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liamacker"The part of my recovery plan that I would say made up 80% is MDJ. I suffered a lot prior to finding MDJ, felt alone and had no one to talk to who really understood me. In the Bipolar Group I found like minded individuals who I could relate to and who offered support to me when I needed it. As I recovered, I could then offer support to them which gave me a good feeling about myself. I have met some great people here who I would class as good friends and know I would still be in the slump I was in without them. Now I am stable, I know that MDJ plays an important part in keeping me that way. Thank you MDJ for being there for us all and making us no longer feel alone." (liamacker)

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Lyme Disease ForumsLounge - Off topic discussionsI'm Back! Missed you!!
12/07/2008 10:22 PM
beauty4ashes
beauty4ashes
 
Posts: 860
Senior Member

The vacation was good,.. started out one bad piece of luck after another, but overall turned out to be really, truly wonderful, and a much needed escape for me & the fam! I will post in detail as soon as I get the chance, but wanted to let you all know that I made it back safe & sound last night.

My youngest has an ophthalmology appointment in the morning so need to try to keep my time on here to a minimum tonight. May post on a thread or two, but then going to hit the hay for the night. Tell you all about the trip hopefully sometime tomorrow afternoon or evening, my time, of course. Wink

Missed you guys BUNCHES!!

(((BIG HUGS))) & loves~

me

I am NOT a doctor in any way, shape or form, and
any information I share is soley based on personal experience &/or research. Please do not take anything I say as medical advice, and anything you decide to take into account, I urge you to discuss with your health care provider before you consider proceeding. ______________________

Favorite Quote:
"I know God will not give me anything I can't handle.
I just wish he didn't trust me so much."
- Mother Teresa
Reply

12/07/2008 11:19 PM  Top
fluffyluggage
fluffyluggage
 
Posts: 4723
VIP Member
I'm an Advocate

Soooo glad to have you back, and glad you had a great time. Sorry to hear it was a little iffy to begin with, but I'm glad it turned out good overall. It's funny, cuz you were on my mind today, so great minds must have been thinking alike! LOL Wink *hugs*
Just because it's impossible doesn't mean it can't happen.

I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help. I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!

The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days.

Something has changed within me/Something is not the same/I'm through with playing by/The rules of someone else's game/Too late for second-guessing/Too late to go back to sleep/It's time to trust my instincts/Close my eyes and leap...I'm through accepting limits/Cuz someone says they're so/Some things I can not change/But till I try I'll never know/Too long I've been afraid of/Losing love I guess I lost/Well if that's love/It comes at much too high a cost/I'd sooner buy Defying Gravity/Kiss me good-bye I'm Defying Gravity/I think I'll try Defying Gravity/And you won't bring me down...
--Defying Gravity (Glee Cast version)

12/08/2008 04:27 AM  Top
mem6757

Hi Tahnee,Nice to see you have returned,Its cold here in the NE and snowing every day,temp dropping to 0f this afternoon with high winds,wood stove is inches from me..whats it like in the west?

Ron Smile


12/08/2008 04:30 AM  Top
Julie4848

Welcome back:

Glad you had a good time....I love going on vacation...Smile


12/08/2008 05:09 AM  Top
dharma79
dharma79
 
Posts: 1180
VIP Member

Hi!

We missed you too! Glad you are all home safe and sound...can't wait to hear all about it!

Kissing

I am in no way a medical professional...
Just a patient for 15 years...

Here to share, learn and support those that seek to do the same!

United we Stand...Divided we Fall!

Previous discussions I participated in:
Anyone else?
My Story
diagnosing lymes

12/08/2008 10:23 AM  Top
Bonski
Bonski
 
Posts: 176
Member

Welcome back!!

12/08/2008 12:42 PM  Top
cmany
cmany
 
Posts: 6205
Group Leader
I'm an Advocate

I missed you SOOOOOOOOOOOOOOOOO much - so glad to have you HOME safe and sound...here and there!!!

Hugs and kisses!!!

