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jaime1978 Posts: 2399
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you want to know something even more funny bout Bush? the secret service or someone from the white house called a doc in CA, a well known one, and I know this because a friend of mine goes there and he told her when she asked about the whole thing, but they called him asking how he would go about treating someone with LD. This was before it came out that Bush had LD. They didn't say he did, just a "curiousity call" basically. there's a lot of hush hush going around. let's keep our poor military in our prayers shall we. and yes, ID docs are THE WORST for the most part. most are not well versed in lyme. that's why we have sites like this! Please do not take anything I say as medical advice. I am not a doctor.
~lyme disease support group leader~
please pm me with any special concerns
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ConnieD Posts: 808
Member
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So very interesting. I was hoping, like one of the interviewees in LAB 257, that Washington had a kind of 'antidote' to Lyme that they were keeping secret... Not looking good. However, we can still get well. I did. Others have gotten well, too.  Please do not take anything I say as medical advice. I am not a doctor.
Open your mind to the possibilities available to you.
An attitude of gratitude is good 'medicine,' too.
~Lyme Disease Support Group Leader~ |
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Julie4848
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It has been in our news a lot and all my magzines about Lyme...Jim and I were just talking that two years ago we never heard about lyme...It is becoming populer (Which I think is a good thing).. I have to say my ID doctor is the one that ordered the Igenx test, when I saw him to thought I had lyme and him and my family doctor started ASAP to treat it...After I was done with 60 days of abx and still not feeling better they said it could be a year on them...So I have to say my ID doctor was good...I was lucky I guess... Julie |
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Clayton72 Posts: 508
Member
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Glad you had a good one, Julie! I had some specialists at Mayo as well as some well known ID's try to get a hold of me when I found out I had Lyme and they all told me there's no such thing as Chronic Lyme. I just thanked them for offering their help and went on my way! |
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Julie4848
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Sad world we live in with doctors...If they were the ones sick they would say there is "Chronic Lyme"...Let them suffer the way we do/did then they would see the real world of lyme... J |
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beauty4ashes Posts: 860
Senior Member
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Good luck, Monday! Vent away,.. I love the way you put things,.. makes me feel better actually! You're coming up with perfect analogies that I am feeling, but can't quite correlate between my brain & my actual words, so keep 'em coming, please! My doctor won't even see me. They called me and canceled my appt., told me not to bother coming in unless it was for something OTHER than LYME. I am now having to go out of network & out of pocket to be seen. I guess I should look at it as somewhat of a blessing... since my docs won't help me, at least now I get to choose my own LLMD. This is me trying to pull my head out of the furnace and back into the cliuds, I guess... Where's that silver lining again?? Let's hope I don't go bankrupt in the process of trying to get better though.............. Can somebody remind me WHY do I have insurance??? (((hugs))) I am NOT a doctor in any way, shape or form, and
any information I share is soley based on personal experience &/or research. Please do not take anything I say as medical advice, and anything you decide to take into account, I urge you to discuss with your health care provider before you consider proceeding. ______________________
Favorite Quote:
"I know God will not give me anything I can't handle.
I just wish he didn't trust me so much."
- Mother Teresa |
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beauty4ashes Posts: 860
Senior Member
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Clayton,.. funny you mentioned Mayo & their response,.. I was just reading info on them vs Lyme a couple of days ago, and found that they are so well known for their opposition on Lyme that Lymie's now refer to them as "hold the Mayo", LOL  I am NOT a doctor in any way, shape or form, and
any information I share is soley based on personal experience &/or research. Please do not take anything I say as medical advice, and anything you decide to take into account, I urge you to discuss with your health care provider before you consider proceeding. ______________________
Favorite Quote:
"I know God will not give me anything I can't handle.
I just wish he didn't trust me so much."
- Mother Teresa |
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shortangle2
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Just wanted to share some info with Hambolio. If you aren't already aware of it, there is a lyme support group for military personel, active and retired. The basic info can be found at: http://www.lymenet.org/SupportGroups/UnitedStates/Alaska/
Military.shtml I know a couple of people who belong and it seems to help them a lot to have other military to talk to. Beauty, If I may suggest, since your doctor's such an a**, don't go in to see him for lyme, go in to see him for the individual symtoms. I'm not sure what symptoms you're having, but if, for example, they're neuro, insist he figure out what's going on. Have him send you to a neuro and get tested. If your joints hurt, are swollen, make him treat for that and if he can't figure out why you have that problem, ask to see someone who can. Some docs are so hung up on the word "lyme" the only way to get treated is by dealing with symptoms alone. The word lyme isn't that important if you can get things treated. The hope is at some point, a specialist can be talked into a test or a further referral to a more helpful doc. This is not an uncommon approach for people to use in order to get treatment, especially a few years back. Good luck. |
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cave76
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An old saying ----and I have NO idea what it means! ---- There's more than one way to skin a cat! What shortangle said speaks to that. A person doesn't have to LIKE their doctor! That doctor doesn't have to BELIEVE in Lyme. But there are ways to get SOMETHING from him---- if only yet another test that shows normal.  USE HIM. The more tests you get the better. (Of course, if a person doesn't have insurance, that's a crappy situation!) The more tests that show you DON'T have XXXX the better, if only for your own piece of mind. Then you can use those tests to show to a Lyme knowledgeable doctor when you find him. On paper (lab tests) I look like the healthiest person in the world. NOTHING wrong with me! I'm beginning to say that if a person is sick and his lab tests are all normal----- then that's a sure sign he has Lyme. LOL Take lemons and make lemonade. [sorry, just repeating what shorty said in another way. It bears repeating, though.] |
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steelers Posts: 886
Member
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Connie could you tell me what steps you took to rid yourself of this bloddy disease? |
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