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buckron
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Pamela, Thats another debate cats claw vs TOA free cats claw I am on TOA free and it has saved me from a lot of misery.In fact i would say i am well now..but my symptoms are stubborn and return.I have an excellent source for essential oils and i am going to PM You on that! Other members may also have great sources..  Ron |
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jaime1978
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I'm sorry you're having such pain. I know it's aweful. I've had flat out hideous pain for years now. nothing really takes it away, just kind of takes the edge off , if I'm lucky. neuro pain is pretty common with lyme, and can be just insaine. I know you can really start to feel desperate, scared, depressed, sometimes it seems as though it will never end. But I can tell you I know a lot of people who have gotten well. I thank our well members so much for sticking around and giving hope. When you're on the forums it can sometimes seem hopeless, seems like everyone is sick and going nowhere, but I've been around a while, I've seen people come and go. Usually once thier well, they go on with thier lives. Rest assured, it does happen. as far as cats claw goes, I know in Buhner's book , something like "healing lyme disease and co infections naturally" he says it DOES NOT matter if it's TOA free or not. I go by that. But I'm sure the jury's out on that one too, seems that not much with lyme is set in stone. if there's anything I can for you, please feel free to pm me. warmest regards, jaime Please do not take anything I say as medical advice. I am not a doctor.
~lyme disease support group leader~
please pm me with any special concerns |
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Julie4848
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Have you tried Lyrica, it did help me for awhile (side effects were awful for the 1st two weeks) I stayed on it for 3 months, took the knee and neck pain away but then went off it due to the weight gain...But it really helped my pain... Lyme will not win, we will and we WILL… |
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Julie4848
Posts: 1367
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Jaime is right. When I first joined over a year ago I thought I was on my death bed. I'm well and doing very well and have stuck around so people know they can get well, it takes time and sometimes lots of it. I and my doctor believe I'm in remission, I will take that... Please try and understand being depressed is part of this awful lyme, I still get depressed when I feel bad and I think its showing it face again... Prayers Julie Lyme will not win, we will and we WILL… |
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Bonski
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I wonder if magnesuim would help. I found this site http://www.calmnatural.co.uk/magnesium-deficiency The first symptoms of magnesium deficiency can be subtle. Most magnesium is stored in the tissues, so leg cramps, foot pain or muscle ‘twitches’ are usually the first signs. And if ignored, some of the other more serious manifestations of Magnesium deficiency (mentioned below) can develop. It goes on to say that other symptoms are muscle tension, spasms and cramps as well as so many other lyme like symptoms..low energy, fatigue, weakness hormonal imbalances, insomnia, abnormal heart rhythms, headaches, anxiety, irritablity. I read as well that Lyme bacteria use up the magnesium in your body so it's one of the most important suppliments you can take. They recommend starting with the recommended daily dose of magnesium and then increasing it until you get the runs. Then back off. That's at this site. http://www.txldabb.org/forum6/101.html It's not a medical site but has some good info. I just started today. If it seems to help I'll let you know. Bonita |
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fluffyluggage
Posts: 1278
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I think Bonski's really onto something there, too. I was reading up on Dr. Burrascano's guide, and he says that magnesium deficiency can really cause major neuropathy and other nerve problems. Also, if you have been diagnosed with FMS or CFS, they recommend a dosage of 1000mg mag + 750mg cal for supplentation. But I recently read something that stated if you have vit D in there, it's a better supplement. Dr. B recommends a specific brand and says you can get it at Wal-Mart, so I'm guessing it's fairly cheap! LOL...So, maybe you want to read his guide and see what it says on the matter? I can get you the link, or you can google Dr. Joseph Burrascano and/or "Advanced Topics in Lyme Disease." Good luck, I know I suffer form a lot of the same symptoms, and I know I'm not getting enough magnesium, but the supplements I've tried have been really difficult to get down. They're like darn horse-pills, and I have esophageal stenosis, which I've already had one surgery on, and can't afford another! I just can't get that much down, and I can't find a supplement that comes in a high enough dosage, and the liquid mag--EEEEW! Blech! Foul stuff, it is!  *hugs* Jen Just because it's impossible doesn't mean it can't happen.
I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help.
I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!
The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days. |
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Bonski
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Jen, I think I remember reading that there's liquid magnesium available. I have a hard swallowing chalkie pills too. And the filler in the chalk ones are like clay, and can be hard on the stomach. The gelatin type ones aren't as bad. That's the kind I bought. I sure hope it helps, I have almost every symptom of magnesium deficiency! Bonita |
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cmany
Posts: 561
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Yes Bonita - there is Liquid form. And it tastes awful - well it is suppose to. If you get it and it tastes like water, then you are severely deficiant. I know what I am and I know what I am not
Never put it past this disease to be the culprit - but we also cant brainwash ourselves into believing that it is the only thing |
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wellinwisconsin
Posts: 31
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Actually it was higher than 75 drops a day. I took about 25 drops per dropperful X 5 dropperfulls which is 125 drops 3 times a day! So the total was more like 375 drops a day!!! I did this for 2 1/2 days until the bottle was gone. I am not advocating that anyone does this but I have to say it made a HUGE difference in my nerve pain. I have read about a study done with rats where they gave the equivalent of about 313 drops a day for 28 days and the rats had no side effects. I definitely had side effects. I felt really tired and sick and my neck was killing me. But I was able to take a walk with my husband for the first time in 2 years. And that was on NO PAIN MEDS. The positive effects lasted off and on for 1 month. Now I can barely function with 3600 mg of gabapentin a day. It makes me want to try the Samento again. I only wish I knew if there were long term side effects. |
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buckron
Posts: 537
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OK Guys found something This morning my hands were really sore with neuropathy (that basically is my only symptom now) I always use Lemon essential oil on my belly (liver area) this time i put it full strength on the back of my hands,it instantly penetrated my skin and was doing its work, pain was gone in about 2 mins,It works for me so please give it a try the back of the hands are not as sensitive as other areas..some may need a carrier oil to mix..but mix it as strong as you can tolerate..i am thinking 25% lemon |
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"I have been struggling with Fibromyalgia, Bipolar, Anxiety, Post traumatic Syndrome for quite some time and pretty much going it alone. I stumbled across MDJunction by accident. I stayed in the shadows and just watched for four days and then I joined, feeling relieved and excited to have found a safe place with alot of folks that I could relate to . It's proove to be medically and emotionally