[b]Group Leader Disclaimer[/b]
First and foremost - I am NOT a doctor, anything I share is based on experience & research. I strongly encourage you to discuss any and all information that I share with a health care provider.
************************
"I'm not afraid to take a stand
Everybody come take my hand
We'll walk this road together, through the storm
Whatever weather, cold or warm
Just let you know that, you're not alone
Holla if you feel that you've been down the same road...
And I just can't keep living this way
So starting today, I'm breaking out of this cage
I'm standing up, Imma face my demons
I'm manning up, Imma hold my ground
I've had enough, now I'm so fed up
Time to put my life back together right now" Eminem Not Afraid

12/09/2008 05:38 PM  Top
beauty4ashes
beauty4ashes
 
Posts: 860
Senior Member

Aw, thanks you guys, I missed you, too!! It feels SO GOOD to be missed by others, THANK YOU SO MUCH for that!!!!

Well, I typed up my update and it is not just a mile long, but MILES long.... my diary hasn't been working, even before I left on vacation, it wouldn't post new entries no matter what I tried. So, I'll paste it here for anyone who wants to know all the gritty details of my last 2 weeks, LOL,.......... and has the time & gumption to wade through it all. W00t

It's also posted on my blogspot, there's a link on my profile... pictures will be added there soon, and there's lots already there in previous posts for anyone wanting to dig around and get to know me better! Wink

Anyway,.... here goes:

Well, we made it back safe & sound from our holiday vacation, and what a ride it was!

It seemed that things were not meant to go well for our departure as thing after thing went haywire, but everything still turned out.

I had a last minute doctor appointment the day we were to leave, in order to get my pain medication so I could be comfortable for the trip. I didn't know how else I was going to pull it off in the shape I had been in for the last couple of months. Well, the appt. that should've only taken a half hour, ended up with me there for THREE hours.

First, when I got there I had to stand in line behind several people while the only two counters that were open dealth with uncooperative people. One chatted away on his cellphone and the other chose to fill out a survey right there after being ask to do it elsewhere. Neither would budge until they completed their tasks, and neither of those tasks had anything to do with being at the check-in counter. GRR! I finally made it up to the counter 20 minutes after I was supposed to check in. She calls back to see if they would still see me then tells me they would because she told them I had been waiting in lin for 5 minutes... I told her how long I had been in line, and she was like, "Oh."

Once I finally got into the exam room, I was asked if a graduate MD could come in for my initial evaluation, and I said okay. I've done this before, it takes only a few minutes, then you see your primary physician. That did not end up being the case. I got stuck with this woman the entire time, and we had argument after argument about my symptoms and what was causing them. She would insist it was this or that. Then moving on to the next thing, well everything is caused by that instead. Blah, blah, blah... She was convinced that all of my eye pain, headaches, ear pain, neck pain, back pain, etc. was due to muscle spasms. Then, she was convinced it was chronic sinus infection and that I probably had fluid in my ears. I told her my ears always look textbook perfect according to all of the other doctors who have checked. She didn't believe me, again acting like I was nuts, but when she looked and saw I was right, all I got was "Oh."

Then, she jumped tracks back to my thyroid. I told her I just had my levels checked the week before with the ND, and they were still high. I also told her that he felt I was no longer converting T4 into T3 and I should add in Cytomel along with my Synthroid. Cytomel is active T3. She had no idea what I meant! I also told her that the pharmacy wasn't going to cover my script for the T3 because it came from a physician outside of KP so instead of $10, it would cost me $100, unless my PCP would sign off on it. I was told "no". I was informed that they would not consider results from another doctor or another lab, only their own so I needed to have them done again there. I told her I would, but that I was leaving that day for 2 weeks, and wanted to try the Cytomel... that I was going to fill the script either way. She then got aggitated and told me she thought I needed to make a choice on seeing one doctor or the other, not both, then basically made me feel like she wanted to show me the door. But,.. I wasn't budging.

I told her about all of the neurological symptoms I've been having. The brain pressure, the electrical pulses, shocks, stabbing, tingling/numbness, hot spots, mis-speaking/spelling inversions, etc., and that I wanted a referral to a neurologist for an MRI. She told me that my thyroid & sinuses could cause ALL of those symptoms, and that the neurologist would not see me until we get those things all sorted out. I told her these things were happening even when my thyroid was within "normal limits" and I was on anti-allergens, and they are getting progressively worse, I've never had an MRI ever and want a baseline done at the very least. I wanted to slap this woman!

