Lyme Disease Support Group

How absolutely terrifying for you- your list of symptoms I suspect are unsettling at best. You definitely came to the right place for help. 21 days of Doxycycline will NOT be enough. You have severe symptoms of Lyme disease and you may have contracted co-infections from all the tick bites you have gotten.

Thank goodness you had an ER doctor that recognized Lyme disease clinically. Unfortunately they didn't give you even a fighting chance with 100mg of Doxy.

If you've been bit by ticks in previous years, you may have had Lyme long before this year, but your immune system was keeping it in check. I was given a booster dose of Lyme and co-infections last spring that sent my health into a tail-spin.

Sadly, the good Lyme doctors don't take insurance. Please keep in mind that your health is your greatest asset and that you will find a way to pay for treatment that will give you your life back.

There are some great support groups/resources in MN and WI. Please message me if you'd like to get hooked up with them.

One of the moderators here at MDJunction will send you a list of doctors. If you want to know who I'd choose out of the list, I'd be happy to help.

Please keep us posted on your well-being. This is a great support group and full of wonderful, intelligent and caring folks who will try and help in any way they possibly can.

Hugs,

-Edessa

Continue keeping the detailed symptom log, as well as morning and evening temperatures. This will be valuable information when you get into a Lyme literate doctor.

And yes, you might be able to get treatment covered under workers comp.

Sending you a PM with LLMD information. I hope you are able to get in depth treatment soon! You are so right that 3 weeks of doxy will not be enough.

Locking this post.