepatomegaly high fever immune deficiency jaundice lymphadenopathy myalgias myocarditis papular or angiomatous rash somnolence sore throat splenomegaly weakened immune response Ehrlichia (Ehrlichiosis) Bites from infected ticks elevated liver enzymes headaches myalgias ongoing fatigue persistent leukopenia thrombocytopenia Please do not take anything I say as medical advice. I am not a doctor.
~lyme disease support group leader~
please pm me with any special concerns |
"I am so happy to be a part of the MDJunction family! Where I used to be alone, I now have friends whom inspire me, comfort me, support me, and do not judge me. My new life began October 17, 2008. I weighed in with severe depression, social anxiety disorder and avoidant personality disorder. I was born with complications but I am fighting for my life and I will survive!!" (apieceofwork)