She also said that they would not consider referring me to a neurologist unless my symptoms became so debilitating that I was having trouble getting around & getting out of bed. My jaw hit the floor & I just looked at her, and then pointed to the chair in the corner. I asked her, "Haven't you been listening to me? Did you not see me hobble in here using that cane?? Did you not hear me say that I have been steadily declining especially in the last 2 months, and have been near bed ridden for the past month? How about the fact that I had to use a mobility scooter just to take my kids trick-or-treating, and am having to take it on this vacation just so I can go? How about that I now qualify for a handicap parking placard?? You don't think any of these things warrant being further evaluated??" I couldn't believe she was going to deny me the referral. She went out and consulted with my PCP, then came back, and indicated my PCP was concerned and would consider the referral. I was getting such a headache by this point!

This graduate MD still insisted my eyes are just a result of these other things, too, and don't need to waste time looking into other considerations, despite my telling her that I am also at high risk for Glaucoma due to the Grave's Disease, and that my pressure has been testing high so I according the the KP eye doc I am required to be closely monitored. I didn't bother telling her I already set up an appt. with my optomitrist, and certainly wasn't going to bring up the Lyme again yet, although they did bring up my titer was still in my lab orders,,, Funny, the nurse was also a lot nicer about it after I complained about her behavior to Member Services).

So anyway, she was fed up with me and was ready to leave, and I asked about my pain meds. She went and asked my PCP, who apparently is chapped with me (because she wouldn't come see me herself) for questioning them about everything (Um, what's that quote I'm so fond of? "Unanswered questions aren't nearly as dangerous as unquestioned answers", and I firmly believe that, too). She comes back and I tells me they already approved it the day before. I had to then remind her that, no, they only gave me a quantity of 10 which would only last a few days, not 2 weeks, and I was told if I came in, I would get a month's supply. I only ask for them if I'm going on a trip, and for the length of time I will be on the trip. So, my PCP finally comes and gives another script for another 20 Oxycodone. She says fill them both, despite my objection to TWO separate copays for ONE month's Rx. It was a losing battle. They still refused to sign off for my Cytomel.

Next, I went to the lab where I quickly found out that the orders were all wrong, and the technician had to try to get it straightened out with my PCP first. She refused to come out to speak with him personally, and made us wait a half hour for her call. After that, I still had to go to the pharmacy, and they flipped out over me getting hit with two copays for one month's script... no one could figure out what the H-E-Double-Hockey-Sticks my darn PCP was thinking with all the screw-ups. I already had a number of other scripts I had filled along with those, plus some the previous day as well. The pharmacy turned out to be another long story in and of itself so let's just say it got straightened out and I got my meds.... this is already a mile long and we haven't even gotten to the part where we actually left on the vacation yet!

By the time I left KP, I was still supposed to run the ND and get my order for the parking placard to take to DMV, but... there wasn't time. I had just enough time left to go fill my Cytomel at the other pharmacy, and get the dogs down to the boarding kennel before they closed for the day. I was exhausted & in so much pain I was fighting tears. I finally got back to the house and we set to loading up the Tahoe with the scooter & all of our luggage, and we hit the road.... just after 6:00 PM. Only 4 hours beyond our goal. *sigh*

We stopped to grab a latte at Starbucks, and then, heading down the highway while caught up in the whole convo of my crisis at the stinking doctor's office, Scott missed our turn for the freeway. Finding a spot to turn around, well, my coffee sprouted wings and flew from it's cradle across my lap, down my leg, and onto the floor, splashing everything within about a 2 foot diameter. Oh yes, this vacation was off to a GRAND start!

