MDJunction - People Helping People
 
Ask a Question
06/06/2012 03:12 PM

LLMD Request in or near Colorado Springs, CO

PeterCS
Posts: 14
New Member

Hello. My name is Peter. I just joined this site and this is my first post. I live in Colorado Springs, CO.

I am not under 21.

I am desperately trying to figure out how to handle this situation.

I'm quite certain that I have Lyme, although my doctor, family, etc., don't seem to believe me.

I feel as though I am gradually deteriorating. I got tested through IGenex a while back, but did not have enough bands positive to receive a confirmatory positive diagnosis.

However, band 31 (which I understand is very specific to Lyme) showed up positive (and 41 showed up IND) on the IgM...

and on the IgG, bands 41, 30, and 58 showed up positive, and 39 showed up IND.

IGenex suggests retesting and also trying a different testing method, but I cannot afford any further tests at this time or any time in the foreseeable future.

I have not been able to afford to test for co-infections.

I have no idea how I'm going to handle this from a financial perspective, as I am starting to have increased symptoms.

I think that I first contracted Lyme in February of 2011.

I have taken some naturals, which helped for a while (I felt close to normal for some time), but it seems as though they may be losing their effectiveness.

I really don't know what to do. I think that maybe seeing a LLMD would be a good idea. Please help.

Any information, support, and/or suggestions would be greatly appreciated. Thank you.

Post edited by: PeterCS, at: 06/06/2012 03:27 PM

Post edited by: PeterCS, at: 06/06/2012 03:29 PM

--- The discussion has been locked ---


06/06/2012 03:22 PM
Bettyg
 
Posts: 32210
VIP Member
I'm an Advocate

hi peter,

please EDIT and break up your entire post using my below posting guidelines and making sure you ANSWER ALL QUESTIONS ASKED BELOW in your post.

we neuro lyme folks can NOT read anything you just typed; lost our comprehension skills decades ago.

thanks for helping us help YOU Wink

bettyg, iowa activist

***************************************

Welcome to MD JUNCTION! I'm so glad you found us! You've come to the right place for education and support!

Private messages DELETED in 30 days!

ARCHIVE, upper right!

My WELCOME LETTER is posted at the top of SUPPORT FORUM in sticky pin full of good info and HYPERLINKS ready to be read.

http://www.mdjunction.com/forums/lyme-disease-support- forums/general-support/2356916-bettygs-welcome-letter-wgood- beginner-links-

The most important things are at the top; MUST READ and print off as mentioned there already to start your lyme/co-infection journey with us all.

The 1st things to do are:

• JOIN LYME BOARD;

• Post in LLMD REQUEST FORUM for a LYME LITERATE md; see my welcome letter and the INSTRUCTIONS there if you are SPECIALLY FROM CALIF. Where it's broken down into 8 NAMED AREAS.

• You'll need to give me my calif. NAMED area where you live in the areas shown there in SUBJECT LINE plus if it's for ADULT or a child; we need age of CHILD; some llmds have AGE restrictions.

• OTHER STATES will show the SPECIFIC NAME OF THEIR STATE and Qclosest, largest city to them in SUBJECT line plus adult or child; UNDER 21; we need their age!.

http://www.mdjunction.com/forums/lyme-disease-support- forums/llmd-info/Itemid=217/func=post/do=reply

• Also, we'll need the following info in your request post:

in your llmd request, please EDIT and add more info ok.

Are you UNDER AGE 21;; if yes, I need your age shown as some of our llmds have AGE RESTRICTIONS; thanks!

how long you've been sick

if you've tested for lyme/co-infections;

which labs doing work for which specific test, etc.

did you have western blot igm/igg done by igenex?

if yes, what were the POSITIVE & INDETERMINDED numbers; NOT negatives.

thanks for understanding; just EDIT your post. you can find all by going to left MY DISCUSSIONS, click on it.

after you add more, a LEADER will send you names ok.

I RECENTLY RETIRED AFTER 6 LONG YRS. OF DOING THIS!

Betty's suggested posting guidelines:

NO ALL CAPS POSTS; they are illegible to me/other neuro folks!

Many of members have neuro lyme, and it is hard to read long solid block text and be able to comprehend; example, me, 42 yrs. neuro chronic lyme, so we are UNABLE to comprehend and read. Thank you for helping us help YOU 

Please post in short paragraphs like you see below or look at a few other posts, but we neuro folks need them short.

1-2 sentences MAX per paragraph and hit ENTER TWICE to double space between each paragraph. We've lost our comprehension skills to read solid block text.

We neuros lose our train of thought if the sentence is broken up in the middle; so please keep an ENTIRE sentence together as ONE. hugs

For easier reading, please edit your post. You can break up your longer paragraphs into smaller paragraphs. Please hit

ENTER key twice after each paragraph.

Go to left hand corner; click edit send. Then go to bottom and click SUBSCRIBE TO THIS DISCUSSION.

Thank you for posting in a manner that makes it easier for all to read and help others.

Bettyg, Iowa activist FOREVER Wink

**************************

YES, be prepared to PAY UPFRONT!

i've heard of some requiring down payments; i wasn't aware of that one at all!!

very FEW accept insurance; why?

insurance co. allow 7 min. per patient; we can hardly say hello in that time!

you also have to follow INSURANCE'S GUIDELINES ON TREATMENTS, IDSA/infectious disease drs. socieity guidelines... BAD NEWS FOR US!

by NOT accepting insurance, they can practice ILADS/intl. lyme and associated disease lyme guidelines ... treating you longer than 4 wks. of antibiotics, herbals, and alternative therapeis.

they allow 30-60 min. appt; longer 1st time; you pay accordinatelly for those appts.

ACCEPTING INSURANCE; they get very little $$ to pay the staff/overhead of building/utilities, etc.

many call patients day before to make sure they will be there; MANY DO NOT SHOW UP NOR HAVE THE DECENCY TO CALL SAYING THEY ARE NOT COMING!!

they could get those close by to come in but NOT being called; they are OUT THE MONEY and having one hell of a time meeting the bills.

our LLMDS are NOT RICH by any means!!

i hope this answers your questions so you understand what THEY are going thru too.

hugs/prayers,

bettyg, iowa activist forever

RETIRED llmd coordinator for 6 yrs working directly with these drs/former group leader

--- The discussion has been locked ---


06/06/2012 07:27 PM
mem6583

Hi Peter, sent you PM. Best wishes.

Locking this post.

--- The discussion has been locked ---


Share this discussion with your friends:


Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.
Contact Us | About Us
Copyright (c) 2006-2014 MDJunction.com All Rights Reserved