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Evan (18) had a 6 mo trial about a yr ago--helped him--he has low IGG and IGM and we can never be sure if its because he is gestational Lyme ( I contracted while about 8 mo preg with him) or if he wouldve inherited this anyway or he developed this while the Lyme etc wreaked havoc all those yrs unknown. Be aware its risky--it is a blood product and known for severe allergy reactions--even after doing it ok for awhile--and if they insist on also giving you steroids--think twice--the steroids can make Lyme worse!! For Evan we simply watched him very carefully- it helpes to pretreat with Benadryl (IV was too strong and made brain fog worse), which will prevent some allergic reactions we think he was helped but insurance refused another course and so far we cant find a Dr to Rx it again--which may be his best hope--they all say his levels are "low but not low enough" yet abnormally low--go figure--being deathly ill and bedbound for 3 yrs at his age isnt sick enough?? IvIg may not do anything about the Lyme sx OR it may just help your body fight better--hard to tell..for some its 2 different unrelated things..indeed theyre finding out that some with less aggressive immune systems actually do better--its the very weak immune systems and the very strong that cause the most problems for many ( the guess is that if your "army" fights too hard it will cause too much collateral damage and also more obviously if the army is lazy you wont fight it at all) good luck Finette |