In all haste, I also had forgotten to take my pain pill that I had to fight to get, and the whole reason we were late in the first place.... Oh, but it gets better. A few hours later, we stopped at a rest stop specifically so I could get my pain pills, and low and behold..... they weren't there! Yuppers, it's the ONE single, solitary bag that didn't make it into the truck! It was still sitting at home! We had to decide whether to lose time & money driving all the way back home, or continue on and try to figure something else out. We decided to continue on, and see about having Scott's dad go to the house and then overnight them to us at the first hotel. Of course, we were forgetting that the following day was Thanksgiving and therefore it was a 4-day holiday weekend with no shipping available. This trip was looking better & better with every passing moment,.... and in case it isn't clear enough, that comment is LOADED with sarcasm. *sigh*

Around 3:30 AM, about 30 minutes outside of Vallejo (Our initial destination, but not the primary), we were getting very sleepy. And then, we saw emergency lights up ahead that spread across the interstate. No doubt, someone had fallen asleep at the wheel. The only thying left was the lower framework of their car. The rest had completely sheared away in it's tumbling. Bodies lay covered with blankets on the ground, and I....... lost my composure completely. All I could do was cry & pray for them. (I remember on our trip a couple of years ago when we took Amtrak, a man decided to commit suicide by laying across the railroad tracks,.. and it happened to be the train we were on that killed him. I remember feeling a *bump*, but we didn't learn what it had been from until a couple of weeks later...) We finally got to our hotel just after 4:00 AM, and by 5:00 AM we were unloaded, settled into our room, and nestled in the beds falling near instantly unconscious.

Thanksgiving morning, we had to set in on figuring out what in the world we were going to do without my meds, how to get them, and so forth. Scott's dad drove to our house, but couldn't get in. He didn't have the right key. Scott was sure he had given it to him, along with others for 'just in case', but he tried them all, and none worked. I was beginning to go into a state of panic..... I just spent the week prior plus 3 hours and $200 the day before making sure I had all of them. Some of my meds, if I don't take them then within a few days my body literally begins shutting down on me, and I did not want to end up in an ER while on vacation. We were supposed to be going to dinner with family in Fairfield, but ended up canceling in order to figure out what to do. I was in tears so we arranged to go visit later that evening instead.

It was shortly after that, I calmed down and I rememered that my new LLMD (ND) had given me his cell phone number so I could reach him with any concerns while I was away. I hated to call him on Thanksgiving, and honestly didn't think he would answer. I was ready to get his voicemail and leave him a message to please call me back, but he answered immediately! He was wonderful... He called me in 2 weeks worth of my absolute essentials to the local Walgreens to get me through the trip until I could get back home. He couldn't do the Oxycodone, obviously, so he gave me a script for 10mg of Vicodin every 6 hours. Vicodin normally has never worked well for me, but now I think it was the dosing... it was always 5mg so this was twice that, and it worked very well for me! It actually worked better because it was strong enough, plus it's slow releasing so I kept feeling like I got these 'bubbles' of relief every little bit. After getting the scripts filled (PRAISE THE LORD FOR THAT!!), we went and ate, then back to the room for a much needed nap before heading over to visit family that evening. The visit was WONDERFUL.

The next day, was Scott's mom's birthday so we thought of her all the more. She would have turned 60 years old. Our trip held sentimental value because she had said shortly before she died a year ago that she wanted us to experience Disney at Christmas. We've gone before, but never at Christmas. So, we had decided to do it this year, in her honor. That's why we chose to leave around her birthday & come back the day she passed. It helped ease the pain of that week, and gave us a happier distraction. One she wanted us to have.

We headed over to Six Flags Discovery Kingdom to spend the day, but found that the holiday hours are from 4PM-10PM. Nowhere had it said this, in fact when we inquired previously, we had been told normal hours opening at 10AM. So, what to do all day now?? We went shopping, and hung out. Northern California is COLD in December... especially in the evening. We ended up only staying for a few hours. Got pics with Frosty, and other winter characters throughout the park, watched the cute sea lion Christmas Caper show, and played some Midway games. Daddy won Ashley a giant cheetah so she was tickled pink.

