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Lyme Disease ForumsDoctor (LLMD) RequestsNeed LLMD in Illinois please
05/02/2012 10:57 PM
BakerMom
 
Posts: 1
New Member

Hi, I've been sick for 20 years, I'm 52.

I have another illness, Pseudotumor cerebri, which has many of the same symptoms as Lyme so had never thought to look anywhere else.

When lots of new neuro symptoms started in December 2011, and then seizures in January of 2012, even my very much loved neurologist suggested it was all psychosomatic due to the stresses in my life.

The only thing is, I know I'm not crazy, that these symptoms are real and my brain isn't imagining them.

I started watching videos on psychogenic seizures and that just wasn't me! Then I scrolled over one that was "lyme seizure" and THAT was ME!!!

I had never even thought of lyme before, but had the classic rash 20 years ago and have followed all of the stages in order and have almost every symptom!

Wow, perhaps finally an answer after all of these years!

Only thing is all I can convince my local doctors to do is the lyme abs testing.

Please help! I need a LLMD in the N. Illinois, Indiana, Iowa or S. Wisconsin.

Thank you so much! I'm so glad I stumbled across this forum tonight!!!

BakerMom

Post edited by: BakerMom, at: 05/02/2012 11:22 PM

EMPHASIZED, bettyg, leader

Post edited by: Bettyg, at: 05/02/2012 11:37 PM

Post edited by: BakerMom, at: 05/03/2012 12:14 AM

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05/02/2012 11:04 PM  Top
Bettyg
 
Posts: 26593
VIP Member
I'm an Advocate

hi mom Wink

please edit your post and break it all up since we can't read continuous block due to NEURO LYME issues.

1-2 sentences MAX; HIT ENTER TWICE AFTER EACH SHORT paragraph and do this until you get done.

top line, please show your age so that will help new llmd sender, lauren, who took over 2 nights ago from me after 6 hrs. doing this.

also, hve you answered all questions asked below; we need this info; thanks for helping us help YOU Wink

hugs/prayers,

bettyg, leader

***************

Welcome to MD JUNCTION! I'm so glad you found us! You’ve come to the right place for education and support!

Private messages DELETED in 30 days!

ARCHIVE, upper right!

My WELCOME LETTER is posted at the top of SUPPORT FORUM in sticky pin full of good info and HYPERLINKS ready to be read.

http://www.mdjunction.com/forums/lyme-disease-support- forums/general-support/2356916-bettygs-welcome-letter-wgood- beginner-links-

The most important things are at the top; MUST READ and print off as mentioned there already to start your lyme/co-infection journey with us all.

The 1st things to do are:

• JOIN LYME BOARD;

• Post in LLMD REQUEST FORUM for a LYME LITERATE md; see my welcome letter and the INSTRUCTIONS there if you are SPECIALLY FROM CALIF. Where it’s broken down into 8 NAMED AREAS.

• You’ll need to give me my calif. NAMED area where you live in the areas shown there in SUBJECT LINE plus if it’s for ADULT or a child; we need age of CHILD; some llmds have AGE restrictions.

OTHER STATES will show the SPECIFIC NAME OF THEIR STATE and closest, largest city to them in SUBJECT line plus adult or child; UNDER 21; we need their age!.

http://www.mdjunction.com/forums/lyme-disease-support- forums/llmd-info/Itemid=217/func=post/do=reply

• Also, I’ll need the following info in your request post:

in your llmd request, please EDIT and add more info ok.

Are you UNDER AGE 21;; if yes, I need your age shown as some of our llmds have AGE RESTRICTIONS; thanks!

how long you've been sick

if you've tested for lyme/co-infections;

which labs doing work for which specific test, etc.

did you have western blot igm/igg done by igenex?

if yes, what were the POSITIVE & INDETERMINDED numbers; NOT negatives.

thanks for understanding; just EDIT your post. you can find all by going to left MY DISCUSSIONS, click on it.

after you add more, i'll send you names ok.

just send me a PRIVATE MESSAGE left side, giving me the direct link to come to here, and i'll send you the names ok big thanks.

Betty’s suggested posting guidelines:

NO ALL CAPS POSTS; they are illegible to me/other neuro folks!

Many of members have neuro lyme, and it is hard to read long solid block text and be able to comprehend; example, me, 42 yrs. neuro chronic lyme, so we are UNABLE to comprehend and read. Thank you for helping us help YOU

please post in short paragraphs like you see below or look at a few other posts, but we neuro folks need them short.

1-2 sentences MAX per paragraph and hit ENTER TWICE to doublespace between each paragraph. We’ve lost our comprehension skills to read solid block text.

we neuros lose our train of thought if the sentence is broken up in the middle; so please keep an ENTIRE sentence together as ONE. hugs

For easier reading, please edit your post. You can break up your longer paragraphs into smaller paragraphs. Please hit

ENTER key twice after each paragraph.

Go to left hand corner; click edit send. Then go to bottom and click SUBSCRIBE TO THIS DISCUSSION.

Thank you for posting in a manner that makes it easier for all to read and help others.

Bettyg, group leader/Iowa activist

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.
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05/04/2012 05:10 PM  Top
WiscLamLymie
WiscLamLymie
 
Posts: 1325
Group Leader

Sending PM. Locking. Smile Lauren
Was diagnosed with Autonomic Disorder, POTS, Interstitial Cystitis, and Fibromyalgia. True story is I have late stage Lyme which has caused these things. Just began the fight in October 2011 (have been full-blown Lyme since Sept. 5, 2010), and WILL be victorious! Positive bands: IgG 41 and 60; IgM 23 and 41. CDC positive!

Not a doctor, not anyone of any legal standing... just someone on the search.
(Translation: Please do not take anything I say as medical advice. Always see your doctor when needing medical advice.)
--- The discussion has been locked ---


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