In one area the crowds got pretty heavy, but were moving along in each direction. It just required a little patience that unfortunately some people do not seem to posess,.... that and common sense. One family decided to push past people, heading the opposite direction that we were. I was on the scooter, of course, and so I suppose I was an easy target for pushing past because the dad & son both did this with no conscience about bumping into me as they crammed by. I stopped the scooter due to this, and worried I might run over the son's foot from him not paying attention, but then once I started to go again, the mom decided to shove past, too. She squeezed past the people in front of her and shoved her way in between, placing her foot right in front of my back tire. And you guessed it, I ran over her foot! This was not my fault in any sense of the word, SHE put her foot there by trying to push past other people.... yet she had the nerve to turn around and yell at me for running over her foot!! Honestly, I had no desire for confrontation with anyone so I just played the 'selective hearing' card and kept right on going. Hmm, does that count as a hit 'n run?? LOL Scott, on the other hand, turned around and informed the woman that she was the idot for placing her foot in front of a moving tire, and perhaps she was the one with the handicap! Okay, so it wasn't quite like that, it was more of a "What do you expect, ya numbskull??" *sigh* Will the fun vacation please step forward??

The following day, we met with collegues for business in the area, and then that evening we went to the Jelly Belly Factory for their Christmas celebration & tree lighting event.... FUN!! What a neat experience that was. They handed out free hot chocolate, cider & cookies, we sang Christmas Carols, and heard from the Mayor of Fairfield, the President of Jelly Belly & Sant Claus. Then, they lit up the tree! *Oooh-Aaah* They had a parade, a band, a bubble magician that did the most amazing things with bubbles..... and we went on the tour of the factory. We had such a wonderful time.

We, of course got our various "Jelly Belly" souveniers & candies, and pictures, etc., and then on the way out, we checked out their 'case sale', and picked up a couple of boxes of their chocolate/orange sticks. It wasn't until the following evening when had traveled on down to Anaheim, that Scott opened the boxes to check them out anf finding that one was fine but the other........ not only was it not what it said was in the box (turned out to be almonds), but it was also covered in not just fuzzy but FURRY green mold!! *ACK*

The drive from Vallejo to Anaheim should've only taken 7-8 hours, but due to fog, it took us about THIRTEEN hours. It was so thick you couldn't see the next car in front of you and CHP was providing group escorts up & down I-5.... I have never seen such a thing. Then, one of the stops we took to refill on gas and use the restrooms, we promptly pulled right back out of because it seemed everyone else had decided to do the very same thing. There were lines & lines of vehicles for gas, and there were THREE tour buses with tourists from Japan all in line for the bathrooms. Both men & womens bathrooms had lines with I'd guess about 50 or so in line for the women's, and about 30 in line for the men's, and still other restrooms had long lines forming there as well, and we were not about to stand in line waiting for the bathroom for an hour! We hopped back in the truck and continued south.... next rest area was closed... finally hit a stop, and took it. This one still had waiting lines, but not nearly as tragic, LOL..... but we still waited about 15-20 minutes for the bathroom. When in the world was our luck going to change?? All we could do was keep hoping & praying for improvement, and thinking, "What a story we have to tell when we get back!".

We spent the next few hours in bumper to bumper traffic. At one point, it took us about 45 minutes to crawl a mere 9 miles!! The drive was almost double the time it should have taken, and so we were completely exhausted. We stayed where we've stayed a couple of times before, and it was previously good. This time, the room was small & crowded (their version of a handi-cap room is to use up the space in the room by making only the bathroom large & open), the floor was yucky, the water tasted like chlorine, and the mattresses were hard like boards. There were no extra blankets or pillows, we had to ask for everything.... it was disappointing, BUT we were determined to have a good time despite everything seemingly falling against us. I honestly kept waiting for some major disaster to happen because it just seemed like we were not supposed to be there, LOL...

The next 5 days were spent as Disneyland & the Disney California Adventure theme parks, we had great fun! It wasn't crowded by any means so we got to enjoy all of our favorite rides over & over again. The scooter was a huge blessing. I could not have made this trip this time without it. On most rides, we had to go in through the exits, which is the wheelchair accessible side, and so one perk to my bruised pride in having to use the thing, it did skip some of the longer lines for us, although there weren't many that got too very long anyway. The girls got brave and tried many of the rides that they have previously vowed they would never do, LOL,.... and now are their favorites! Ashley started out being afraid of Space Mountain, but ended up wanting to go on it repeatedly. Same with Grizzly Bear Rapids,.. she always hated the two, big, waterfall drops, but now she loves it, and was even keeping both arms up in the air for them! She wanted to go on the Mali-Boomer, but is a couple hairs too short........ we were stunned she wanted to do it. She opted out on the Tower or Terror & Screamin California, but Courtney loved both. Brittney loved Screamin California, too. It was so great to be able to go on almost all the rides all together as a family instead of having to split up like we have previously to take turns because not everybody would go. We had to do that with a couple of rides, but that was it so it was wonderful! The kids got lots of autographs & pictures from/with many Disney/Pixar characters. We lucked out with the new Pixie Hollow, too. The wait line averaged 45 minutes to 2 1/2 hours, but the morning that we went, it was the first place we headed for when they opened so we ended up with only about 20 minute wait. To our disappointment, the Alladin show was out of service until the 12th, and the Electrical Parade, too, until the 19th.... Oh well,.. next time! We watched the Play Parade & the Christmas Parade. The castle's snowy transformation was really cool, but I will say that all those sites that tell you there is real snowfall from certain points along mainstreet arenot true..... it's bubblesoap. Still, VERY PRETTY & magical, just not "real" snow as advertised on some sites. Just an FYI. Wink

We actually had to grab our spot for the parade TWO HOURS beforehand, and it was all I could do to try to save it while Scott took the girls to go ride more rides (I didn't want them to lose time just sitting the whole time). It filled up fast & was packed elbow to elbow within a half hour so I was glad we got our spots when we did, but it was so cold after dark. After the parade, we decided to skip the fireworks... we'll catch those again on another trip,.... in warmer weather, LOL! The scooter did well. It lasted all day long,.... there were 2-3 nights that I had to get pushed back to the hotel because it died on the way, LOL,..... but there you go, MORE MEMORIES, heehee! You have to just take the good with the bad,......... despite all the negative things that happened ( & I didn't even go into them ALL.... this post is this long & it's just touching on all the key stuff.......!!! ), we still had a PHENOMINAL trip.

Others weren't as fortunate. On the way home, at one of the rest stops, we met an older couple who were from Washington, and had made it as far as Eureka, CA. They stopped to get a room for the night & went to have a look at the room before deciding on staying there. When they went back to their minivan, they discovered the whole back side window had been busted out and all of their belongings had been stolen,... their clothes, their camera, video camera, and they had left her purse & his wallet in the car, too, so those were gone,of course, as well. I don't remember if they had cellphones or not. They were on their way to Disneyland. They had decided to go for her birthday and Christmas... she just turned 60 and had never left the state of Washington, and now they were on their way back home, devestated. It broke our hearts.

We got home Saturday evening about 4:00 PM, and set in getting everything unloaded & put away. Scott had to head on to the shop that evening to square things away for the conference he has this week. He had to head out Sunday morning, and will be gone until the end of the week. Saturday was the day Carol passed away a year ago. It was also my late grandmother's birthday, and my sister's wedding anniversary.

Sunday evening I picked up the dogs from the kennel, and after getting back home, found that Tucker (our older male who has cancer) wasn't doing well. He wouldn't eat, was lethargic & kept wheezing. I looked him over and found that his mast cell tumor has begun to grow back. His other tumors were checked and their smears looked fine, but this one had been malignant so it was surgically removed 4 months ago. No one expected it to grow back this fast. He has a few other smaller growths I found as well as skin tags that have suddenly grown a lot bigger. I resolved to take him to the vet the next morning after I got back from taking Ashley to her Ophthalmology appointment. I knew that if the cancer spread, the wheezing & coughing could be due to tumors in his lungs or a sign of heart failure. At the same token, I also knew it could be Kennel Cough from being boarded, and even though both dogs have been vaccinated just a few months ago against it, they can still catch it.

This brings us up to yesterday. Ashley had her Ophthalmology appointment, and it took 2 hours. I knew it would take a little longer because they had to dilate her eyes for the slit lamp, but TWO hours?? My goodness... Honestly, I think they forgot about us because we sat thereor so long Ashley actually started to fall asleep in the chair, there was no one around, the other exam rooms were empty, and then on my third attempt to wander out front to find somebody, I found the nurse at her computer. She seemed surprised, then said something about them having a lot of eye emergencies........ where?? Anyway, the exam went well, Ashley's eyes looked good, the tumors looked fine (from that standpoint so far), and her retinas were textbook perfect (like my ears, hahaha). She may be developing a slight stigmatism, but they don't think she needs correction at this point, and they don't think it's related to the tumors. It was suggested she just have a standard eye exam for a follow-up in the Spring. She also determined this while Ashley's eyes were dilated, and when I brought this up, she admitted it wasn't reliable (your vision is skewed, blurry & often doubled). I am so sick of KP doctors. *rolls eyes*

After dropping Ashley off at home, I picked up Tucker and took him to the vet. He was so cold, his muscles started contracting & contorting so that I almost thought he was having baby seizures... poor old guy. Well, they asperated one of the cysts, and the smear looked fine. His bloodwork all came back good, no fever, and his lungs sounded fine. So, for now, they sent us home with antibiotics & pain meds for Kennel Cough. If he's not showing signs of improvement by Friday, I am supposed to take him back in for chest x-rays to make sure he doesn't have tumors spreading in his lungs. Two hours and another $150 later, we came home. Oh, and I was warned that the new safety regulations now require all personel out of the room for diagnostics imaging so now they have to sedate. His surgey ran us $700.00 *gulp*..... this old fart is draining us! But,... we love him.

I still had erronds to run, and since most of our stuff is still in storage with trying to get moved,.. I grabbed a small tree & a few decorations for it. So we put that up when I got home.

Surprisingly, I have been doing pretty well. Sunday, being back at home and having access to all my meds again, including the new ones (and yes, there was the bag sitting right where it had been left *sigh*)..... My labs showed I was deficient in almost every hormone & vitamin/mineral. My LLMD ND is starting me off slowly adding in new supplements. I had an adrenal he called in for me while I was away... and I noted some improvements just from that alone, but I still couldn't get around on my own well at all while on the vacation. Sunday however, was my first day to finally get to start trying the Cytomel in conjunction with the Synthroid. I rested most of the day, but in the afternoon I was moving around with a lot more ease. And then yesterday, with all the running I had to do, I was exhausted, but more like anyone else would be after all that...... and I didn't have to use my cane at all. I walked at a normal pace, not slow or slumped, and didn't have trouble getting in & out of the car. I was tired & sore last night, and I did take a Vicodin, but I wasn't too bad. I was noteably impressed with how well I was feeling because quite honestly, I anticipated coming home from vacation and ending up in bed for a week trying to recoupe like I have in the past! Instead, I've been waking up earlier, ready to get up and able to stay up..... that is saying something!

I had mesages from my KP doc saying my TSH hasn't changed & is still high. Hmmm,... didn't I tr to tell them this when I was there? But they made me do the labs again anyway, just to find out the same result. They refused to add in the Cytomel, which so far, seems to be doing wonders for me. Still no mention of doing this, she just sent me a letter saying she upped my Synthroid dose and to pick it up at the pharmacy, then come back for labs again in 6 weeks. I don't know yet what she increased it to. I have an appointment with my LLMD ND next Monday to go over all my lab results, and what all supplemental protocol we're going to do, plus I'll get my Igenex results, and start abx treatment for the Lyme. BTW, I also got the ELISA titer results back, and they were of course 'negative', but then we knew they would be. KP is known for this, and they even told me they were sending my blood to Virginia! Well, I already have info on what their practices are so,.. there you go.

Tomorrow, I'm taking Bailey in to finally get spayed, Friday, I have an optometry appt. & Ashley has a peds appt. Her ophthalmologist said I need to make an appt to see her also. I told her I tried and was told to go see my optomitrist first. She told me I don't need a referral for her, and I need to see both of them so I will be scheduling with her shortly. Monday I see my LLMD ND again, Tuesday Brittney has a peds appt., then next Thursday I have a neurology appt (did I forget to mention that? Yeah, I came home to another message saying I had been referred, LOL, guess my persistance paid off) and Ashley has her peds oncology appt, although that will probably have to be rescheduled because she needs her MRI done first, and we're still in the progress of getting that scheduled. KP sent the order to the wrong hospital (figures) so they're straightening it out. I called again today, but it's still getting changed. Let's see, then Courtney has her peds appt on the 23rd. I still have to get the chiropractor worked into the schedule yet, too.

Scott was on the news today & is being broadcast for a LIVE segment in the morning for the T3 Motion at 6:30 AM so if you're in Bend, OR, and get Ch 9 (KOHD), watch him! He's at the big police convention over there this week. I am hoping he'll be able to get a copy so we can see it.

What else,..... Oh, here's a newsflash: The girls & I are no longer vegetarians. Yes, you heard me right. This has been weighing on me for awhile now from a "faith" perspective, and after reading the book, "Eatin' After Eden" by Dr. Zook, and a lot of Bible Study on the subject we have determined that we fell into the trap that 1 Timothy 4:1-6 warns about. I am happy to talk about this with anyone who wants to know more about it. I highly recommend this book for all vegetarians, vegans, and non-vegetarians/vegans as well as Christians & non-Christians. There is a wealth of information that Dr. Zook has worked diligently to compile together for the reader. This was not my sole reason for returning to flesh-foods, but it did solidify the decision, and for my children as well. And, I have to admit, that the switch feels right both physically & emotionally. And, we are already feeling a difference........ no wonder I am so deficient in so many ways. And, soy, I have learned actually blocks the proper absorption of MOST nutrients! Almost everything I have put into my mouth the past 3 years has been soy.... I have been eating flesh-foods for a week now, and have noted significant difference in my mental clarity. Remember that "unedited" post I left a few weeks ago?? Well, you see how long this post is, and it too, is UNEDITED. I know it is not perfect, and that is not my aim, but look at this compared to the other...... I'm not seeing all the inversions and such that I was having before!

I'm going to close this now........ I know, you're probably thinking "It's about time!",.. that is, if you've made it this far, LOL,..... but honestly a LOT has happened in the last 2 weeks, and I wasn't around to post on it in increments. If you've read through this in it's entirety, you're awesome. If you haven't,... that's okay. It felt good for me to type it all out all the same. Kind of a "Whew! Set that load down!" kind of thing, LOL Wink

Despite everything, we are happy,.... We are home safe & sound, and we had a wonderful trip.

God Bless!!!!!!! XOXOXO

I am NOT a doctor in any way, shape or form, and
any information I share is soley based on personal experience &/or research. Please do not take anything I say as medical advice, and anything you decide to take into account, I urge you to discuss with your health care provider before you consider proceeding. ______________________

Favorite Quote:
"I know God will not give me anything I can't handle.
I just wish he didn't trust me so much."
- Mother Teresa

12/09/2008 05:50 PM  Top
Bonski
Bonski
 
Posts: 176
Member

Holy cow! What a trip! I'm glad you found some happy moments through all of that. I'm going to go send you a hug now...

12/09/2008 06:10 PM  Top
beauty4ashes
beauty4ashes
 
Posts: 860
Senior Member

You're a gem, Bonita, thanks!

Where's my Christine?? I missed you SOOOOOOOOOOO much, too, hun!! Ron, Julie, Jen, Dharma, Connie,.. I've missed you all like crazy!! I have a lot yet to catch up on around here this week so I may be off an on, but I'm here again! Wink Can't wait to jump back in with you all!!

(((BIG HUGS)))

I am NOT a doctor in any way, shape or form, and
any information I share is soley based on personal experience &/or research. Please do not take anything I say as medical advice, and anything you decide to take into account, I urge you to discuss with your health care provider before you consider proceeding. ______________________

Favorite Quote:
"I know God will not give me anything I can't handle.
I just wish he didn't trust me so much."
- Mother Teresa
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Health Topics: Eye Emergencies, Optometry
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